Support organisations

Patient groups and helplines near you, for people with a disease and for their families.

6 organisations for Epidermolysis bullosa in United States

Patient groupInternational
EB Research Partnership
Funds research into treatments and a cure for EB, putting money back into new projects when they succeed.
For Epidermolysis bullosa
Visit site: ebresearch.org
HelplineAll of United States
988 Suicide & Crisis Lifeline
US national 24/7 free and confidential lifeline for anyone in suicidal crisis or emotional distress, reachable by calling or texting 988 or by chat.
For any disease
Visit site: 988lifeline.org
Patient groupAll of United States
MedlinePlus
Free, easy-to-read health information service of the US National Library of Medicine (NIH) on diseases, conditions, drugs and wellness.
For any disease
Visit site: medlineplus.gov
Umbrella organisationInternational
DEBRA International
Links national EB patient groups worldwide and shares EB patient guides, care guidelines and an EB card.
For Epidermolysis bullosa
Visit site: debra-international.org
Umbrella organisationEurope
European Patients' Forum (EPF)
Umbrella of European patient organisations and national patient coalitions.
For any disease
Visit site: eu-patient.eu
Umbrella organisationInternational
International Alliance of Patients' Organizations
Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.
For any disease
Visit site: iapo.org.uk

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