Find support, or help research
People near you who know what living with Systemic sclerosis (scleroderma) is like, and ways you can help find better treatments.
Support groups in Germany
- Deutsche Rheuma-Liga Berlin e.V.Berlin self-help organisation for people with rheumatic diseases and their relatives, offering self-help groups, exercise courses, patient education and counselling.Berlin
- Deutsche Rheuma-Liga Landesverband Rheinland-Pfalz e.V.Rheumatism patient league in Rhineland-Palatinate offering counselling, local groups, functional training, seminars and rare-disease talk circles, incl. scleroderma.All of Germany
- Scleroderma Liga e.V.Patient association for people with scleroderma (systemic sclerosis) in Germany; listed as a member of FESCA.All of Germany
- Sklerodermie Selbsthilfe e.V.Patient association for people with scleroderma (systemic sclerosis) in Germany; listed as a member of FESCA.All of Germany
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in Germany and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Systemic sclerosis (scleroderma).
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Systemic sclerosis (scleroderma) to compare with. Family and friends can help.