Frontlight ResearchEarly access
Find support, or help research
People near you who know what living with Spinal muscular atrophy is like, and ways you can help find better treatments.
Support groups in Türkiye
- SMA VakfıFoundation in Türkiye for people with spinal muscular atrophy (SMA) and their families; member of SMA Europe.All of Türkiye
- Türkiye Kas Hastalıkları DerneğiPatient association in Türkiye for people with neuromuscular diseases, including Duchenne muscular dystrophy and spinal muscular atrophy (SMA) and their families; member of EAMDA.All of Türkiye
- Nadir Hastalıklar FederasyonuTurkish federation founded by rare-disease patients and families to raise awareness and address their problems; members are rare-disease patient associations.All of Türkiye
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in Türkiye and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Spinal muscular atrophy.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Spinal muscular atrophy to compare with. Family and friends can help.