Find support, or help research
People near you who know what living with Duchenne muscular dystrophy is like, and ways you can help find better treatments.
Support groups in Slovenia
- DMD SlovenijaPatient association in Slovenia for people with Duchenne muscular dystrophy and their families; member of World Duchenne Organization.All of Slovenia
- Društvo distrofikov SlovenijePatient association in Slovenia for people with neuromuscular diseases, including Duchenne muscular dystrophy and their families; member of EAMDA.All of Slovenia
- Združenje za redke bolezni Slovenije (ZRBS)ZRBS is a voluntary association of Slovenian patient societies for specific groups of rare diseases; it co-organises the national Rare Disease Day conference.All of Slovenia
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in Slovenia and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Duchenne muscular dystrophy.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Duchenne muscular dystrophy to compare with. Family and friends can help.