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Support organisations

Patient groups and helplines near you, for people with a disease and for their families.

70 organisations for Ankylosing spondylitis in all countries

  • Patient group

    Deutsche Vereinigung Morbus Bechterew (DVMB) Landesverband Sachsen e.V.

    Self-help association in Saxony for people with ankylosing spondylitis and their families, offering counselling, local groups, events and networks.

    For Ankylosing spondylitis

    Visit site: morbus-bechterew-sachsen.de
  • Patient group

    DVMB Landesverband Berlin-Brandenburg e.V.

    Berlin-Brandenburg state association of the DVMB, a self-help organisation of patients with ankylosing spondylitis, with local groups in the region.

    For Ankylosing spondylitis

    Visit site: dvmb-bb.de
  • Patient group

    DVMB Landesverband Nordrhein-Westfalen e.V.

    North Rhine-Westphalia state association of the DVMB, a self-help organisation for people with ankylosing spondylitis, with local groups and news.

    For Ankylosing spondylitis

    Visit site: dvmb-nrw.de
  • Patient groupAll of Türkiye

    Ankilozan Spondilit Hasta Derneği (ASHAD)

    Patient association for people with ankylosing spondylitis / axial spondyloarthritis in Türkiye; listed as a member of ASIF.

    For Ankylosing spondylitis

    Visit site: ashad.org.tr
  • Patient groupAll of Australia

    Ankylosing Spondylitis Victoria

    Ankylosing Spondylitis Victoria Inc., an organisation of people who wish to improve knowledge and support around ankylosing spondylitis.

    For Ankylosing spondylitis

    Visit site: asvictoria.org
  • Patient groupAll of India

    AntarDhwani

    Antardhwani, a patient-led support group for ankylosing spondylitis and rheumatoid arthritis in India.

    For Ankylosing spondylitis, Rheumatoid arthritis

    Visit site: antardhwani.org
  • Patient groupAll of Italy

    APMARR – Associazione Nazionale Persone con Malattie Reumatologiche e Rare

    Patient association for people with rheumatic diseases including rheumatoid arthritis, ankylosing spondylitis / axial spondyloarthritis, scleroderma (systemic sclerosis) in Italy; listed as a member of ASIF, FESCA, AGORA.

    For Rheumatoid arthritis, Ankylosing spondylitis, Systemic sclerosis (scleroderma)

    Visit site: apmarr.it
  • Patient groupAll of Australia

    Arthritis Australia

    Arthritis Australia, the national arthritis charity providing information and support for people with arthritis, incl. RA, PsA and AS.

    For Rheumatoid arthritis, Psoriatic arthritis, Ankylosing spondylitis

    Visit site: arthritisaustralia.org.au
  • Patient groupAll of Pakistan

    Arthritis Care Foundation

    Arthritis Care Foundation, a trust working for less privileged patients with arthritis in Pakistan.

    For Rheumatoid arthritis, Ankylosing spondylitis, Lupus (SLE)

    Visit site: arthritiscarefoundation.org
  • Patient groupAll of United States

    Arthritis Foundation

    The largest US nonprofit dedicated to the prevention, control and cure of arthritis, with support and resources for RA, PsA, axial SpA and lupus.

    For Rheumatoid arthritis, Psoriatic arthritis, Ankylosing spondylitis and 1 more

    Visit site: arthritis.org
  • Patient groupAll of Malaysia

    Arthritis Foundation Malaysia

    Arthritis Foundation Malaysia (AFM): information, resources and access to care for the arthritis community.

    For Rheumatoid arthritis, Psoriatic arthritis, Ankylosing spondylitis

    Visit site: afm.org.my
  • Patient groupAll of Ireland

    Arthritis Ireland

    Helpline, self-management courses, activity classes and information for people with arthritis.

    For Rheumatoid arthritis, Ankylosing spondylitis, Psoriatic arthritis and 1 more

    Visit site: arthritisireland.ie
  • Patient groupAll of Canada

    Arthritis Society Canada

    National charity supporting people living with arthritis, incl. rheumatoid arthritis, psoriatic arthritis and axial spondyloarthritis, with information and programs.

    For Rheumatoid arthritis, Psoriatic arthritis, Ankylosing spondylitis

    Visit site: arthritis.ca
  • Patient groupAll of Argentina

    Asociación Civil Argentina de Personas con Enfermedades Reumáticas

    ACAPER, Argentine civil association of people with rheumatic diseases (incl. spondyloarthritis and Sjögren’s).

