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Find support, or help research
People near you who know what living with Spinal muscular atrophy is like, and ways you can help find better treatments.
Support groups in Argentina
- FAME Argentina – Familias de Atrofia Muscular EspinalFAME Argentina: patient organisation in Argentina supporting people with spinal muscular atrophy (SMA) and their families with information and support.All of Argentina
- Alianza Argentina de Pacientes (ALAPA)Alianza Argentina de Pacientes (ALAPA): national rare disease alliance in Argentina supporting people with rare diseases; member of RDI.All of Argentina
- Federación Argentina de Enfermedades Poco Frecuentes (FADEPOF)Federación Argentina de Enfermedades Poco Frecuentes (FADEPOF): national rare disease alliance in Argentina supporting people with rare diseases; member of RDI.All of Argentina
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in Argentina and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Spinal muscular atrophy.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Spinal muscular atrophy to compare with. Family and friends can help.