Find support, or help research
People near you who know what living with Spinal muscular atrophy is like, and ways you can help find better treatments.
Support groups in United States
- Cure SMAUS nonprofit supporting patients and families affected by spinal muscular atrophy and funding SMA research.All of United States
- Genetic and Rare Diseases Information CenterNIH information center (GARD) providing reliable information on genetic and rare diseases to patients and families via website and contact center.All of United States
- Muscular Dystrophy AssociationUS nonprofit advancing research, care and advocacy for people living with muscular dystrophy, ALS and related neuromuscular diseases.All of United States
- National Organization for Rare DisordersUS national rare disease alliance of patient organizations: education, patient assistance programs, rare disease database and policy advocacy.All of United States
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in United States and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Spinal muscular atrophy.
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Spinal muscular atrophy to compare with. Family and friends can help.