Find support, or help research
People near you who know what living with Fabry disease is like, and ways you can help find better treatments.
Support groups in Canada
- Canadian Fabry AssociationAssociation supporting people with Fabry disease and encouraging research into its causes, treatment and management.All of Canada
- Canadian Organization for Rare DisordersNational umbrella network for organizations and people with rare disorders, providing a common voice to advocate for health policy and services.All of Canada
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in Canada and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Fabry disease.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Fabry disease to compare with. Family and friends can help.