Support organisations
Patient groups and helplines near you, for people with a disease and for their families.
183 organisations for Acute lymphoblastic leukaemia in all countries
Leukämie und Lymphom Selbsthilfegruppe Münsterland e.V.
Self-help group in Münsterland for people with leukaemias and lymphomas and their relatives, offering monthly meetings, experience exchange and support.
For Chronic lymphocytic leukaemia, Acute lymphoblastic leukaemia
Visit site: muensterland-shg.deLeukämie- und Lymphomhilfe NRW e.V.
Self-help association in North Rhine-Westphalia for people with leukaemia and lymphoma and their relatives, with monthly group meetings, personal counselling and a yearly symposium.
For Acute myeloid leukemia, Hodgkin lymphoma, Mantle cell lymphoma and 2 more
Visit site: llh-nrw.deCancerinfo – Fondation contre le Cancer
Free Belgian cancer information line of the Foundation Against Cancer for patients, relatives and the public with questions about cancer.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: cancer.be
Cancerlinjen – Cancerfonden
Support line of the Swedish Cancer Society giving advice and support by phone or e-mail to people affected by cancer and their relatives.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: cancerfonden.se
Kankerlijn – Kom op tegen Kanker
Free Flemish cancer line where (former) cancer patients and relatives can anonymously get a listening ear, expert advice or information.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: komoptegenkanker.be
Kræftlinjen – Kræftens Bekæmpelse
Free Danish phone line of the Danish Cancer Society offering advice and support to anyone with questions about cancer, patients and relatives.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: cancer.dk
Krebsinformationsdienst (KID) des DKFZ
Doctors answer cancer questions by phone or e-mail, free, every day from 8:00 to 20:00.
For Glioblastoma, Lung cancer, Childhood cancers and 30 more
Visit site: krebsinformationsdienst.de
Krebstelefon / KrebsInfo – Krebsliga
Free Swiss cancer helpline of the Swiss Cancer League offering professional counselling and support on all questions about cancer.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: krebsliga.ch
La Ligue contre le cancer
Free cancer support line and local centres with supportive care, psychological support, financial aid and help with your rights.
For Glioblastoma, Lung cancer, Childhood cancers and 30 more
Visit site: ligue-cancer.net
National Cancer Institute – Cancer Information Service (CIS)
NCI's contact center: information specialists answer cancer questions from patients, families and the public by phone, chat and email.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: cancer.gov
Österreichische Krebshilfe
Free, anonymous counselling at regional centres in every federal state, psycho-oncology and emergency financial aid.
For Glioblastoma, Lung cancer, Childhood cancers and 30 more
Visit site: krebshilfe.net
(사)한국혈액암협회
Korean non-profit association helping patients with blood diseases and blood cancers through economic aid, treatment support, counselling and education.
For Multiple myeloma, Acute myeloid leukemia, Acute lymphoblastic leukaemia and 8 more
Visit site: kbdca.or.kr
Abrale – Associação Brasileira de Câncer do Sangue
Brazilian association for people with blood cancers (leukaemia, lymphoma, myeloma, MDS, MPN), giving free support, information and advocacy nationwide.
For Multiple myeloma, Acute myeloid leukemia, Acute lymphoblastic leukaemia and 8 more
Visit site: abrale.org.br
AIL - Associazione Italiana contro le Leucemie, Linfomi e Mieloma
Italian blood-cancer association with local sections near haematology centres: patient and family support, home care, AIL patient houses near treatment centres, free haematology helpline.
For Acute myeloid leukemia, Multiple myeloma, Acute lymphoblastic leukaemia and 8 more
Visit site: ail.it
American Cancer Society
Nationwide US nonprofit helping people who face cancer: research, patient services, early detection, treatment information and education, with a cancer helpline on its site.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: cancer.org
ASLEM – Associazione Sammarinese per la lotta contro le Leucemie e le Emopatie Maligne
San Marino association giving human, logistic, financial and scientific support to people with haematological diseases and their families; promotes marrow donation.
For Acute myeloid leukemia, Acute lymphoblastic leukaemia, Chronic lymphocytic leukaemia and 8 more
Visit site: aslem.sm
Asociación Mexicana de Lucha Contra el Cáncer
Mexican non-profit that accompanies, informs and supports people with cancer and their families through education, prevention and guidance.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: amlcc.org
Asociația Obștească "Viața fără leucemie"
Moldovan public association supporting children with leukaemia and other cancers and their families. Member of CCI Europe, CCI.
For Acute lymphoblastic leukaemia, Childhood cancers
Visit site: viatafaraleucemie.md
Associação Portuguesa Contra a Leucemia (APCL)
Portuguese association supporting patients with leukaemia and other blood cancers. Member of MPE, ALAN, CMLAN, Lymphoma Coalition, MDS Alliance.
For Multiple myeloma, Acute myeloid leukemia, Acute lymphoblastic leukaemia and 8 more
Visit site: apcl.pt
Associação Portuguesa de Leucemias e Linfomas (APLL)
Portuguese patient association for people with leukaemia, lymphoma and other blood cancers. Member of MPE, CMLAN, Lymphoma Coalition, MDS Alliance.
