Find support, or help research
People near you who know what living with Fabry disease is like, and ways you can help find better treatments.
Support groups in Australia
- Fabry AustraliaFabry Australia: patient organisation in Australia supporting people with Fabry disease; member of FIN.All of Australia
- Genetic Support Network of VictoriaGenetic Support Network of Victoria: patient organisation in Australia supporting people with rare diseases; member of RDI.All of Australia
- Rare Voices AustraliaRare Voices Australia: national rare disease alliance in Australia supporting people with rare diseases; member of RDI.All of Australia
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in Australia and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Fabry disease.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Fabry disease to compare with. Family and friends can help.