Support organisations
Patient groups and helplines near you, for people with a disease and for their families.
12 organisations for Cystic fibrosis in United States
BreatheStrong CF (formerly Cystic Fibrosis Lifestyle Foundation)
US nonprofit for people with cystic fibrosis and families, offering exercise grants, financial assistance, virtual wellness community and education.
For Cystic fibrosis
Visit site: breathestrongcf.orgClaire's Place Foundation
Non-profit offering financial and community support, including a support family network, to children, individuals and families affected by cystic fibrosis.
For Cystic fibrosis
Visit site: clairesplacefoundation.orgCystic Fibrosis Research Institute (CFRI)
US nonprofit serving the cystic fibrosis community with research funding, education, advocacy, psychosocial support, wellness classes, retreats and podcasts.
For Cystic fibrosis
Visit site: cfri.org
Genetic and Rare Diseases Information Center
NIH information center (GARD) providing reliable information on genetic and rare diseases to patients and families via website and contact center.
For Glioblastoma, Acute myeloid leukaemia, Hodgkin lymphoma and 32 more
Visit site: nih.govUnited States Adult Cystic Fibrosis Association, Inc. (USACFA)
US non-profit run by adults with CF that publishes CF Roundtable magazine and offers support, information, scholarships and outreach to the CF community.
For Cystic fibrosis
Visit site: cfroundtable.com
988 Suicide & Crisis Lifeline
US national 24/7 free and confidential lifeline for anyone in suicidal crisis or emotional distress, reachable by calling or texting 988 or by chat.
For any disease
Visit site: 988lifeline.org
MedlinePlus
Free, easy-to-read health information service of the US National Library of Medicine (NIH) on diseases, conditions, drugs and wellness.
For any disease
Visit site: medlineplus.gov
National Organization for Rare Disorders
US national rare disease alliance of patient organizations: education, patient assistance programs, rare disease database and policy advocacy.
For Glioblastoma, Acute myeloid leukaemia, Childhood cancers and 34 more
Visit site: rarediseases.orgCystic Fibrosis Europe
Federation of national CF patient organisations: patient perspective in standards of care, member training and information, patient-driven research (PORG), EU advocacy.
For Cystic fibrosis
Visit site: cf-europe.eu
EURORDIS – Rare Diseases Europe
Alliance of over 1,000 rare disease patient organisations, with a list of rare disease helplines by country.
For Glioblastoma, Acute myeloid leukaemia, Childhood cancers and 35 more
Visit site: eurordis.orgEuropean Patients' Forum (EPF)
Umbrella of European patient organisations and national patient coalitions.
For any disease
Visit site: eu-patient.eu
International Alliance of Patients' Organizations
Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.
For any disease
Visit site: iapo.org.uk
Do you know an organisation we missed? Write to support@frontlightresearch.com and we will add it.