Find support, or help research
People near you who know what living with Pompe disease is like, and ways you can help find better treatments.
Support groups in Spain
- Asociación Española de Enfermos de Glucogenosis (AEEG)Patient organisation for people with glycogen storage diseases, including Pompe disease in Spain; member of the International Pompe Association (IPA).All of Spain
- Asociación Española de Enfermos de Pompe (AEEP)Patient organisation for people with Pompe disease in Spain; member of the International Pompe Association (IPA).All of Spain
- Asociación MPS-Lisosomales EspañaSpanish association for people with MPS and other lysosomal diseases, including Fabry, Gaucher and Pompe disease; listed by IGA and FIN.All of Spain
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in Spain and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Pompe disease.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Pompe disease to compare with. Family and friends can help.