    For Ankylosing spondylitis, Rheumatoid arthritis, Sjögren's disease

    Visit site: acaper.com.ar
  • Patient groupAll of Romania

    Asociaţia Pacienţilor cu Afecţiuni Autoimune (APAA)

    Romanian association supporting people and families affected by autoimmune diseases, including psoriasis; associated member of IFPA.

    For Psoriasis, Lupus (SLE), Sjögren's disease and 3 more

    Visit site: apaa.ro
  • Patient groupAll of Portugal

    Associação Nacional da Espondilite Anquilosante (ANEA)

    Patient association for people with ankylosing spondylitis / axial spondyloarthritis in Portugal; listed as a member of ASIF.

    For Ankylosing spondylitis

    Visit site: anea.org.pt
  • Patient groupAll of France

    Association France Spondyloarthrites

    Patient association for people with ankylosing spondylitis / axial spondyloarthritis in France; listed as a member of ASIF.

    For Ankylosing spondylitis

    Visit site: spondy.fr
  • Patient groupAll of Italy

    Associazione Nazionale Malati Reumatici ANMAR ODV

    Information, training, patient guides and research support for people with rheumatic diseases.

    For Rheumatoid arthritis, Ankylosing spondylitis, Sjögren's disease

    Visit site: anmar-italia.it
  • Patient groupAll of Singapore

    Autoimmune Diseases Singapore

    Informal support group and information source for people in Singapore diagnosed with rheumatological and neurological autoimmune diseases.

    For Lupus (SLE), Ankylosing spondylitis, ANCA-associated vasculitis and 1 more

    Visit site: autoimmunediseases.sg
  • Patient groupAll of South Africa

    Axial Spondyloarthritis Association of South Africa

    Axial Spondyloarthritis Association of South Africa (AXSPASA) creates awareness, education and support for axSpA.

    For Ankylosing spondylitis

    Visit site: axspasa.org.za
  • Patient groupAll of Hong Kong

    B27協進會

    Hong Kong self-help group founded in 1995 by ankylosing spondylitis patients to support fellow patients and their families and raise public awareness.

    For Ankylosing spondylitis

    Visit site: b27association.org
  • Patient groupAll of Lithuania

    Bechterevo liga sergančiųjų draugija

    Patient association for people with ankylosing spondylitis / axial spondyloarthritis in Lithuania; listed as a member of ASIF.

    For Ankylosing spondylitis

    Visit site: bechterevoliga.lt
  • Patient groupAll of Norway

    Bekhterev Norge

    Patient association for people with ankylosing spondylitis / axial spondyloarthritis in Norway; listed as a member of ASIF.

    For Ankylosing spondylitis

    Visit site: bekhterev.no
  • Patient groupAll of Belgium

    CLAIR – Contre Les Affections Inflammatoires Rhumatismales

    Patient association for people with ankylosing spondylitis / axial spondyloarthritis in Belgium; listed as a member of ASIF.

    For Ankylosing spondylitis

    Visit site: clair.be
  • Patient groupAll of United States

    CreakyJoints

    Patient community for people with arthritis and rheumatic disease (Global Healthy Living Foundation): support, education, advocacy and research.

    For Rheumatoid arthritis, Psoriatic arthritis, Ankylosing spondylitis and 1 more

    Visit site: creakyjoints.org
  • Patient groupAll of Germany

    Deutsche Vereinigung Morbus Bechterew e.V. Bundesverband

    Patient association for people with ankylosing spondylitis / axial spondyloarthritis in Germany; listed as a member of ASIF.

    For Ankylosing spondylitis

    Visit site: bechterew.de
  • Patient groupAll of Germany

    Deutsche Vereinigung Morbus Bechterew Landesverband Baden-Württemberg e.V.

    Stuttgart-based association for people with ankylosing spondylitis in Baden-Württemberg, offering information, local groups, free counselling and group therapy.

    For Ankylosing spondylitis

    Visit site: dvmb-bw.de
  • Patient groupAll of Germany

    Deutsche Vereinigung Morbus Bechterew Landesverband Brandenburg (DVMB-BB)

    Self-help organisation in Berlin-Brandenburg for people with ankylosing spondylitis or related spondyloarthritis and their relatives, with local groups and information.