For Multiple myeloma, Acute myeloid leukemia, Acute lymphoblastic leukaemia and 8 more
Visit site: apll.orgAssociació Andorrana Contra el Càncer (Assandca)
Andorran association founded in 2014 supporting cancer patients and their families and advocating for better cancer care in Andorra.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: assandca.ad
Association Laurette Fugain
Information on leukaemias incl. AML, funding of hospital projects for patients and relatives, and blood/marrow donation awareness; contact via online form only.
For Acute myeloid leukemia, Acute lymphoblastic leukaemia
Visit site: laurettefugain.orgAssociazione Oncologica Sammarinese (AOS)
Founded in 1993, provides free home nursing by professional nurses and psychological support to cancer patients and their families in San Marino, all year round.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: iss.sm
Bahrain Cancer Society
Bahrain's national cancer society: cancer information, patient support, prevention and early-detection programmes, fundraising and volunteering.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: bahraincancer.com
Bangladesh Cancer Aid Trust (BANCAT)
Charitable trust (founded 2011 as BANCAF, trust since 2019) giving medical, financial, emotional and psychosocial support to underserved cancer patients; runs the Mosabbir Alok Nibash cancer care home.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: bancat.org.bdBelize Cancer Society
For over 25 years the Belize Cancer Society has supported people in Belize through cancer education, patient support and advocacy for cancer prevention.
For Chronic lymphocytic leukaemia, Bladder cancer, Myeloproliferative neoplasms and 30 more
Visit site: belizecancersociety.org
Bhutan Cancer Society
Public benefit organization (CSOA/PBO-337) launched in 2015 offering care and support for cancer patients and caregivers, awareness, survivor programmes and research.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: bcs.org.bt
Blodcancerförbundet
Swedish member organisation for people affected by blood cancer and serious blood disorders; general member of the Thalassaemia International Federation (TIF).
For Thalassaemia, Multiple myeloma, Acute myeloid leukemia and 9 more
Visit site: blodcancerforbundet.seBlodcancerforum
Swedish forum and patient network for people with blood cancers. Member of MPE, CMLAN, MPNAN, Lymphoma Coalition, MDS Alliance.
For Multiple myeloma, Acute myeloid leukemia, Acute lymphoblastic leukaemia and 8 more
Visit site: blodcancerforum.se
Blodkreftforeningen
Norwegian patient association for people with blood cancers and their relatives. Member of MPE, ALAN, CMLAN, MPNAN, Lymphoma Coalition, MDS Alliance.
For Multiple myeloma, Acute myeloid leukemia, Acute lymphoblastic leukaemia and 8 more
Visit site: blodkreftforeningen.no
Blood Cancer NZ
New Zealand charity giving blood cancer patients, whānau and carers trusted information, treatment guidance and support.
For Multiple myeloma, Acute myeloid leukemia, Acute lymphoblastic leukaemia and 8 more
Visit site: bloodcancer.org.nz
Cactus Cancer Society
Young adult cancer resource and community: support programs for people diagnosed with cancer as young adults.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 29 more
Visit site: cactuscancer.org
Canadian Cancer Society
Canada's largest national cancer charity, funding cancer research, offering cancer information and support services and advocating for public policy.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: cancer.caCancer Association of Namibia
Namibian cancer association providing cancer information, patient accommodation houses and a patient financial assistance programme.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: can.org.na
Cancer Association of South Africa (CANSA)
South African national cancer association offering screening, counselling, care and support services and a toll-free information line.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: cansa.org.zaCancer Association of Zimbabwe
Zimbabwean charitable non-profit that raises awareness of cancer and supports people after a diagnosis.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: cancerzimbabwe.org
Cancer Council Australia
Australia's peak independent cancer charity giving evidence-based information on prevention, research, treatment and support for people affected by cancer.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: cancer.org.au
Cancer Focus Northern Ireland
Northern Ireland cancer charity (ECL member) supporting cancer patients, families and carers, funding research and campaigning for better health policies.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: cancerfocusni.org
Cancer Hope Network
Nonprofit providing free one-on-one support to cancer patients and families by matching them with trained volunteers who have had a similar experience.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: cancerhopenetwork.org
Cancer Nation
Survivor-led US cancer advocacy organization (formerly the National Coalition for Cancer Survivorship) working on quality cancer care and survivorship resources.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: canceradvocacy.org
Cancer Research UK
UK cancer charity (ECL member) dedicated to cancer research, also providing public cancer information and a nurse helpline.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: cancerresearchuk.org
Cancer Society of New Zealand
New Zealand cancer charity supporting people affected by a cancer diagnosis with information and support services.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: cancer.org.nz
Cancer Support France
Charity supporting English-speaking people in France touched by cancer, offering free support to patients, carers and families (UICC member).
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: cancersupportfrance.org
Cancer Support Services
Cancer Support Services is a Barbados registered charity (founded 1996) giving confidential, volunteer-based care and support to people with cancer and their families.
For Chronic lymphocytic leukaemia, Bladder cancer, Myeloproliferative neoplasms and 30 more
Visit site: css.org.bbCancerfonden
Independent Swedish non-profit (ECL member) working so that more people survive and fewer get cancer; funds research and offers advice and support.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: cancerfonden.se
CanSupport
Indian cancer care NGO providing free home-based palliative care, counselling and a helpline for cancer patients and their families.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: cansupport.orgComisión Honoraria de Lucha contra el Cáncer
Uruguayan public-law honorary commission for cancer control that informs the population, runs prevention and early detection programmes.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: comisioncancer.org.uy
Corporación Nacional del Cáncer – CONAC
Chilean national non-profit cancer corporation offering cancer information, prevention exams and a patient portal in Santiago.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: conac.cl
Deutsche Krebshilfe
German non-profit cancer charity providing information on cancer types, early detection, prevention, therapy and self-help, and funding research and patient support.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: krebshilfe.de
Diagnóza leukemie, z.s.
