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Pulmonary arterial hypertension

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Where research stands todayUpdated 10 Nov 2026
Trial-stage treatments you can join–open now worldwide
Offer tissue or dataGive a sample or your health data to research.“Miracle cure” fact checkerSaw a cure online? Check it before you pay.

Trial-stage treatments and research studies you can join

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Phase

Support organisations

Umbrella organisations (they connect national groups)

  • EURORDIS – Rare Diseases EuropeUmbrella organisation

    Alliance of over 1,000 rare disease patient organisations, with a list of rare disease helplines by country.

    eurordis.org/information-support/rare-disease-help-lines
  • Pulmonary Hypertension Association EuropeUmbrella organisation

    Federation of national PH patient associations (plus associated members worldwide): PH information, specialist finder, awareness campaigns, access-to-treatment advocacy.

    phaeurope.org

General support

For anyone who is ill, whatever the disease: patients' rights and legal aid, crisis lines, hospice and palliative care, care in another EU country, and patient organisations' umbrella bodies.

International

  • European Patients' Forum (EPF)Umbrella organisation

    Umbrella of European patient organisations and national patient coalitions.

    eu-patient.eu
  • International Alliance of Patients' OrganizationsUmbrella organisation

    Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.

    iapo.org.uk

Offer tissue or data

There are three ways to help research move faster.

Give tissue or bloodA biobank stores your sample so many research teams can use it.No open programme yet
Share your health dataA patient registry collects your health data, without your name, for research.How to join
Take part as a healthy volunteerStudies also need people without the disease, for comparison. Family and friends can help.Volunteer

“Miracle cure” fact checker

Social media spreads misinformation. Paste what you read here, and we'll tell you whether there is scientific evidence behind it.

This feature goes live on 12 November

Before you pay for anything, ask three things

  1. Is there a published study in people?
  2. Can I have the full price in writing?
  3. What does my doctor say?