Find support, or help research
People near you who know what living with Haemophilia is like, and ways you can help find better treatments.
Support groups in United States
- Genetic and Rare Diseases Information CenterNIH information center (GARD) providing reliable information on genetic and rare diseases to patients and families via website and contact center.All of United States
- Hemophilia Foundation of MichiganMichigan foundation serving people with hemophilia and other bleeding disorders through education, camps, advocacy and support services.Ypsilanti, MI
- Hemophilia Foundation of Southern CaliforniaServes people with inherited bleeding disorders such as hemophilia in 9 Southern California counties with education, advocacy, support, scholarships and events.Pasadena, CA
- National Bleeding Disorders FoundationUS nonprofit (formerly National Hemophilia Foundation) committed to curing blood and bleeding disorders and empowering people with hemophilia.All of United States
- Nebraska Chapter of the National Bleeding Disorders FoundationNebraska chapter serving people and families with bleeding disorders such as hemophilia, offering education, advocacy, camps, programs and financial assistance.All of United States
- Nevada Chapter of the National Bleeding Disorders FoundationNonprofit serving Nevada people and families affected by bleeding disorders such as hemophilia, offering education, advocacy, camps, events and financial assistance.All of United States
- The Coalition for Hemophilia BNational non-profit in New York serving the hemophilia B community with advocacy, events, newsletters, financial assistance, scholarships and education.All of United States
- The Hemophilia Foundation of MarylandNonprofit serving Maryland people with hemophilia, vWD and other bleeding disorders through education, advocacy, support services and financial assistance.All of United States
- National Organization for Rare DisordersUS national rare disease alliance of patient organizations: education, patient assistance programs, rare disease database and policy advocacy.All of United States
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in United States and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Haemophilia.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Haemophilia to compare with. Family and friends can help.