Czech patient association for people with leukaemia, lymphoma, MDS and MPN and their relatives. Member of ALAN, CLLAN, CMLAN, MPNAN, Lymphoma Coalition, MDS Alliance.
For Acute myeloid leukemia, Acute lymphoblastic leukaemia, Chronic lymphocytic leukaemia and 7 more
Visit site: diagnoza-leukemie.com
Écoute Cancer Réconfort
Monaco association listening to and comforting people with cancer, the organisation given for the EUROPA DONNA Monaco breast cancer forum.
For Metastatic breast cancer, Triple-negative breast cancer, Acute lymphoblastic leukaemia and 30 more
Visit site: ecoutecancerreconfort.org
Estonian Leukaemia and Lymphoma Patients' Society (ELLL)
Estonian patient society for people with leukaemia and lymphoma and their relatives. Member of ALAN, CLLAN, CMLAN.
For Acute myeloid leukemia, Acute lymphoblastic leukaemia, Chronic lymphocytic leukaemia and 5 more
Visit site: leukeemia.eeFondation Cancer
Luxembourg foundation founded in 1994 (ECL member) working against cancer through information, prevention, patient support and research funding.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: cancer.lu
Fondation Lalla Salma – Prévention et traitement des cancers
Moroccan foundation (since 2005) working with partners to make cancer control a public health priority: prevention, access to treatment, patient support.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: contrelecancer.ma
Fondation québécoise du cancer
Quebec foundation supporting people with cancer and their families during treatment with information and daily support services.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: cancerquebec.ca
Friends of Cancer Patients
UAE non-profit supporting cancer patients and their families and running cancer awareness campaigns.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: focp.ae
Fundación Amigos del Niño con Leucemia y Cáncer (FANLYC)
Panamanian foundation supporting children with leukaemia and cancer and their families.
For Childhood cancers, Acute lymphoblastic leukaemia
Visit site: fanlyc.org
Fundación Asoleu
Paraguayan foundation supporting children and adolescents with cancer and leukaemia: covers oncology drugs and tests for free treatment, runs a shelter in San Lorenzo, sponsorship and volunteering.
For Childhood cancers, Acute lymphoblastic leukaemia
Visit site: asoleu.org.py
Fundación Colombiana de Leucemia y Linfoma
Colombian foundation in Bogotá supporting patients with leukaemia and lymphoma; a national reference centre for information and support.
For Acute myeloid leukemia, Acute lymphoblastic leukaemia, Chronic lymphocytic leukaemia and 5 more
Visit site: funleucemialinfoma.orgFundación Colombiana para Enfermedades Huérfanas (FUNCOLEHF)
Fundación Colombiana para Enfermedades Huérfanas (FUNCOLEHF): foundation in Colombia supporting people with rare diseases; member of RDI.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: enfermedadeshuerfanas.org.co
Fundación Jóvenes Contra el Cáncer
Quito-based foundation supporting cancer patients and their families with psychological support, guidance on treatment and medicines, patient-rights advocacy and the 1800 CANCER helpline.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: jovenescontraelcancer.org
Fundación MÁS QUE IDEAS
Spanish foundation working for patients with acute leukaemia. Member of ALAN.
For Acute lymphoblastic leukaemia
Visit site: fundacionmasqueideas.org
Fundación Oncológica La Voz de los Pacientes
Chilean oncology foundation that accompanies, guides and gives voice to cancer patients, with information on leukaemias, lymphomas and myeloma.
For Multiple myeloma, Acute myeloid leukemia, Acute lymphoblastic leukaemia and 6 more
Visit site: lavozdelospacienteschile.com
Genetic and Rare Diseases Information Center
NIH information center (GARD) providing reliable information on genetic and rare diseases to patients and families via website and contact center.
For Glioblastoma, Acute myeloid leukemia, Hodgkin lymphoma and 32 more
Visit site: rarediseases.info.nih.govHEMA-ONKO
North Macedonian association supporting patients with haematological malignancies and their caregivers. Member of MPE, ALAN, CLLAN, CMLAN, MPNAN, Lymphoma Coalition, MDS Alliance.
For Multiple myeloma, Acute myeloid leukemia, Acute lymphoblastic leukaemia and 25 more
Visit site: hema.org.mk
Henzo Kenya
Kenyan community-based organisation supporting people with leukaemia (CML, AML, ALL), MPN, lymphoma and GIST through awareness, mutual support and advocacy.
For Chronic myeloid leukaemia, Acute myeloid leukemia, Acute lymphoblastic leukaemia and 5 more
Visit site: henzokenya.or.ke
Hrvatska liga protiv raka
National Croatian cancer league (ECL member) working on cancer prevention, public information and support for people affected by cancer.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: hlpr.hrHrvatska udruga leukemija i limfomi (HULL)
Croatian patient association for people with leukaemia, lymphoma, myeloma, MDS and MPN. Member of MPE, ALAN, CLLAN, CMLAN, MPNAN, Lymphoma Coalition, MDS Alliance.
