Find support, or help research
People near you who know what living with Systemic sclerosis (scleroderma) is like, and ways you can help find better treatments.
Support groups in Brazil
- Casa HunterCasa Hunter: patient organisation in Brazil supporting people with rare diseases; member of RDI.All of Brazil
- EncontrAREncontrAR (GRUPAR), Brazilian patient organisation and information portal for people with rheumatic diseases.All of Brazil
- Instituto Vidas RarasRare Lives Institute: patient organisation in Brazil supporting people with rare diseases; member of RDI, IPA.All of Brazil
- Associação Brasileira de Enfermidades Raras (FEBER)Associação Brasileira de Enfermidades Raras (FEBER): national rare disease alliance in Brazil supporting people with rare diseases; member of RDI.All of Brazil
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in Brazil and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Systemic sclerosis (scleroderma).
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Systemic sclerosis (scleroderma) to compare with. Family and friends can help.