Find support, or help research
People near you who know what living with Long COVID and ME/CFS is like, and ways you can help find better treatments.
Support groups in United States
- #MEAction NetworkFind a doctor, find your group, crisis resources, handouts, MEpedia, Stop Rest Pace; branches in the US, UK and Scotland.All of United States
- American ME and CFS Society (AMMES)US national nonprofit serving ME/CFS patients and caregivers through support, advocacy and education, with treatment info, support group listings and a crisis fund.All of United States
- Bateman Horne CenterNon-profit ME/CFS and long COVID clinic (application and annual fee) plus free clinical care guide, crash survival guide, state resource directory, support groups.All of United States
- COVID-19 Longhauler Advocacy Project (C19LAP)US patient-led nonprofit serving people with Long COVID and their families through advocacy, education, resources, chapters and support.All of United States
- Long COVID CampaignPatient-led US nonprofit advocating for tests, treatments, research and programs for people living with Long COVID, with ways to get involved.All of United States
- Long COVID JusticeProject by and for chronically ill and disabled people facing Long COVID, offering advocacy, a resource hub, webinars and support groups.All of United States
- Massachusetts ME/CFS & FM AssociationMassachusetts non-profit serving people with ME/CFS, fibromyalgia and Long COVID, offering membership, peer support, a provider database, events and advocacy.All of United States
- Solve M.E.Patient and caregiver resources, find-a-doctor guide, clinical trial list, unhide patient registry, research grants, advocacy for ME/CFS and long COVID.All of United States
- Long COVID AllianceNetwork of patient advocates, scientists and experts (1,500+ members): patient resources, research library, clinical trials list, advocacy.All of United States
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in United States and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Long COVID and ME/CFS.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Long COVID and ME/CFS to compare with. Family and friends can help.