For Multiple myeloma, Acute myeloid leukemia, Acute lymphoblastic leukaemia and 8 more
Visit site: hull.hr
Imerman Angels
Nonprofit offering free one-on-one cancer support and personalized mentoring that connects cancer fighters, survivors and caregivers with someone who has been there.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: imermanangels.org
Indian Cancer Society
Indian national cancer charity creating awareness, providing support to cancer patients and their families, and funding research.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: indiancancersociety.org
Instituto Oncoguia
Brazilian non-profit offering reliable information on all cancer types, treatment and patient rights, with support for patients and families across Brazil.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: oncoguia.org.br
Instituto Vencer o Câncer
Brazilian non-profit institute providing information on cancer prevention, diagnosis, cancer types, treatment and quality of life for patients.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: vencerocancer.org.br
Instituto Vidas Raras
Rare Lives Institute: patient organisation in Brazil supporting people with rare diseases; member of RDI, IPA.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: vidasraras.org.br
Irish Cancer Society
Ireland's national cancer charity (ECL member) providing cancer information, a freephone support line, nursing and support services, and funding research.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: cancer.ie
Jamaica Cancer Society
The Jamaica Cancer Society is a non-profit on a mission to eliminate cancer as a major health problem in Jamaica, offering screening, education and support to people affected by cancer.
For Chronic lymphocytic leukaemia, Bladder cancer, Myeloproliferative neoplasms and 30 more
Visit site: jcs.liveKom op tegen Kanker
Flemish cancer charity (ECL member) working to prevent, fight and ease cancer, supporting patients and relatives and advocating for better cancer policy.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: komoptegenkanker.be
Krabbameinsfélag Íslands
Icelandic public-benefit cancer society (ECL member) supporting the fight against cancer, including counselling and support for patients and relatives.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: krabb.isKræftens Bekæmpelse
Danish national cancer charity (ECL member) working on research, prevention and patient support so that no one has to stand alone with cancer.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: cancer.dk
Krebshilfe Liechtenstein
Liechtenstein cancer aid association with a counselling office, supporting people affected by cancer and their relatives.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: krebshilfe.liKrebsliga Schweiz
Swiss cancer league (ECL member) informing, supporting and accompanying people with cancer and relatives; hub for counselling, prevention and research.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: krebsliga.ch
Kreftforeningen
Nation-wide Norwegian non-profit cancer organisation (UICC member) working for fewer cancers, more survivors and better quality of life for patients and relatives.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: kreftforeningen.no
KWF Kankerbestrijding
Dutch national cancer charity (ECL member) funding cancer research and supporting people living with cancer and their loved ones.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: kwf.nlLALCEC – Liga Argentina de Lucha Contra el Cáncer
Argentine national cancer league running prevention campaigns, workshops and accompaniment for cancer patients, plus a low-cost medical centre in Buenos Aires.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: lalcec.org.ar
Lega Italiana per la Lotta contro i Tumori (LILT)
Italian national cancer league (ECL member) focused on prevention, early diagnosis and support for cancer patients through its provincial associations.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: lilt.it
Leukaemia Care
Free helpline (Mon-Fri 9am-4.30pm) and WhatsApp, buddy support, counselling, advocacy, welfare/benefits advice and small grants, support groups for people with leukaemia, MDS or MPN.
For Acute myeloid leukemia, Acute lymphoblastic leukaemia, Chronic lymphocytic leukaemia and 3 more
Visit site: leukaemiacare.org.uk
Leukaemia Foundation
Australian charity for people with leukaemia, lymphoma, myeloma, MDS and related blood cancers: health and support services, research funding and advocacy.
For Multiple myeloma, Acute myeloid leukemia, Acute lymphoblastic leukaemia and 8 more
Visit site: leukaemia.org.auLeukaemiehilfe RHEIN-MAIN e.V.
Contact and information point for adults with blood cancers: disease information incl. AML, monthly in-person and virtual patient meetings, myeloma and MDS groups, relatives' meetings, podcasts; contact by email.
For Acute myeloid leukemia, Multiple myeloma, Acute lymphoblastic leukaemia and 6 more
Visit site: leukaemiehilfe-rhein-main.de
Leukemia & Lymphoma Foundation
Singapore foundation supporting patients with leukaemia, lymphoma and other blood cancers through information, education and support services.
For Multiple myeloma, Acute myeloid leukemia, Acute lymphoblastic leukaemia and 8 more
Visit site: llf.org.sg
Liga Colombiana contra el Cáncer
Colombian national non-profit league (since 1960) for cancer education, prevention and early diagnosis with volunteers, with 30+ regional leagues.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: ligacancercolombia.orgLiga Nacional contra el Cáncer
Guatemalan association founded in 1952, independent of political, religious and profit-making activity, devoted to the fight against cancer; with INCAN it treats cancer patients.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: ligacancerguate.org
Liga Peruana de Lucha contra el Cáncer
Peruvian cancer league, the first institution in Peru for cancer prevention and early detection, with screening and education activities.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: ligacancer.org.pe
Liga proti rakovině Praha
Czech non-profit organisation (ECL member) working for 30 years to reduce cancer mortality in the Czech Republic through prevention, information and patient support.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: lpr.cz
Liga proti rakovine SR
Slovak national cancer league (ECL member) helping cancer patients and their families and working on prevention and public education.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: lpr.sk
Ligue Sénégalaise Contre le Cancer (LISCA)
Senegalese league against cancer (40 years) providing cancer information, awareness campaigns and support for patients and health facilities.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: lisca.snLÖSEV – Lösemili Çocuklar Vakfı
Turkish foundation supporting children with leukaemia and other cancers and their families. Member of ALAN, CCI Europe, CCI.