    For Ankylosing spondylitis

    Visit site: dvmb-bb.de
  • Patient groupAll of Germany

    Deutsche Vereinigung Morbus Bechterew Landesverband Hessen e.V.

    Hessen state association for people with Morbus Bechterew (ankylosing spondylitis), offering information, local groups, free anonymous advice and legal advice for members.

    For Ankylosing spondylitis

    Visit site: dvmb-hessen.de
  • Patient groupAll of Germany

    Deutsche Vereinigung Morbus Bechterew Landesverband Niedersachsen e.V.

    Lower Saxony self-help association for people with ankylosing spondylitis, offering information, local groups, free counselling and member legal advice.

    For Ankylosing spondylitis

    Visit site: dvmb-nds.de
  • Patient groupAll of Germany

    Deutsche Vereinigung Morbus Bechterew Landesverband Nordrhein-Westfalen e.V.

    North Rhine-Westphalia branch of a self-help group for people with ankylosing spondylitis, offering information, local groups, free counselling and seminars.

    For Ankylosing spondylitis

    Visit site: dvmb-nrw.de
  • Patient groupAll of Germany

    DVMB Landesverband Bayern e.V.

    Bavarian state association of the DVMB for people with Morbus Bechterew, with local groups, information and events.

    For Ankylosing spondylitis

    Visit site: dvmb-by.de
  • Patient groupAll of Estonia

    Eesti Reumaliit

    Counselling, education and advocacy for people with bone and joint diseases and their families.

    For Rheumatoid arthritis, Ankylosing spondylitis, Psoriatic arthritis and 1 more

    Visit site: reumaliit.ee
  • Patient groupAll of Brazil

    EncontrAR

    EncontrAR (GRUPAR), Brazilian patient organisation and information portal for people with rheumatic diseases.

    For Rheumatoid arthritis, Lupus (SLE), Psoriatic arthritis and 2 more

    Visit site: encontrar.org.br
  • Patient groupAll of Algeria

    Fondation Enaya Arthrite - Spondyloarthrite en Algérie

    FEAS – Fondation Enaya Arthrite-Spondyloarthrites en Algérie, foundation for people with spondyloarthritis.

    For Ankylosing spondylitis

    Visit site: feas-algerie.com
  • Patient groupAll of Denmark

    Foreningen for Rygsøjlegigt og Morbus Bechterew

    Patient association for people with ankylosing spondylitis / axial spondyloarthritis in Denmark; listed as a member of ASIF.

    For Ankylosing spondylitis

    Visit site: rygsoejlegigt.dk
  • Patient groupAll of Panama

    Fundación Artritis de Panamá

    FUNARP, non-profit foundation that educates and accompanies patients with rheumatoid arthritis in Panama.

    For Rheumatoid arthritis, Ankylosing spondylitis

    Visit site: funarp.org
  • Patient groupAll of Chile

    Fundación Me Muevo

    Fundación Me Muevo, a Chilean foundation for patients with arthritis.

    For Rheumatoid arthritis, Ankylosing spondylitis, Psoriatic arthritis

    Visit site: memuevo.cl
  • Patient groupAll of Iceland

    Gigtarfélag Íslands

    Education, counselling, peer-support groups, physiotherapy and occupational therapy for people with rheumatic conditions.

    For Rheumatoid arthritis, Lupus (SLE), Ankylosing spondylitis and 2 more

    Visit site: gigt.is
  • Patient groupAll of Israel

    Inbar

    Information, webinars, support groups and programmes for people with rheumatic, autoimmune and inflammatory diseases.

    For Rheumatoid arthritis, Lupus (SLE), Ankylosing spondylitis and 2 more

    Visit site: inbar.org.il
  • Patient groupAll of Brazil

    Instituto Gruparj Petrópolis

    Instituto Gruparj Petrópolis, a group of arthritic and rheumatic patients from Petrópolis, Rio de Janeiro.

    For Rheumatoid arthritis, Ankylosing spondylitis, Lupus (SLE)

    Visit site: gruparjpetropolis.com.br
  • Patient groupAll of United States

    International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis)

    US foundation for people with autoimmune and autoinflammatory arthritis, including RA, offering education, advocacy, research, podcasts and a patient community.

    For Rheumatoid arthritis, Ankylosing spondylitis

    Visit site: aiarthritis.org
  • Patient groupAll of Czechia

    Klub Bechtěreviků České republiky z.s.

