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Find support, or help research
People near you who know what living with Long COVID and ME/CFS is like, and ways you can help find better treatments.
Support groups in Netherlands
- C-supportIndividual support for people with long-lasting COVID complaints. Closes at the end of 2026: finishing current cases; training for professionals continues.All of Netherlands
- Long Covid NederlandDutch long COVID patient initiative sharing knowledge and news and campaigning for patients.All of Netherlands
- ME/cvs VerenigingPatient organisation for ME/cvs: helpline (Mon 19-20, Wed 11-13, Fri 10-12.30), advice on care, education and benefits, magazine, advocacy.All of Netherlands
- MECVS NederlandDutch patient organisation for everyone with ME/CFS and their supporters, active for over 35 years.All of Netherlands
- PostCovid NL (Longfonds)Patient organisation for long-lasting complaints after COVID: information, peer contact (one-to-one or groups), online forum, theme meetings, symptom tips.All of Netherlands
- Steungroep ME en ArbeidsongeschiktheidDutch support group for people with ME/CFS facing work disability issues.All of Netherlands
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in Netherlands and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Long COVID and ME/CFS.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Long COVID and ME/CFS to compare with. Family and friends can help.