Support organisations

Patient groups and helplines near you, for people with a disease and for their families.

12 organisations for Friedreich ataxia in United States

Patient groupAll of United States
Families for Friedreich's Ataxia Foundation
US 501(c)(3) non-profit supporting individuals and families living with Friedreich's ataxia through financial assistance, resources and awareness.
For Friedreich ataxia
Visit site: familiesforfa.com
Patient groupAll of United States
Genetic and Rare Diseases Information Center
NIH information center (GARD) providing reliable information on genetic and rare diseases to patients and families via website and contact center.
For Glioblastoma, Acute myeloid leukaemia, Hodgkin lymphoma and 32 more
Visit site: nih.gov
Patient groupAll of United States
Muscular Dystrophy Association
US nonprofit advancing research, care and advocacy for people living with muscular dystrophy, ALS and related neuromuscular diseases.
For ALS (motor neurone disease), Spinal muscular atrophy, Duchenne muscular dystrophy and 2 more
Visit site: mda.org
Patient groupAll of United States
National Ataxia Foundation
US nonprofit empowering people affected by ataxia, including Friedreich's ataxia, with education, support groups and research.
For Friedreich ataxia
Visit site: ataxia.org
HelplineAll of United States
988 Suicide & Crisis Lifeline
US national 24/7 free and confidential lifeline for anyone in suicidal crisis or emotional distress, reachable by calling or texting 988 or by chat.
For any disease
Visit site: 988lifeline.org
Patient groupAll of United States
MedlinePlus
Free, easy-to-read health information service of the US National Library of Medicine (NIH) on diseases, conditions, drugs and wellness.
For any disease
Visit site: medlineplus.gov
Umbrella organisationAll of United States
National Organization for Rare Disorders
US national rare disease alliance of patient organizations: education, patient assistance programs, rare disease database and policy advocacy.
For Glioblastoma, Acute myeloid leukaemia, Childhood cancers and 34 more
Visit site: rarediseases.org
Umbrella organisationEurope
Euro-Ataxia
European federation of national ataxia associations (incl. Friedreich ataxia): shares information on care and research progress.
For Friedreich ataxia
Visit site: euroataxia.org
Umbrella organisationEurope
EURORDIS – Rare Diseases Europe
Alliance of over 1,000 rare disease patient organisations, with a list of rare disease helplines by country.
For Glioblastoma, Acute myeloid leukaemia, Childhood cancers and 35 more
Visit site: eurordis.org
Umbrella organisationInternational
Friedreich's Ataxia Research Alliance
FA patient organisation (US-based, international research reach): FA information, newly-diagnosed guide, clinical trial finder, community events, research funding.
For Friedreich ataxia
Visit site: curefa.org
Umbrella organisationEurope
European Patients' Forum (EPF)
Umbrella of European patient organisations and national patient coalitions.
For any disease
Visit site: eu-patient.eu
Umbrella organisationInternational
International Alliance of Patients' Organizations
Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.
For any disease
Visit site: iapo.org.uk