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Epidermolysis bullosa

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Where research stands todayUpdated 15 Nov 2026
Trial-stage treatments you can join–open now
in United States
Studies published in the last 12 months00 in people · 0 in animals · 0 in the lab
Support organisations2organisations
in United States1 helpline
Offer tissue or dataGive a sample or your health data to research.Approved treatmentsMedicines approved for epidermolysis bullosa around the world.“Miracle cure” fact checkerSaw a cure online? Check it before you pay.

Trial-stage treatments and research studies you can join

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Get notified of new trialsUnited States, all cities, all phases
Your ageShows only trials that take people your age.
Phase
  1. Trial-stage treatmentPhase 1
    Tests a microbubble device for skin cleaning in people with certain skin diseases

    Tests a microbubble cleansing device on skin in people with skin diseases.

    Chicago, United StatesAge 2+
  2. Trial-stage treatmentPhase 2Soon in United States
    Phase 2 trial: Filsuvez
    Palo Alto, United StatesAge 0+
  3. Trial-stage treatmentPhase 2Taking people
    Phase 2 trial: TCP-25 gel
    Cincinnati, United StatesAge 4+
  4. Trial-stage treatmentPhase 3Taking people
    Phase 3 trial: SD-101 Dermal Cream (6%)
    Charleston, United StatesAlso Philadelphia, Rancho Santa Margarita, Redwood CityAge 0 to 12
  5. Trial-stage treatmentPhase 2Taking people
    Phase 2 trial: 5% TolaSure Topical Gel
    Chicago, United StatesAlso Palo AltoAge 2+
  6. Trial-stage treatmentPhase 1/2Taking people
    Phase 1/2 trial: Immunoglobulin G
    Redwood City, United StatesAge 6+
  7. Trial-stage treatmentPhase 1/2Soon in United States
    Phase 1/2 trial: Efgartigimod
    Redwood City, United StatesAge 12+
  8. Trial-stage treatmentPhase 1Taking people
    Early Phase 1 trial: Dupilumab
    Chicago, United StatesAge 0+
  9. Trial-stage treatmentPhase 2Taking people
    Phase 2 trial: BVEC
    Redwood City, United StatesAge 18+
  10. Trial-stage treatmentPhase 3Taking people
    Phase 3 trial: KB803
    Cincinnati, United StatesAlso Coral Gables, Rancho Santa Margarita, San Antonio, WorcesterAge 0+
  11. Trial-stage treatmentPhase 1/2Taking people
    Phase 1/2 trial: AGLE-102
    Los Angeles, United StatesAlso Philadelphia, PhoenixAge 0+
  12. Trial-stage treatmentPhase 1/2Taking people
    Phase 1/2 trial: Gentamicin Sulfate
    Los Angeles, United States
  13. Research studySoon in United States
    Follows people with epidermolysis bullosa using Filsuvez gel for skin cancer

    Follows people with fragile-skin epidermolysis bullosa treated with Filsuvez gel over years.

    Aurora, United StatesAlso Charleston, Cincinnati, Gainesville, Palo Alto, Philadelphia
  14. Trial-stage treatmentTaking people
    Clinical trial: Dysphagia
    Baltimore, United StatesAge 5 to 21
  15. Research study
    Observational study: EB-101
    Redwood City, United StatesAlso WorcesterAge 6+
  16. Research studyTaking people
    Observational study: Prademagene Zamikeracel
    Aurora, United StatesAlso Chicago, Galveston, Palo Alto
  17. Research studyTaking people
    Observational study: Epidermolysis Bullosa Dystrophica
    Stanford, United States
  18. Research studyTaking people
    Observational study: Epidermolysis Bullosa Dystrophica
    Pittsburgh, United StatesAge 0+
  19. Research studyTaking people
    Observational study: Dystrophic Epidermolysis Bullosa
    Coral Gables, United StatesAlso Rancho Santa Margarita, Redwood CityAge 0+

Support organisations

Patient organisations and helplines in United States, for you and your family.

We have no organisations for this disease listed in United States yet. General support there is below.

General support in United States

  • 988 Suicide & Crisis Lifeline

    US national 24/7 free and confidential lifeline for anyone in suicidal crisis or emotional distress, reachable by calling or texting 988 or by chat.

    988lifeline.org
  • MedlinePlus

    Free, easy-to-read health information service of the US National Library of Medicine (NIH) on diseases, conditions, drugs and wellness.

    medlineplus.gov

International organisations

  • EB Research Partnership

    Funds research into treatments and a cure for EB, putting money back into new projects when they succeed.

    646-844-0902ebresearch.org

Patient organisation umbrella bodies

Offer tissue or data

There are three ways to help research move faster.

Give tissue or bloodA biobank stores your sample so many research teams can use it.No open programme yet
Share your health dataA patient registry collects your health data, without your name, for research.How to join
Take part as a healthy volunteerStudies also need people without the disease, for comparison. Family and friends can help.Volunteer

“Miracle cure” fact checker

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Before you pay for anything, ask three things

  1. Is there a published study in people?
  2. Can I have the full price in writing?
  3. What does my doctor say?

“Cures” others already fact-checked

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