For Acute myeloid leukemia, Acute lymphoblastic leukaemia, Childhood cancers
Visit site: losev.org.tr
LyLe – Patientforeningen for Lymfekræft & Leukæmi
Danish patient association for people with lymphoma, leukaemia, MDS and MPN and their relatives. Member of ALAN, CLLAN, CMLAN, MPNAN, Lymphoma Coalition, MDS Alliance.
For Acute myeloid leukemia, Acute lymphoblastic leukaemia, Chronic lymphocytic leukaemia and 7 more
Visit site: lyle.dk
Majlis Kanser Nasional (MAKNA)
National Cancer Council Malaysia (MAKNA), a non-profit providing patient support services, cancer screening and awareness for people with cancer in Malaysia.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: makna.org.my
Malaysian Rare Disorders Society (MRDS)
Malaysian Rare Disorders Society (MRDS): patient organisation in Malaysia supporting people with rare diseases; member of RDI.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: mrds.org.my
Most Miloserdiya (Mercy Bridge) – Inter-regional Public Organization for Patients with Hematological Diseases
Russian inter-regional organisation protecting the rights of patients with haematological diseases and helping them. Member of MPE, CLLAN, Lymphoma Coalition, MDS Alliance.
For Multiple myeloma, Acute myeloid leukemia, Acute lymphoblastic leukaemia and 8 more
Visit site: mm-blood.ru
MTÜ Eesti Vähiliit
Estonian cancer society (ECL member) offering reliable information, support and counselling on cancer prevention, early detection and living with cancer.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: cancer.eeNigerian Cancer Society
National community-based cancer society of Nigeria: prevention, early detection, research, education and patient support, with state branches.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: nigeriancancersociety.org
Onkohematologinių ligonių bendrija "Kraujas"
Lithuanian community of patients with blood cancers (leukaemia, lymphoma, myeloma) and their relatives. Member of MPE, ALAN, CMLAN, Lymphoma Coalition.
For Multiple myeloma, Acute myeloid leukemia, Acute lymphoblastic leukaemia and 8 more
Visit site: kraujas.lt
Országos Onkológiai Intézet – térítésmentes betegtámogatás
The National Institute of Oncology's free support for cancer patients and families: psycho-oncology, social work, dietitian, relatives' club and patient education.
For Glioblastoma, Lung cancer, Childhood cancers and 30 more
Visit site: onkol.hu
Philippine Cancer Society
Philippine cancer society offering cancer information, screening, patient navigation, a mobile clinic and patient support.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: philcancer.org.ph
Polska Liga Walki z Rakiem
Polish cancer league (ECL member) building cooperation between health care, education, science and social policy to fight cancer and support patients.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: ligawalkizrakiem.pl
PORSALEU – Fundación por la Salud del Paciente con Leucemia o Linfoma
Uruguayan foundation (since 2001) giving free support to patients from the interior with leukaemia, lymphoma or serious blood diseases, incl. a residence in Montevideo.
For Acute myeloid leukemia, Acute lymphoblastic leukaemia, Chronic lymphocytic leukaemia and 5 more
Visit site: porsaleu.org
Rare Diseases Ghana Initiative
Rare Diseases Ghana Initiative: patient organisation in Ghana supporting people with rare diseases; member of RDI.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: rarediseaseghana.org
Rare Diseases Society Nepal
Rare Diseases Society Nepal: patient organisation in Nepal supporting people with rare diseases; member of RDI.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: rarediseasenepal.org
Rare Disorders Kenya
Rare Disorders Kenya: patient organisation in Kenya supporting people with rare diseases; member of RDI.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: rarediseasekenya.org
Rare Disorders Zimbabwe (RDZ)
Rare Disorders Zimbabwe (RDZ): patient organisation in Zimbabwe supporting people with rare diseases; member of RDI.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: raredisorderszim.org
Saint Lucia Cancer Society
The Saint Lucia Cancer Society, based in Castries, fights all forms of cancer through education, advocacy and support for patients, families and survivors.
For Chronic lymphocytic leukaemia, Bladder cancer, Myeloproliferative neoplasms and 30 more
Visit site: stluciacancersociety.org
Sawera Health Foundation
Swiss foundation behind a digital support app helping children with acute leukaemia and their families through treatment. Member of ALAN, CCI Europe, CCI.
For Acute myeloid leukemia, Acute lymphoblastic leukaemia, Childhood cancers
Visit site: sawera.ch
Shoqata e Sëmundjeve të Rralla
The Rare Diseases Association Albania is an NGO organising patients and active people in the rare disease field to improve their quality of life.
For Glioblastoma, Acute myeloid leukemia, Childhood cancers and 34 more
Visit site: rda-al.comSingapore Cancer Society
Singapore cancer charity providing screening, patient support, rehabilitation, financial assistance, education and community care services.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: singaporecancersociety.org.sg
Slovensko združenje bolnikov z limfomom in levkemijo, L&L
Slovenian association of patients with lymphoma, leukaemia and other blood cancers. Member of MPE, ALAN, CLLAN, CMLAN, MPNAN, Lymphoma Coalition, MDS Alliance.
