Support organisations
Patient groups and helplines near you, for people with a disease and for their families.
21 organisations for Acute myeloid leukemia in United States
National Cancer Institute – Cancer Information Service (CIS)
NCI's contact center: information specialists answer cancer questions from patients, families and the public by phone, chat and email.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: cancer.gov
American Cancer Society
Nationwide US nonprofit helping people who face cancer: research, patient services, early detection, treatment information and education, with a cancer helpline on its site.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: cancer.org
Cactus Cancer Society
Young adult cancer resource and community: support programs for people diagnosed with cancer as young adults.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 29 more
Visit site: cactuscancer.org
Cancer Hope Network
Nonprofit providing free one-on-one support to cancer patients and families by matching them with trained volunteers who have had a similar experience.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: cancerhopenetwork.org
Cancer Nation
Survivor-led US cancer advocacy organization (formerly the National Coalition for Cancer Survivorship) working on quality cancer care and survivorship resources.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: canceradvocacy.org
Genetic and Rare Diseases Information Center
NIH information center (GARD) providing reliable information on genetic and rare diseases to patients and families via website and contact center.
For Glioblastoma, Acute myeloid leukemia, Hodgkin lymphoma and 32 more
Visit site: nih.gov
HealthTree Foundation (HealthTree for AML / for Multiple Myeloma)
Free nonprofit platform for AML and myeloma: disease education, specialist and clinical-trial finders, patient navigators, trained patient/caregiver coaches, webinars and meetups (free account for some tools).
For Acute myeloid leukemia, Multiple myeloma
Visit site: healthtree.org
Imerman Angels
Nonprofit offering free one-on-one cancer support and personalized mentoring that connects cancer fighters, survivors and caregivers with someone who has been there.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: imermanangels.org
Leukemia Research Foundation
Need-based financial assistance, peer support, AML guides for newly diagnosed patients, live Q&A sessions and webinars with leukaemia experts.
For Acute myeloid leukemia
Visit site: leukemiarf.org
NMDP (Be The Match) Patient Support Center
For patients needing a stem cell transplant: one-to-one patient navigators, financial assistance, group sessions and peer connection.
For Acute myeloid leukemia
Visit site: nmdp.org
Triage Cancer
National nonprofit providing free education on legal and practical issues (insurance, employment, finances) for people with cancer and caregivers.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: triagecancer.org
988 Suicide & Crisis Lifeline
US national 24/7 free and confidential lifeline for anyone in suicidal crisis or emotional distress, reachable by calling or texting 988 or by chat.
For any disease
Visit site: 988lifeline.org
MedlinePlus
Free, easy-to-read health information service of the US National Library of Medicine (NIH) on diseases, conditions, drugs and wellness.
For any disease
Visit site: medlineplus.gov
National Organization for Rare Disorders
US national rare disease alliance of patient organizations: education, patient assistance programs, rare disease database and policy advocacy.
For Glioblastoma, Acute myeloid leukemia, Childhood cancers and 34 more
Visit site: rarediseases.org
Acute Leukemia Advocates Network (ALAN)
Global network of 69 acute leukaemia patient organisations (hosted by the Swiss Leukemia Patient Advocates Foundation); member list helps patients find a national group.
For Acute myeloid leukemia, Acute lymphoblastic leukaemia
Visit site: acuteleuk.orgEuropean Cancer Patient Coalition (ECPC)
Umbrella of European cancer patient groups, with a patient toolbox and a legal network for cancer patients.
For Glioblastoma, Lung cancer, Childhood cancers and 30 more
Visit site: ecpc.org
European Reference Networks (European Commission)
The European Commission's 24 expert networks for rare and complex diseases; your doctor can contact them.
For Glioblastoma, Childhood cancers, Acute myeloid leukemia and 1 more
Visit site: europa.eu
EURORDIS – Rare Diseases Europe
Alliance of over 1,000 rare disease patient organisations, with a list of rare disease helplines by country.
For Glioblastoma, Acute myeloid leukemia, Childhood cancers and 35 more
Visit site: eurordis.org
Workgroup of European Cancer Patient Advocacy Networks
Network of pan-European cancer patient umbrella groups (including the blood cancer networks): joint advocacy, WECAN Academy training for patient advocates, patient experience data courses.
For Multiple myeloma, Acute myeloid leukemia, Diffuse large B-cell lymphoma and 8 more
Visit site: wecanadvocate.euEuropean Patients' Forum (EPF)
Umbrella of European patient organisations and national patient coalitions.
For any disease
Visit site: eu-patient.eu
International Alliance of Patients' Organizations
Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.
For any disease
Visit site: iapo.org.uk
Do you know an organisation we missed? Write to support@frontlightresearch.com and we will add it.