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Support organisations

Patient groups and helplines near you, for people with a disease and for their families.

35 organisations for Familial hypercholesterolaemia in all countries

  • Patient groupAll of Italy

    A.N.I.F. – Associazione Nazionale Ipercolesterolemia Familiare

    Italian national association founded by parents of children with familial hypercholesterolaemia: awareness, information and support for patients.

    For Familial hypercholesterolaemia

    Visit site: associazioneanif.it
  • Patient groupAll of Brazil

    AHF – Associação Brasileira de Hipercolesterolemia Familiar

    National association of patients, relatives and interested professionals in Brazil that raises awareness of familial hypercholesterolaemia and promotes access to diagnosis and treatment.

    For Familial hypercholesterolaemia

    Visit site: ahfcolesterol.org
  • Patient groupAll of Türkiye

    Ailevi Hiperkolesterolemi Derneği

    Izmir-based Turkish patient association focused on education and research to raise awareness of familial hypercholesterolaemia.

    For Familial hypercholesterolaemia

    Visit site: ailevihiperkolesterolemi.org
  • Patient groupAll of France

    ANHET.f – Association Nationale des Hypercholestérolémies familiales et Lipoprotéines (a)

    French national patient association for familial hypercholesterolaemia and Lp(a): awareness, information on research and support for patients.

    For Familial hypercholesterolaemia

    Visit site: anhet.fr
  • Patient groupAll of Portugal

    Associação Portuguesa de Hipercolesterolemia Familiar (FH Portugal)

    Portuguese association raising awareness of familial hypercholesterolaemia and other inherited dyslipidaemias among the public and health professionals.

    For Familial hypercholesterolaemia

    Visit site: fhportugal.pt
  • Patient groupAll of Czechia

    Česká aliance pro kardiovaskulární onemocnění (ČAKO)

    Patient association for people with heart and vascular conditions or risk factors: membership, events, screenings, expert advice, educational materials.

    For Coronary artery disease, Heart failure, High blood pressure and 2 more

    Visit site: ca-ko.cz
  • Patient groupAll of Ireland

    Croí Heart & Stroke Centre

    Irish heart and stroke charity based in Galway: education, advocacy, early diagnosis and support for people at risk of or living with heart disease and stroke.

    For Coronary artery disease, Heart failure, High blood pressure and 2 more

    Visit site: croi.ie
  • Patient groupAll of Slovenia

    Društvo za zdravje srca in ožilja Slovenije

    Public education on heart health, free health measurements, heart-risk counselling, events and publications.

    For Coronary artery disease, Heart failure, High blood pressure and 2 more

    Visit site: zasrce.si
  • Patient groupAll of United States

    Family Heart Foundation

    US nonprofit (formerly the FH Foundation) helping families with familial hypercholesterolemia and other genetic lipid disorders.

    For Familial hypercholesterolaemia

    Visit site: familyheart.org
  • Patient groupAll of Australia

    FH Australia

    Australian health promotion charity giving voice and support to individuals and families affected by familial hypercholesterolaemia (FH).

    For Familial hypercholesterolaemia

    Visit site: fhaustralia.org.au
  • Patient groupAll of Norway

    FH Norge

    Norwegian patient association safeguarding the interests of people with familial hypercholesterolaemia by informing about FH and its treatment.

    For Familial hypercholesterolaemia

    Visit site: f-h.no
  • Patient groupAll of Sweden

    FH Sverige

    Swedish patient association founded in 2009 so that people with familial hypercholesterolaemia are identified, diagnosed and treated early.

    For Familial hypercholesterolaemia

    Visit site: fhsverige.se
  • Patient groupAll of Austria

    FHchol Austria

    Vienna-based patient organisation for people with familial hypercholesterolaemia, offering information, an FH register, patient meetings and a patient network.

    For Familial hypercholesterolaemia

    Visit site: fhchol.at
  • Patient groupAll of Spain

    Fundación Hipercolesterolemia Familiar

    Spanish foundation that informs, detects and supports families with familial hypercholesterolaemia to prevent premature cardiovascular disease.

    For Familial hypercholesterolaemia

    Visit site: colesterolfamiliar.org
  • Patient groupAll of Romania

    Fundația „Pop de Popa” pentru Ocrotirea Bolnavilor cu Afecțiuni Cardiovasculare (FOBAC)

    Romanian foundation for the protection of patients with cardiovascular diseases, running the FOBAC medical centre in Bucharest; FH Europe network member.

    For Familial hypercholesterolaemia, Coronary artery disease, Heart failure and 1 more

    Visit site: fobac.ro
  • Patient groupAll of Italy

    Gruppo Italiano Pazienti FH (GIP-FH)

    Italian non-profit patient association networking people with familial hypercholesterolaemia across Italy, with information for patients and doctors.

    For Familial hypercholesterolaemia

    Visit site: gip-fh.it
  • Patient groupAll of Netherlands

    Hartstichting

    Heart and vascular disease information, advisor chat/call, free resuscitation training, heart checks and peer contact.

