Find support, or help research
People near you who know what living with Systemic sclerosis (scleroderma) is like, and ways you can help find better treatments.
Support groups in South Korea
- (사)한국희귀·난치성질환연합회National federation of rare and intractable disease patient groups in Korea; runs policy advocacy, medical and welfare support and a shelter for rare disease patients and families.All of South Korea
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in South Korea and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Systemic sclerosis (scleroderma).
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Systemic sclerosis (scleroderma) to compare with. Family and friends can help.