    Patient association for people with ankylosing spondylitis / axial spondyloarthritis in Czechia; listed as a member of ASIF.

    For Ankylosing spondylitis

    Visit site: klub-bechtereviku.cz
  • Patient groupAll of Slovakia

    Liga proti reumatizmu na Slovensku

    Local branches, disease-specific clubs, webinars, publications and social-psychological support.

    For Rheumatoid arthritis, Ankylosing spondylitis, Psoriatic arthritis and 1 more

    Visit site: mojareuma.sk
  • Patient groupAll of Hungary

    Magyar Bechterewesek Egyesülete

    Patient association for people with ankylosing spondylitis / axial spondyloarthritis in Hungary; listed as a member of ASIF.

    For Ankylosing spondylitis

    Visit site: bechterewes.hu
  • Patient groupAll of Australia

    Musculoskeletal Health Australia

    Musculoskeletal Health Australia (formerly Musculoskeletal Australia) supports people whose lives are impacted by musculoskeletal conditions.

    For Rheumatoid arthritis, Ankylosing spondylitis

    Visit site: muscha.org
  • Patient groupAll of Singapore

    National Arthritis Foundation

    National Arthritis Foundation Singapore, charity supporting people with arthritis incl. AS, ASIF member.

    For Rheumatoid arthritis, Ankylosing spondylitis, Psoriatic arthritis

    Visit site: naf.org.sg
  • Patient groupAll of United Kingdom

    National Axial Spondyloarthritis Society (NASS)

    Charity for people with ankylosing spondylitis / axial spondyloarthritis in the United Kingdom; listed as a member of ASIF.

    For Ankylosing spondylitis

    Visit site: nass.co.uk
  • Patient groupAll of Netherlands

    Nationale Vereniging ReumaZorg Nederland

    Patient association for people with rheumatic diseases including rheumatoid arthritis, ankylosing spondylitis / axial spondyloarthritis, osteoporosis in the Netherlands; listed as a member of EULAR PARE, ASIF, the IOF.

    For Rheumatoid arthritis, Ankylosing spondylitis, Osteoporosis

    Visit site: reumazorgnederland.nl
  • Patient groupAll of Poland

    Ogólnopolskie Stowarzyszenie Młodych z Zapalnymi Chorobami Tkanki Łącznej „3majmy się razem”

    Patient association for people with lupus, ankylosing spondylitis / axial spondyloarthritis in Poland; listed as a member of Lupus Europe, ASIF.

    For Lupus (SLE), Ankylosing spondylitis

    Visit site: 3majmysierazem.pl
  • Patient groupAll of Austria

    Österreichische Vereinigung Morbus Bechterew (ÖVMB)

    Patient association for people with ankylosing spondylitis / axial spondyloarthritis in Austria; listed as a member of ASIF.

    For Ankylosing spondylitis

    Visit site: bechterew.at
  • Patient groupAll of Croatia

    Remisija – udruga oboljelih od upalnih reumatskih bolesti

    Croatian association promoting treatment and quality of life of people with inflammatory rheumatic diseases (RA, psoriatic arthritis, spondyloarthritis) via education and peer support.

    For Rheumatoid arthritis, Psoriatic arthritis, Ankylosing spondylitis

    Visit site: remisija.hr
  • Patient groupAll of Sweden

    Reumatikerförbundet

    Knowledge, research funding, advocacy, free helpline (Reuma direkt) and local member groups.

    For Rheumatoid arthritis, Lupus (SLE), Systemic sclerosis (scleroderma) and 3 more

    Visit site: reumatiker.se
  • Patient groupAll of Switzerland

    Schweizerische Vereinigung Morbus Bechterew

    Patient association for people with ankylosing spondylitis / axial spondyloarthritis in Switzerland; listed as a member of ASIF.

    For Ankylosing spondylitis

    Visit site: bechterew.ch
  • Patient groupAll of Slovenia

    Slovenian Rheumatism Association

    Webinars, seminars, advisory workshops, exercise programmes, holiday apartments and publications.

    For Rheumatoid arthritis, Lupus (SLE), Ankylosing spondylitis and 1 more

    Visit site: revmatiki.si
  • Patient groupAll of Norway

    Spafo Norge – Spondyloartrittforbundet

    Patient association for people with ankylosing spondylitis / axial spondyloarthritis in Norway; listed as a member of ASIF.