    For Coronary artery disease, Heart failure, High blood pressure and 2 more

    Visit site: hartstichting.nl
  • Patient groupAll of United Kingdom

    HEART UK – The Cholesterol Charity

    UK charity offering support and help for people living with high cholesterol, including familial hypercholesterolaemia, and a peer-support ambassador network.

    For Familial hypercholesterolaemia

    Visit site: heartuk.org.uk
  • Patient groupAll of Denmark

    Hjerteforeningen

    Information, prevention, patient support (incl. Hjertelinjen advice line), research funding and membership for people with heart disease.

    For Coronary artery disease, Heart failure, High blood pressure and 3 more

    Visit site: hjerteforeningen.dk
  • Patient groupAll of Greece

    LDL Greece – Σύλλογος Υπερχοληστερολαιμίας

    Greek non-profit patient association for people with familial hypercholesterolaemia: advocacy, awareness and information.

    For Familial hypercholesterolaemia

    Visit site: ldlgreece.gr
  • Patient groupAll of Lithuania

    Lietuvos širdies asociacija

    Public cardiovascular prevention information and mutual-support clubs for patients.

    For Coronary artery disease, Heart failure, High blood pressure and 1 more

    Visit site: heart.lt
  • Patient groupAll of Belgium

    Ligue Cardiologique Belge / Belgische Cardiologische Liga

    Prevention and information on heart and vascular disease, cardiac rehabilitation resources, patient clubs and cardiac-arrest response training.

    For Coronary artery disease, Heart failure, High blood pressure and 3 more

    Visit site: liguecardioliga.be
  • Patient groupAll of Poland

    Ogólnopolskie Stowarzyszenie Pacjentów ze Schorzeniami Serca i Naczyń "EcoSerce"

    Support for cardiac patients and families: debates, workshops, information campaigns and patient-rights advocacy.

    For Coronary artery disease, Heart failure, High blood pressure and 2 more

    Visit site: ecoserce.pl
  • Patient groupAll of Mexico

    PACO – Pacientes de Corazón

    Heart-disease awareness, prevention and support for patients and families, incl. heart failure.

    For Coronary artery disease, Heart failure, Atrial fibrillation and 1 more

    Visit site: pacientesdecorazon.org
  • Patient groupAll of Latvia

    Par Sirdi LV

    Heart-health information: prevention, diseases, patient booklets, patient rights, heart tests and campaigns.

    For Coronary artery disease, Heart failure, High blood pressure and 3 more

    Visit site: parsirdi.lv
  • Patient groupAll of Switzerland

    Schweizerische Gesellschaft für Familiäre Formen der Hypercholesterinämie (SGFH)

    Swiss patient platform founded in 2014 for people with familial hypercholesterolaemia to share daily challenges, with information and awareness work.

    For Familial hypercholesterolaemia

    Visit site: sgfh.ch
  • Patient groupAll of Lithuania

    Sveika širdis

    Patients' society for people with heart and vascular conditions (incl. hypertension, high cholesterol): education and advocacy.

    For Coronary artery disease, Heart failure, High blood pressure and 1 more

    Visit site: sveikasirdis.com
  • Patient groupAll of Finland

    Sydänliitto

    Heart-disease information plus rehabilitation, peer support, events and membership.

    For Coronary artery disease, Heart failure, High blood pressure and 3 more

    Visit site: sydan.fi
  • Patient groupAll of Hungary

    SZÍVSN Országos Betegegyesület

    National heart patient association: information, screenings, campaigns, equipment lending and education.

    For Coronary artery disease, Heart failure, High blood pressure and 1 more

    Visit site: szivsn.hu
  • Patient groupAll of Malaysia

    Yayasan Jantung Malaysia

    The Heart Foundation of Malaysia works on education, training and control of heart and blood vessel disease, including CPR training and public heart health information.

    For Coronary artery disease, Familial hypercholesterolaemia

    Visit site: yjm.org.my
  • Patient groupAll of China

    红米粒互助之家（红米粒FH关爱中心）

    Non-profit mutual-aid group founded in 2020 by FH patients and families in China, sharing research, treatment and insurance policy information; in 2025 it co-launched an FH research fund.

    For Familial hypercholesterolaemia

    Visit site: zhuanlan.zhihu.com
  • Umbrella organisationEurope

    FH Europe Foundation

    European network of FH and inherited lipid patient groups (FH, HoFH, Lp(a), FCS): patient information, lifestyle and treatment guidance, awareness and advocacy for early diagnosis.

    For Familial hypercholesterolaemia

    Visit site: fheurope.org
  • Umbrella organisationInternational

    Global Heart Hub

    Global umbrella of heart patient organisations; runs a Heart Failure Patient Network, awareness campaigns, advocacy and patient resources.

    For Heart failure, Coronary artery disease, Hypertrophic cardiomyopathy and 1 more

    Visit site: globalhearthub.org
  • Umbrella organisationEurope

    European Patients' Forum (EPF)

    Umbrella of European patient organisations and national patient coalitions.

    For any disease

    Visit site: eu-patient.eu
  • Umbrella organisationInternational

    International Alliance of Patients' Organizations

    Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.

    For any disease

    Visit site: iapo.org.uk

Do you know an organisation we missed? Write to support@frontlightresearch.com and we will add it.