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Familial hypercholesterolaemia

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What is new in Familial hypercholesterolaemia research, which clinical trials are open, and who works on it. From public registries and PubMed, with the source and date of every fact.

Cure status

Closest to patients

  1. Study to Evaluate Efficacy and Safety of Inclisiran in Children With Heterozygous Familial HypercholesterolemiaPhase 3 trial: InclisiranJerusalem, Israel + 59 more hospitalsPhase 3Results expected 2028
  2. Study to Evaluate Safety, Tolerability and Efficacy of Inclisiran in Children With Homozygous Familial HypercholesterolemiaPhase 3 trial: InclisiranUC San Francisco Medical Center · San Francisco, United States + 18 more hospitalsPhase 3Results expected 2028
  3. A Study of Bempedoic Acid/Ezetimibe/High-intensity Statin in Patients Without Cardiovascular EventsPhase 3 trial: Bempedoic acid, Ezetimibe, RosuvastatinCardiology, IRCCS San Raffaele Scientific Institute · Milan, Italy + 11 more hospitalsPhase 3Results expected 2028

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Latest news

Results, new trials and publications, newest first. Every item links to its source.

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Organisations that can help

Helplines, patient groups and support services for you and your family.

Select your country to see the organisations there, starting with the ones closest to you.

Umbrella organisations (they connect national groups)

  • FH Europe Foundation

    European network of FH and inherited lipid patient groups (FH, HoFH, Lp(a), FCS): patient information, lifestyle and treatment guidance, awareness and advocacy for early diagnosis.

    Europe

    Visit site: FH Europe Foundation
  • Global Heart Hub

    Global umbrella of heart patient organisations; runs a Heart Failure Patient Network, awareness campaigns, advocacy and patient resources.

    International

    Visit site: Global Heart Hub

General support

For anyone who is ill, whatever the disease: patients' rights and legal aid, crisis lines, hospice and palliative care, care in another EU country, and patient organisations' umbrella bodies.

International

Frontlight is not affiliated with these organisations; we list them because they help.

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Find fellow researchers

Groups with active Familial hypercholesterolaemia work.

Kanazawa University

Kanazawa, Japan

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Amsterdam University Medical Centers

Amsterdam, Netherlands

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Harvard University

Cambridge, United States

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Imperial College London

London, United Kingdom

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University of British Columbia

Vancouver, Canada

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Universidade de São Paulo

São Paulo, Brazil

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Osaka Medical and Pharmaceutical University

Takatsuki, Japan

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The University of Western Australia

Perth, Australia

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Royal Perth Hospital

Perth, Australia

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Erasmus MC

Rotterdam, Netherlands

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