For Multiple myeloma, Acute myeloid leukemia, Acute lymphoblastic leukaemia and 8 more
Visit site: limfom-levkemija.orgSociedad Anticancerosa de Venezuela
Venezuelan anti-cancer society offering cancer screening and prevention clinics, a mobile clinic unit and medical care for communities.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: sociedadanticancerosa.org
Sri Lanka Cancer Society
Volunteer cancer charity founded in 1948 that runs the Shantha Sevana hospice, cancer homes for patients in treatment, relief and rehabilitation, and public education.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: slcs.lk
Stichting Hematon
Dutch blood and lymph cancer patient organisation: question team by phone Mon-Fri 9:00-17:00, peer contact (lotgenotencontact), information on myeloma (Kahler) and leukaemias, webinars, magazine and Hematondag.
For Acute myeloid leukemia, Multiple myeloma, Acute lymphoblastic leukaemia and 8 more
Visit site: hematon.nl
Suomen Syöpäpotilaat ry
Finnish cancer patients' association (UICC member) working so that everyone diagnosed with cancer in Finland gets the best possible care, information and support.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: syopapotilaat.fi
Suomen Syöpäyhdistys
Finnish national cancer organisation (ECL member) aiming at good quality of life for everyone, free from cancer; offers information, counselling and support.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: cancersociety.fi
Thai Rare Disease Foundation
Thai Rare Disease Foundation: foundation in Thailand supporting people with rare diseases; member of RDI.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: thairdf.orgThe Cancer Society of The Bahamas
Bahamian cancer charity running a Cancer Caring Centre, treatment assistance, adult support services and a kids camp for people affected by cancer.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: cancersocietybahamas.org
The Myeloma, Lymphoma and Leukaemia Foundation of Barbados
Barbados foundation providing comprehensive support to people with myeloma, lymphoma and leukaemia.
For Multiple myeloma, Acute myeloid leukemia, Acute lymphoblastic leukaemia and 6 more
Visit site: bloodcancers.orgThe White Cell Foundation
Nigerian non-profit foundation raising awareness of blood cancers and supporting blood cancer patients and caregivers.
For Multiple myeloma, Acute myeloid leukemia, Acute lymphoblastic leukaemia and 8 more
Visit site: thewhitecellfoundation.com.ng
Triage Cancer
National nonprofit providing free education on legal and practical issues (insurance, employment, finances) for people with cancer and caregivers.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: triagecancer.org
Trinidad & Tobago Cancer Society
The Trinidad & Tobago Cancer Society brings hope to cancer survivors, provides cancer screening at reduced cost and promotes cancer awareness across Trinidad and Tobago.
For Chronic lymphocytic leukaemia, Bladder cancer, Myeloproliferative neoplasms and 30 more
Visit site: cancertt.comTürk Kanser Araştırma ve Savaş Kurumu Derneği
Turkish association for cancer research and control (ECL and UICC member) working on cancer awareness, prevention and the fight against cancer.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: turkkanser.orgUAE Rare Disease Society
UAE Rare Disease Society: patient organisation in United Arab Emirates supporting people with rare diseases.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: uaerds.ae
V Care Foundation
Indian foundation empowering cancer patients and families through counselling, awareness, early detection, treatment support and financial assistance.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: vcarecancer.orgZdruženie pacientov s hematologickými malignitami (HematologickyPacient)
Slovak association of patients with haematological malignancies. Member of MPE, MPNAN, Lymphoma Coalition, MDS Alliance.
For Multiple myeloma, Acute myeloid leukemia, Acute lymphoblastic leukaemia and 8 more
Visit site: hematologickypacient.skΑντικαρκινικός Σύνδεσμος Κύπρου
Cypriot cancer charity (ECL member) whose aim is that no one with a cancer experience is left without help; offers support and care services to patients and families.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: anticancersociety.org.cy
Παγκύπριος Σύνδεσμος Καρκινοπαθών και Φίλων (ΠΑΣΥΚΑΦ)
Voluntary, non-profit charitable association of cancer patients and friends in Cyprus (ECL and ECPC member), providing support services to people with cancer.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: pasykaf.org
Σύλλογος Καρκινοπαθών Εθελοντών Φίλων Ιατρών Κ.Ε.Φ.Ι. Αθηνών
Athens association of cancer patients, volunteers, friends and doctors offering support to people with cancer and their families.
For Colorectal cancer, Pancreatic cancer, Liver and biliary tract cancer and 5 more
Visit site: anticancerath.gr
Благодійний фонд «Інспірейшн Фемелі»
Ukrainian charity foundation founded in 2020 by women with a cancer history; supports adult cancer patients, including patient-rights advocacy (UICC, ECPC member).
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 28 more
Visit site: inspirationfamily.org
האגודה למלחמה בסרטן
Israeli cancer association founded in 1952 to reduce cancer incidence and mortality and improve patients' quality of life; information and support.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: cancer.org.ilالجمعية السعودية الخيرية لمكافحة السرطان
Saudi charitable cancer society offering social and psychological support services, awareness, prevention and early detection centres.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: saudicancer.org
الجمعية القطرية للسرطان
Qatar Cancer Society: cancer awareness and prevention and support for patients and survivors.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: qcs.qa
بنیاد بیماری های نادر ایران
Rare Disease Foundation of Iran (RADOIR): foundation in Iran supporting people with rare diseases; member of RDI, FIN.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: raredisease.ir
ชมรมผู้ป่วยโรค CLL แห่งประเทศไทย
Thai patient advocacy group for leukaemia (CLL, CML, AML, ALL) running a Thai-language information site with patient stories and survey results.
