Under construction – not a live service
Sign in

Find support, or help research

People near you who know what living with Sickle cell disease is like, and ways you can help find better treatments.

Support groups in United States

  • Genetic and Rare Diseases Information CenterNIH information center (GARD) providing reliable information on genetic and rare diseases to patients and families via website and contact center.
    All of United States
  • Sickle Cell Disease Association of AmericaUS national association of community-based member organizations serving people with sickle cell disease through advocacy, education and support.
    All of United States
  • Sickle Cell Disease FoundationCalifornia non-profit supporting people with sickle cell disease and families via counseling, camps, parent education, community health workers and resources.
    Los Angeles, CA
  • Sickle Cell Foundation of Georgia, Inc.Georgia foundation for people with sickle cell disease and families, offering care and support services, education, counseling, advocacy, testing and a camp.
    Atlanta, GA
  • Sickle Cell Foundation of MinnesotaMinnesota patient advocacy group for people with sickle cell disease and trait, offering education, advocacy, support groups and financial assistance.
    Minneapolis, MN
  • Sickle Cell Foundation, Inc.Tallahassee, Florida foundation serving people with sickle cell disease and families via advocacy, education, support groups, trait screening and camp aid.
    Tallahassee, FL
  • Sickle Cell/Thalassemia Patients Network (SCTPN)Brooklyn, NY non-profit for people with sickle cell disease and thalassemia, offering advocacy, care coordination, support, referrals and community health workers.
    Brooklyn, NY
  • National Organization for Rare DisordersUS national rare disease alliance of patient organizations: education, patient assistance programs, rare disease database and policy advocacy.
    All of United States

Contact details come from each group's own page and are checked every 3 months.