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Support organisations

Patient groups and helplines near you, for people with a disease and for their families.

49 organisations for Endometriosis in all countries

  • Patient groupAll of Hungary

    „Együtt könnyebb” Női Egészségért Alapítvány

    Hungarian foundation for women's health supporting women with endometriosis.

    For Endometriosis

    Visit site: noiegeszsegert.hu
  • Patient groupAll of Italy

    A.P.E. ODV – Associazione Progetto Endometriosi

    National volunteer association founded in 2005 by women with endometriosis; offers support, information and peer help to women with the disease.

    For Endometriosis

    Visit site: apendometriosi.it
  • Patient groupAll of Spain

    ADAEC Estatal – Asociación de Afectadas de Endometriosis Estatal

    National association of women affected by endometriosis in Spain, offering information, support and advocacy.

    For Endometriosis

    Visit site: adaec.es
  • Patient groupAll of Costa Rica

    AENDOCR - Asociación Costarricense de Ayuda a Pacientes con Endometriosis

    Non-profit in Costa Rica supporting women with endometriosis, adenomyosis and cancers through information, patient support, events and a patient mapping programme.

    For Endometriosis

    Visit site: aendocr.com
  • Patient groupAll of Romania

    Asociația Eu și Endometrioza

    Romanian non-profit raising awareness and supporting people affected by endometriosis and adenomyosis.

    For Endometriosis

    Visit site: eusiendometrioza.ro
  • Patient groupAll of Morocco

    Association marocaine de soutien aux femmes atteintes d'endométriose (AMSFAE)

    Moroccan non-profit association dedicated to supporting women with endometriosis in Morocco.

    For Endometriosis

    Visit site: amsfae.ma
  • Patient groupAll of Singapore

    E for Endometriosis

    Singapore endometriosis awareness and support organisation offering information, events and support for people affected by endometriosis.

    For Endometriosis

    Visit site: endosupport.sg
  • Patient groupAll of Austria

    EndÖ – Endometriose Österreich

    Austrian association of people affected by endometriosis that offers information and peer-support communities.

    For Endometriosis

    Visit site: endometriose-oesterreich.at
  • Patient groupAll of United States

    Endo Black, Incorporated

    Advocacy organization for African American women and women of color with endometriosis, offering toolkits, a symptom tracker, events and awareness campaigns.

    For Endometriosis

    Visit site: endoblack.org
  • Patient groupAll of Egypt

    Endo Egypt

    Egyptian non-profit community supporting women with endometriosis and adenomyosis through awareness, resources, volunteers and events.

    For Endometriosis

    Visit site: endoegypt.com
  • Patient groupAll of Kenya

    Endo Sisters East Africa Foundation

    Advocacy foundation for women and girls with endometriosis, offering patient education, research and support groups, aiming to put endometriosis on Kenya's reproductive health agenda.

    For Endometriosis

    Visit site: endosisterseastafrica.org
  • Patient groupAll of Türkiye

    Endo Türkiye – Endometriozis Araştırma ve Dayanışma Derneği

    Turkish association for endometriosis awareness, research and solidarity.

    For Endometriosis

    Visit site: endoturkiye.org
  • Patient groupAll of Belgium

    Endo.Insideout vzw

    Endo.Insideout is a Flemish patient organisation for endometriosis and adenomyosis, raising awareness and supporting patients.

    For Endometriosis

    Visit site: endoinsideout.be
  • Patient groupAll of France

    EndoFrance

    French patient association fighting endometriosis and supporting those affected.

    For Endometriosis

    Visit site: endofrance.org
  • Patient groupAll of Cyprus

    EndoMarch Cyprus

    Cypriot non-profit running an endometriosis awareness campaign and public events, sharing women's stories about the disease.

    For Endometriosis

    Visit site: endomarchcyprus.com
  • Patient groupAll of Denmark

    Endometriose Fællesskabet

    Danish patient association for people with endometriosis and adenomyosis.

    For Endometriosis

    Visit site: endo.dk
  • Patient groupAll of Netherlands

    Endometriose Stichting

    Dutch patient foundation for women with endometriosis.

    For Endometriosis

    Visit site: endometriose.nl
  • Patient groupAll of Germany

    Endometriose-Vereinigung Deutschland e.V.

    National patient association for women with endometriosis, run by those affected: information, counselling and self-help groups.

    For Endometriosis

    Visit site: endometriose-vereinigung.de
  • Patient groupAll of Norway

    Endometrioseforeningen

    Norwegian patient association for people with endometriosis.

    For Endometriosis

    Visit site: endometriose.no
  • Patient groupAll of Sweden

    Endometriosföreningen

    Swedish non-profit patient association for people with endometriosis.

    For Endometriosis

    Visit site: endometriosforeningen.com
  • Patient groupAll of United States

    Endometriosis Association

    US self-help organization offering support, education and research funding for women and girls with endometriosis.

    For Endometriosis

    Visit site: endometriosisassn.org
  • Patient groupAll of Ireland

    Endometriosis Association of Ireland

    Irish association supporting people with endometriosis.

    For Endometriosis

    Visit site: endometriosis.ie
  • Patient groupAll of Australia

    Endometriosis Australia

    Endometriosis Australia: non-profit organisation in Australia supporting people affected by endometriosis.

    For Endometriosis

    Visit site: endometriosisaustralia.org
  • Patient groupAll of United States

    Endometriosis Foundation of America

    US nonprofit increasing awareness of endometriosis, providing education and supporting research and patient advocacy.

    For Endometriosis

    Visit site: endofound.org
  • Patient groupAll of New Zealand

    Endometriosis New Zealand

    Endometriosis New Zealand: non-profit organisation in New Zealand supporting people affected by endometriosis.