For Acute myeloid leukemia, Acute lymphoblastic leukaemia, Chronic lymphocytic leukaemia and 1 more
Visit site: thaileukemia.com
국가암지식정보센터
Korean government cancer information centre (National Cancer Center) giving the public and patients information on cancer types, treatment and care.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: cancer.go.krキャンサーネットジャパン
Certified Japanese non-profit that gives cancer patients and families evidence-based information (booklets, seminars, peer support) and advocates for patients across many cancer types.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: cancernet.jp
中国癌症基金会
Chinese national public foundation (est. 1984, formerly China Cancer Research Foundation) dedicated to cancer prevention and control.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: cfchina.org.cn公益財団法人 日本対がん協会
Japan's national public-interest cancer foundation (founded 1958): promotes cancer prevention and screening, supports patients and families (free cancer hotline) and spreads reliable cancer knowledge.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: jcancer.jp
病痛挑战基金会
Illness Challenge Foundation: foundation in China supporting people with rare diseases; member of RDI.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: chinaicf.org財團法人罕見疾病基金會
Taiwan Foundation for Rare Disorders: foundation in Taiwan supporting people with Fabry disease, Pompe disease; member of IPA, FIN.
For Fabry disease, Pompe disease, Glioblastoma and 34 more
Visit site: tfrd.org.tw(사)한국희귀·난치성질환연합회
National federation of rare and intractable disease patient groups in Korea; runs policy advocacy, medical and welfare support and a shelter for rare disease patients and families.
For Glioblastoma, Acute myeloid leukemia, Childhood cancers and 34 more
Visit site: kord.or.kr
AELCLES (Grupo 0) - Spanish Network against Leukemia and Blood Diseases
Network of 16 regional haematology patient associations: patient programmes, webinars, caregiver guide, information on leukaemia, myeloma and transplant; links to local member groups.
For Acute myeloid leukemia, Multiple myeloma, Acute lymphoblastic leukaemia and 6 more
Visit site: aelcles.org
Alianza Argentina de Pacientes (ALAPA)
Alianza Argentina de Pacientes (ALAPA): national rare disease alliance in Argentina supporting people with rare diseases; member of RDI.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: alianzapacientes.org
Alianza Dominicana de Asociaciones de Pacientes (ADAPA)
Alianza Dominicana de Asociaciones de Pacientes (ADAPA): national rare disease alliance in Dominican Republic supporting people with rare diseases; member of RDI.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: adapa.org.do
Alianza Nacional por la Salud (ANS)
Quito-based alliance defending the right to health in Ecuador for patients with catastrophic, rare and orphan diseases; patient groups and foundations can join as members.
For Glioblastoma, Acute myeloid leukemia, Childhood cancers and 34 more
Visit site: ans.ecAssociação Brasileira de Enfermidades Raras (FEBER)
Associação Brasileira de Enfermidades Raras (FEBER): national rare disease alliance in Brazil supporting people with rare diseases; member of RDI.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: feberraras.wixsite.com
Canadian Organization for Rare Disorders
National umbrella network for organizations and people with rare disorders, providing a common voice to advocate for health policy and services.
For Glioblastoma, Acute myeloid leukemia, Childhood cancers and 34 more
Visit site: raredisorders.caDeutsche Leukaemie- & Lymphom-Hilfe e.V. (DLH)
Federal umbrella of self-help groups for adults with leukaemia, lymphoma and myeloma: phone and email advice, directory of local and online groups, AML and myeloma info sheets, brochures, DLH-INFO newspaper, annual patient congress.
For Acute myeloid leukemia, Multiple myeloma, Acute lymphoblastic leukaemia and 6 more
Visit site: leukaemie-hilfe.de
Federació Catalana d'Entitats contra el Càncer (FECEC)
Federation of Catalan cancer organisations (ECL member) bringing together patient and volunteer groups working against cancer in Catalonia.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: juntscontraelcancer.cat
Federación Argentina de Enfermedades Poco Frecuentes (FADEPOF)
Federación Argentina de Enfermedades Poco Frecuentes (FADEPOF): national rare disease alliance in Argentina supporting people with rare diseases; member of RDI.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: fadepof.org.ar
Federación Colombiana de Enfermedades Raras (FECOER)
Federación Colombiana de Enfermedades Raras (FECOER): national rare disease alliance in Colombia supporting people with rare diseases; member of RDI.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: fecoer.orgFederación Mexicana de Enfermedades Raras (FEMEXER)
Federación Mexicana de Enfermedades Raras (FEMEXER): national rare disease alliance in Mexico supporting people with rare diseases; member of RDI, FIN.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: femexer.org
Federación Peruana de Enfermedades Raras (FEPER)
Federación Peruana de Enfermedades Raras (FEPER): national rare disease alliance in Peru supporting people with rare diseases; member of RDI.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: feperperu.org
Federația Asociațiilor Bolnavilor de Cancer (FABC)
Romanian federation of cancer patients' associations (ECL and ECPC member) representing people with cancer and their organisations nationally.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: fabc.ro
Indian Organization for Rare Diseases
Indian Organization for Rare Diseases: national rare disease alliance in India supporting people with rare diseases; member of RDI.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: rarediseases.in
Nadir Hastalıklar Federasyonu
Turkish federation founded by rare-disease patients and families to raise awareness and address their problems; members are rare-disease patient associations.
