Find support, or help research
People near you who know what living with Systemic sclerosis (scleroderma) is like, and ways you can help find better treatments.
Support groups in Taiwan
- 財團法人罕見疾病基金會Taiwan Foundation for Rare Disorders: foundation in Taiwan supporting people with Fabry disease, Pompe disease; member of IPA, FIN.All of Taiwan
Contact details come from each group's own page and are checked every 3 months.
Help research
You do not need to join a trial to help. Below are the programmes we found in Taiwan and how to reach them. You contact them yourself: Frontlight does not collect or pass on your details.
Give blood or tissue for researchResearchers use stored samples to find what causes Systemic sclerosis (scleroderma).
Share your health dataA registry collects health data, without your name, so research teams can study many people at once.
Take part as a healthy volunteerStudies need people without Systemic sclerosis (scleroderma) to compare with. Family and friends can help.