Find support, or help research
People near you who know what living with Myasthenia gravis is like, and ways you can help find better treatments.
Support groups in United States
- Conquer Myasthenia GravisUS nonprofit helping myasthenia gravis patients and families with support, education and community.All of United States
- Genetic and Rare Diseases Information CenterNIH information center (GARD) providing reliable information on genetic and rare diseases to patients and families via website and contact center.All of United States
- Muscular Dystrophy AssociationUS nonprofit advancing research, care and advocacy for people living with muscular dystrophy, ALS and related neuromuscular diseases.All of United States
- Myasthenia Gravis Association (MGA)Kansas City-based association offering support groups, education, new patient packets and resources for people with myasthenia gravis and their families.Kansas City, MO
- Myasthenia Gravis Foundation of AmericaThe largest US patient advocacy organization solely dedicated to myasthenia gravis: support, education and research funding.All of United States
- Myasthenia Gravis Foundation of Michigan (MG-MI)Serves the Michigan myasthenia gravis community with patient support, support meetings, education, newsletters, a provider directory and advocacy.Grand Rapids, MI
- The MG AllianceUS coalition of nonprofit myasthenia gravis organisations offering support groups, education, awareness, advocacy and events for patients and families.All of United States
- The Myasthenia Gravis Association of Colorado (MGAC)Denver-based volunteer association serving people with myasthenia gravis and families through education, publications, support groups, chats and research funding.Colorado
- The Myasthenia Gravis Association of Western PennsylvaniaWestern Pennsylvania association serving people with myasthenia gravis through support groups, a mental health toolkit, newsletters, education and events.Pittsburgh, PA
- National Organization for Rare DisordersUS national rare disease alliance of patient organizations: education, patient assistance programs, rare disease database and policy advocacy.All of United States
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in United States and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Myasthenia gravis.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Myasthenia gravis to compare with. Family and friends can help.