For Glioblastoma, Acute myeloid leukemia, Childhood cancers and 34 more
Visit site: nadir.org.trNamibia Alliance for Rare Diseases
Namibia Alliance for Rare Diseases: national rare disease alliance in Namibia supporting people with rare diseases; member of RDI.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: rarediseasesnamibia.org
National Organization for Rare Disorders
US national rare disease alliance of patient organizations: education, patient assistance programs, rare disease database and policy advocacy.
For Glioblastoma, Acute myeloid leukemia, Childhood cancers and 34 more
Visit site: rarediseases.orgOrganization for Rare Diseases India (ORDI)
Organization for Rare Diseases India (ORDI): national rare disease alliance in India supporting people with rare diseases; member of RDI, IPA.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: ordindia.in
Philippine Society for Orphan Disorders (PSOD)
Philippine Society for Orphan Disorders (PSOD): national rare disease alliance in Philippines supporting people with rare diseases; member of RDI, IPA, FIN.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: psod.org.ph
Rákbetegek Országos Szövetsége (RÁKSZÖV)
National federation of cancer patients' groups, with practical guides on benefits, tax and patient rights.
For Glioblastoma, Lung cancer, Childhood cancers and 30 more
Visit site: rakszovetseg.huRare Diseases South Africa
Rare Diseases South Africa: national rare disease alliance in South Africa supporting people with rare diseases; member of RDI, IPA, FIN.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: rarediseases.co.za
Rare Disorders NZ
Rare Disorders NZ: national rare disease alliance in New Zealand supporting people with rare diseases; member of RDI.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: raredisorders.org.nz
Rare Voices Australia
Rare Voices Australia: national rare disease alliance in Australia supporting people with rare diseases; member of RDI.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: rarevoices.org.auUganda Cancer Society
National umbrella of Ugandan cancer civil society organisations; coordinates the cancer response, patient education and peer support, with organisational members.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: ugandacancersociety.org
Združenje za redke bolezni Slovenije (ZRBS)
ZRBS is a voluntary association of Slovenian patient societies for specific groups of rare diseases; it co-organises the national Rare Disease Day conference.
For Glioblastoma, Acute myeloid leukemia, Childhood cancers and 34 more
Visit site: zrbs.eu
Zveza slovenskih društev za boj proti raku
Slovenian union of 11 regional cancer societies (ECL member), the oldest and leading NGO provider of cancer prevention in Slovenia.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: protiraku.si
Ελληνική Ομοσπονδία Καρκίνου (ΕΛΛΟΚ)
Official second-level body representing Greek cancer patient organisations (ECL and ECPC member), advocating for people with cancer.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, Bladder cancer and 30 more
Visit site: ellok.org一般社団法人 全国がん患者団体連合会（全がん連）
National federation of cancer patient groups in Japan; works to improve cancer care and a society where people can live with cancer in security; its member groups are listed on the site.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: zenganren.jp蔻德罕见病中心
Chinese Organization for Rare Disorders (CORD): national rare disease alliance in China supporting people with rare diseases; member of RDI.
For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more
Visit site: cord.org.cn
Acute Leukemia Advocates Network (ALAN)
Global network of 69 acute leukaemia patient organisations (hosted by the Swiss Leukemia Patient Advocates Foundation); member list helps patients find a national group.
For Acute myeloid leukemia, Acute lymphoblastic leukaemia
Visit site: acuteleuk.org
Childhood Cancer International (CCI)
Global network of parent and survivor organisations: member directory to find a national group, survivor network and knowledge portal.
For Childhood cancers, Acute lymphoblastic leukaemia, Neuroblastoma
Visit site: childhoodcancerinternational.org
Childhood Cancer International Europe (CCI Europe)
Network of parent and survivor organisations in 38 countries, with a map to find your national group.
For Childhood cancers, Acute lymphoblastic leukaemia, Neuroblastoma
Visit site: ccieurope.euEuropean Cancer Patient Coalition (ECPC)
Umbrella of European cancer patient groups, with a patient toolbox and a legal network for cancer patients.
For Glioblastoma, Lung cancer, Childhood cancers and 30 more
Visit site: ecpc.org
EURORDIS – Rare Diseases Europe
Alliance of over 1,000 rare disease patient organisations, with a list of rare disease helplines by country.
For Glioblastoma, Acute myeloid leukemia, Childhood cancers and 35 more
Visit site: eurordis.org
Workgroup of European Cancer Patient Advocacy Networks
Network of pan-European cancer patient umbrella groups (including the blood cancer networks): joint advocacy, WECAN Academy training for patient advocates, patient experience data courses.
For Multiple myeloma, Acute myeloid leukemia, Diffuse large B-cell lymphoma and 8 more
Visit site: wecanadvocate.euEuropean Patients' Forum (EPF)
Umbrella of European patient organisations and national patient coalitions.
For any disease
Visit site: eu-patient.eu
International Alliance of Patients' Organizations
Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.
For any disease
Visit site: iapo.org.uk
Do you know an organisation we missed? Write to support@frontlightresearch.com and we will add it.