    For Endometriosis

    Visit site: nzendo.org.nz
  • Patient groupAll of United Kingdom

    Endometriosis South Coast

    Registered UK charity offering help, advice and support for those affected by endometriosis.

    For Endometriosis

    Visit site: endometriosissouthcoast.com
  • Patient groupAll of United Kingdom

    Endometriosis UK

    UK charity providing support, information and advocacy for people with endometriosis.

    For Endometriosis

    Visit site: endometriosis-uk.org
  • Patient groupAll of Iceland

    Endósamtökin

    Icelandic association for people with endometriosis.

    For Endometriosis

    Visit site: endo.is
  • Patient groupAll of Nigeria

    EndoSurvivors International Foundation (ESIF)

    Lagos-based foundation working for girls and women with endometriosis in Nigeria through awareness, education, research, advocacy and a patient support group.

    For Endometriosis

    Visit site: endosurvivors.org
  • Patient groupAll of Czechia

    ENDOTalks

    Czech patient organisation focused on endometriosis.

    For Endometriosis

    Visit site: endotalks.cz
  • Patient groupAll of Slovenia

    Endozavest – Ozaveščanje o endometriozi

    Slovenian society founded by women with endometriosis to raise public awareness and offer mutual help, with information pages, patient stories and an expert advice service.

    For Endometriosis

    Visit site: endozavest.si
  • Patient groupAll of Sri Lanka

    ESAF Sri Lanka - Endometriosis Support & Awareness Foundation

    Non-profit foundation founded by a patient that raises endometriosis awareness and offers information and support to women and girls across Sri Lanka.

    For Endometriosis

    Visit site: esafsrilanka.lk
  • Patient groupAll of Poland

    Fundacja „Pokonać Endometriozę"

    Polish foundation for women with endometriosis; education, support and advocacy for better diagnosis and treatment.

    For Endometriosis

    Visit site: pokonacendometrioze.pl
  • Patient groupAll of Croatia

    Ja sam 1 od 10 – Udruga žena oboljelih od endometrioze

    Croatian association of women with endometriosis, offering information and peer support.

    For Endometriosis

    Visit site: jasam1od10.hr
  • Patient groupAll of Indonesia

    Komunitas Endometriosis Indonesia

    Community of EndoSisters in Indonesia, active since 2015, offering support, education and advocacy for people with endometriosis, plus a doctor list.

    For Endometriosis

    Visit site: endometriosis-indonesia.id
  • Patient groupAll of Finland

    Korento ry – Gynekologinen potilasjärjestö

    National gynecological patient organisation supporting and advocating for people living with endometriosis, adenomyosis, PCOS and vulvodynia; offers membership and peer support.

    For Endometriosis

    Visit site: korento.fi
  • Patient groupAll of Latvia

    Latvijas Endometriozes biedrība

    Latvian association for women with endometriosis; provides information, support groups and awareness activities.

    For Endometriosis

    Visit site: endometrioze.lv
  • Patient groupAll of Portugal

    Mulherendo – Associação Portuguesa de Apoio a Mulheres com Endometriose

    Portuguese association supporting women with endometriosis through information, peer support and awareness.

    For Endometriosis

    Visit site: mulherendo.pt
  • Patient groupAll of Australia

    Pelvic Pain Foundation of Australia

    Pelvic Pain Foundation of Australia: foundation in Australia supporting people affected by endometriosis.

    For Endometriosis

    Visit site: pelvicpain.org.au
  • Patient groupAll of Malaysia

    Persatuan Endometriosis Malaysia (MyEndosis)

    Endometriosis Association of Malaysia (MyEndosis): patient organisation in Malaysia supporting people affected by endometriosis.

    For Endometriosis

    Visit site: myendosis.org
  • Patient groupAll of Australia

    QENDO

    QENDO: patient organisation in Australia supporting people affected by endometriosis.

    For Endometriosis

    Visit site: qendo.org.au
  • Patient groupAll of Switzerland

    S-Endo

    Swiss association for women with endometriosis, offering information, advice, events and membership, with a French-language website.

    For Endometriosis

    Visit site: s-endo.ch
  • Patient groupAll of United States

    The Endometriosis Coalition (The Endo Co)

    Patient-founded group for people with endometriosis offering education, resources, advocacy, a support group and research fundraising.

    For Endometriosis

    Visit site: theendo.co
  • Patient groupAll of Canada

    The Endometriosis Network Canada

    Canadian organization offering endometriosis information, virtual support groups, care resources and advocacy.

    For Endometriosis

    Visit site: endometriosisnetwork.com
  • Patient groupAll of Bulgaria

    Фондация „Ендометриоза и репродуктивно здраве“

    Bulgarian foundation supporting women with endometriosis and promoting reproductive health.

    For Endometriosis

    Visit site: endometriosis.bg
  • Patient groupAll of Japan

    日本子宮内膜症協会

    Japan Endometriosis Association (JEMA): patient organisation in Japan supporting people affected by endometriosis.

    For Endometriosis

    Visit site: jemanet.org
  • Umbrella organisationInternational

    World Endometriosis Organisations

    Worldwide coalition of not-for-profit endometriosis patient organisations (affiliated with the World Endometriosis Society) collaborating on education, advocacy and research.

    For Endometriosis

    Visit site: endometriosis.org
  • Umbrella organisationEurope

    European Patients' Forum (EPF)

    Umbrella of European patient organisations and national patient coalitions.

    For any disease

    Visit site: eu-patient.eu
  • Umbrella organisationInternational

    International Alliance of Patients' Organizations

    Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.

    For any disease

    Visit site: iapo.org.uk

Do you know an organisation we missed? Write to support@frontlightresearch.com and we will add it.