Find support, or help research
People near you who know what living with Systemic sclerosis (scleroderma) is like, and ways you can help find better treatments.
Support groups in Australia
- Scleroderma AustraliaScleroderma Australia supports the scleroderma community with information on the disease and its types.All of Australia
- Scleroderma VictoriaScleroderma Victoria, a patient support organisation for people with scleroderma in Victoria.All of Australia
- Rare Voices AustraliaRare Voices Australia: national rare disease alliance in Australia supporting people with rare diseases; member of RDI.All of Australia
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in Australia and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Systemic sclerosis (scleroderma).
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Systemic sclerosis (scleroderma) to compare with. Family and friends can help.