Find support, or help research
People near you who know what living with Fabry disease is like, and ways you can help find better treatments.
Support groups in South Africa
- Rare Diseases South AfricaRare Diseases South Africa: national rare disease alliance in South Africa supporting people with rare diseases; member of RDI, IPA, FIN.All of South Africa
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in South Africa and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Fabry disease.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Fabry disease to compare with. Family and friends can help.