    For Ankylosing spondylitis, Psoriatic arthritis

    Visit site: spafo.no
  • Patient groupAll of United States

    Spondylitis Association of America

    The leading US nonprofit educating, empowering and advocating for people with ankylosing spondylitis and related spondyloarthritis.

    For Ankylosing spondylitis

    Visit site: spondylitis.org
  • Patient groupAll of Finland

    Suomen Reumaliitto ry

    Information and services for newly diagnosed and long-term rheumatic patients and carers.

    For Rheumatoid arthritis, Ankylosing spondylitis, Psoriatic arthritis

    Visit site: reumaliitto.fi
  • Patient groupAll of Serbia

    The Association of Rheumatic Diseases Patients of the Republic of Serbia (ORS)

    Patient support including free online counselling, brochures, psychological support and legal aid.

    For Rheumatoid arthritis, Lupus (SLE), Sjögren's disease and 2 more

    Visit site: ors.rs
  • Patient groupAll of Belgium

    Vlaamse Vereniging voor SpondyloArtritis vzw

    Patient association for people with ankylosing spondylitis / axial spondyloarthritis in Belgium; listed as a member of ASIF.

    For Ankylosing spondylitis

    Visit site: spondylitis.be
  • Patient groupAll of Greece

    Ελληνική Εταιρεία Αντιρευματικού Αγώνα (ΕΛ.Ε.ΑΝ.Α.)

    Psychological support, patient information and events for people with rheumatic diseases.

    For Rheumatoid arthritis, Lupus (SLE), Systemic sclerosis (scleroderma) and 3 more

    Visit site: arthritis.org.gr
  • Patient groupAll of Cyprus

    Σύνδεσμος Ρευματοπαθών Κύπρου (CYLPER)

    National association of people with rheumatic diseases in Cyprus (homepage content not readable beyond title).

    For Rheumatoid arthritis, Lupus (SLE), Systemic sclerosis (scleroderma) and 3 more

    Visit site: rheumatism.org.cy
  • Patient groupAll of Bulgaria

    Българско сдружение на болните от болест на Бехтерев

    Patient association for people with ankylosing spondylitis / axial spondyloarthritis in Bulgaria; listed as a member of ASIF.

    For Ankylosing spondylitis

    Visit site: bg.spondylitisbg.org
  • Patient groupAll of Russia

    Общество взаимопомощи при болезни Бехтерева

    Patient association for people with ankylosing spondylitis / axial spondyloarthritis in Russia; listed as a member of ASIF.

    For Ankylosing spondylitis

    Visit site: bbehtereva.ru
  • Patient groupAll of South Korea

    한국 강직성척추염 환우회

    KOAS, non-profit Korean ankylosing spondylitis patient association founded by patients, ASIF member.

    For Ankylosing spondylitis

    Visit site: koas.org
  • Umbrella organisationAll of Spain

    CEADE – Coordinadora Española de Asociaciones de Espondiloartritis

    National federation of patient groups for people with ankylosing spondylitis / axial spondyloarthritis in Spain; listed as a member of ASIF.

    For Ankylosing spondylitis

    Visit site: eaceade.es
  • Umbrella organisationInternational

    Axial Spondyloarthritis International Federation

    Worldwide federation of axial spondyloarthritis (incl. ankylosing spondylitis) patient associations; World AS Day, IMAS/IMAP patient surveys, delay-to-diagnosis campaigns, patient resources.

    For Ankylosing spondylitis

    Visit site: asif.info
  • Umbrella organisationEurope

    EULAR PARE (EULAR network of organisations of People with Arthritis/Rheumatism in Europe)

    Network of national patient organisations for people with rheumatic and musculoskeletal diseases (RMDs); EU-level advocacy, patient research partner training, Young PARE, webinars and support for national groups.

    For Rheumatoid arthritis, Lupus (SLE), Psoriatic arthritis and 4 more

    Visit site: eular.org
  • Umbrella organisationEurope

    European Patients' Forum (EPF)

    Umbrella of European patient organisations and national patient coalitions.

    For any disease

    Visit site: eu-patient.eu
  • Umbrella organisationInternational

    International Alliance of Patients' Organizations

    Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.

    For any disease

    Visit site: iapo.org.uk

Do you know an organisation we missed? Write to support@frontlightresearch.com and we will add it.