Wilson disease: who works on it

One card per institution. Pick a target or a country to narrow the list.

24 of 98 institutions, ordered by recent publications and open trials. This is not a ranking of quality.

Funded research projects that name this disease in their title, terms or summary and have not ended yet: who is funded, where, how much and until when. Organisations only; the funder's page has the details.

• NIH NIDDK · R44

  Developing Hydrodynamic Injection through Biliary System for the Treatment of Wilson's Disease

  Hydrogene Therapeutics Inc· Houston, United States· US$1,097,036 awarded in fiscal year 2026· until Jun 2028

• NIH NCATS · R13

  14th International Copper Meeting 2026

  Auburn University at Auburn· Auburn, United States· US$25,000 awarded in fiscal year 2026· until Aug 2027

• NIH NIGMS · R01

  Molecular Tools to Enable Control Over Endogenous Metals

  North Carolina State University Raleigh· Raleigh, United States· US$385,907 awarded in fiscal year 2026· until Apr 2030

• NIH NCI · R01

  Deciphering the Significance of Lipoylation in Prostate Cancer Bone Metastasis to Develop Innovative Therapeutics

  University of Mississippi Med Ctr· Jackson, United States· US$517,920 awarded in fiscal year 2026· until Jun 2031

• NIH NINDS · R01

  The Role of Copper in Choroid Plexus

  Johns Hopkins University· Baltimore, United States· US$463,322 awarded in fiscal year 2026· until Jul 2029

• European Commission (Horizon Europe) · HORIZON-TMA-MSCA-PF-EF

  Wilson transporter ATP7B: Interactions, Lipids, Structure and RegulatiON (WILSON)

  Aarhus Universitet· Aarhus C, Denmark· EU contribution €263,393· until Jun 2028

6 of 18 running projects, newest first. Listed amounts together: US$8.8m + €263.4k.

Sources: NIH RePORTER (U.S. National Institutes of Health, public domain) and CORDIS (European Commission, CC BY 4.0). Changes: filtered by disease, organisations matched to ROR.

Terminated, withdrawn and suspended trials with the reason the sponsor gave in the registry, quoted word for word.

• Terminated

  Performance and Safety of MEX-CD1 Low-volume Continuous Veno-venous Haemodialysis Medical Device for Copper-extraction in Patients With Wilson's Disease

  NCT05917327· Mexbrain· Updated 5 Dec 2025

  “Septex kit required has been discontinued by the external supplier”Registry text, quoted unchanged. Source

Trials whose registry record says individual participant data (IPD) will be shared.

• Prospective Study to Characterize the Pharmacokinetics and Pharmacodynamics of Cufence (Trientine Dihydrochloride) in Wilson Disease Patients

  2024-516431-27-00· Univar Solutions B.V.· Source

Find publications on this disease by a MeSH method term, for example a sequencing or imaging method.

• Organoids 2
• CRISPR-Cas Systems 1
• Gene Expression Profiling 3
• Exome Sequencing 4
• Proteomics 1
• Metabolomics 1
• Mass Spectrometry 3
• Positron-Emission Tomography 1
• Magnetic Resonance Imaging 15
• Machine Learning 4
• Cohort Studies 5
• Genome-Wide Association Study 1

See which targets of this disease your abstract mentions, and go to the people working on them.