Under construction – not a live service
Sign in

Support organisations

Patient groups and helplines near you, for people with a disease and for their families.

42 organisations for Frontotemporal dementia in all countries

  • Patient group

    Alzheimer Gesellschaft Baden-Württemberg e.V. Selbsthilfe Demenz

    Dementia self-help association in Baden-Württemberg offering counselling, information and FTD-specific online support groups and seminars for relatives.

    For Alzheimer disease, Frontotemporal dementia

    Visit site: alzheimer-bw.de
  • Patient group

    Alzheimer Gesellschaft Hamburg e.V.

    Hamburg self-help organisation for people with dementia and their relatives, offering counselling, relative groups and courses, including FTD courses.

    For Alzheimer disease, Frontotemporal dementia

    Visit site: alzheimer-hamburg.de
  • HelplineAll of United States

    Alzheimer's Association – 24/7 Helpline

    Free 24/7 helpline of the Alzheimer's Association (800.272.3900) giving information and support on Alzheimer's and other dementias, with a live person by phone.

    For Alzheimer disease, Frontotemporal dementia, Lewy body dementia

    Visit site: alz.org
  • HelplineAll of Estonia

    Dementsuse Kompetentsikeskus – dementsuse info- ja usaldusliin

    Dementia Competence Centre: info and trust line, personal expert counselling for people with dementia and relatives, support groups for relatives.

    For Alzheimer disease, Frontotemporal dementia, Lewy body dementia

    Visit site: dementsus.ee
  • Patient groupAll of Austria

    Alzheimer Austria

    Self-help organisation for 35+ years: free confidential counselling by appointment (alzheimeraustria@aon.at), young-onset group, peer counselling, partner and adult-children groups, Alzheimer Cafe, carer course.

    For Alzheimer disease, Frontotemporal dementia, Lewy body dementia

    Visit site: alzheimer-selbsthilfe.at
  • Patient groupAll of Germany

    Alzheimer Gesellschaft Rheinland-Pfalz e.V.

    Rhineland-Palatinate dementia association offering consultations, self-help groups including an FTD group, training, an online forum and help for carers.

    For Frontotemporal dementia

    Visit site: alzheimer-gesellschaft-rhpf.de
  • Patient groupAll of Belgium

    Alzheimer Liga Vlaanderen vzw

    Alzheimer Liga Vlaanderen is a Flemish non-profit for people with dementia and their carers, running the free Dementielijn helpline.

    For Alzheimer disease, Frontotemporal dementia, Lewy body dementia

    Visit site: alzheimerliga.be
  • Patient groupAll of Netherlands

    Alzheimer Nederland

    National Alzheimer association with a free advice line (Dementielijn). Number and hours were not readable on the pages opened today.

    For Alzheimer disease, Frontotemporal dementia, Lewy body dementia

    Visit site: alzheimer-nederland.nl
  • Patient groupAll of Portugal

    Alzheimer Portugal

    Nationwide private social solidarity institution founded in 1988 to improve the quality of life of people with dementia, their families and carers; Alzheimer Europe full member.

    For Alzheimer disease, Lewy body dementia, Frontotemporal dementia

    Visit site: alzheimerportugal.org
  • Patient groupAll of Switzerland

    Alzheimer Schweiz / Suisse / Svizzera

    Alzheimer-Telefon counselling for people with dementia, relatives and professionals; 26 cantonal sections; relatives' groups, group activities, Alzheimer holidays, alzpeer community.

    For Alzheimer disease, Frontotemporal dementia

    Visit site: alzheimer-schweiz.ch
  • Patient groupAll of Canada

    Alzheimer Society of Canada

    National charity and federation of provincial Alzheimer Societies offering dementia information, programs and support for people living with dementia and caregivers.

    For Alzheimer disease, Frontotemporal dementia, Lewy body dementia

    Visit site: alzheimer.ca
  • Patient groupAll of Spain

    Asociación de Demencia Frontotemporal (ADEF)

    Patient association in Spain for people with frontotemporal dementia and their families; listed by AFTD (international FTD organisations list).

    For Frontotemporal dementia

    Visit site: adef.es
  • Patient groupAll of Brazil

    Associação Brasileira de Alzheimer (ABRAz)

    Brazilian national association uniting families and caregivers to support people with Alzheimer's and other dementias, incl. frontotemporal dementia, and their family caregivers.

    For Alzheimer disease, Frontotemporal dementia

    Visit site: abraz.org.br
  • Patient groupAll of France

    Association France-DFT

    Patient association in France for people with frontotemporal dementia and their families; listed by AFTD (international FTD organisations list).

    For Frontotemporal dementia

    Visit site: france-dft.org
  • Patient groupAll of Luxembourg

    Association Luxembourg Alzheimer

    Support and care network for people with dementia since 1987: home help and care service, six day centres and a residential care home; advocacy for people with dementia and families.

    For Alzheimer disease, Frontotemporal dementia, Lewy body dementia

    Visit site: ala.lu
  • Patient groupAll of Italy

    Associazione Italiana Malattia Frontotemporale (AIMFT)

    Patient association in Italy for people with frontotemporal dementia and their families; listed by AFTD (international FTD organisations list).

    For Frontotemporal dementia

    Visit site: frontotemporale.it
  • Patient groupAll of Czechia

    Česká alzheimerovská společnost

    Founded in 1997 as a civic association by professionals and family carers, a public benefit company since 2014, to help people with dementia and those who care for them; online course for family carers, service database.

    For Alzheimer disease, Frontotemporal dementia, Lewy body dementia

    Visit site: alzheimer.cz
  • Patient groupAll of Hungary

    DemenSzia – a Modus Alapítvány programja

    Free programme of the Modus Foundation for family members caring for a person with dementia at home: short, step-by-step videos, practical tips for a dementia-friendly home, and a Facebook community of carers.

    For Alzheimer disease, Frontotemporal dementia, Lewy body dementia

    Visit site: demenszia.hu
  • Patient groupAll of Australia

    Dementia Australia

    Dementia Australia: patient organisation in Australia supporting people with Alzheimer's disease and other dementias and their families; ADI member.

    For Alzheimer disease, Frontotemporal dementia, Lewy body dementia

    Visit site: dementia.org.au
  • Patient groupAll of Germany

    Deutsche Gesellschaft für Frontotemporale Degeneration e.V. (DGFTD)

    Patient association in Germany for people with frontotemporal dementia and their families; listed by AFTD (international FTD organisations list).

    For Frontotemporal dementia

    Visit site: dgftd.de
  • Patient groupAll of Hungary

    Feledhetetlen Alapítvány

    Miskolc-based foundation (since 2019): dementia awareness and education, support for family carers, early detection and home-care good practice; on ADI's Membership Development Programme.

    For Alzheimer disease, Frontotemporal dementia, Lewy body dementia

    Visit site: feledhetetlen.com
  • Patient groupAll of Netherlands

    FTD Lotgenoten

    Foundation in the Netherlands for people with frontotemporal dementia and their families; listed by AFTD (international FTD organisations list).

    For Frontotemporal dementia

    Visit site: ftdlotgenoten.nl
  • Patient groupAll of Iceland

    Heilahjálp – samtök um heilabilun

    Icelandic dementia association (formerly the Alzheimer Society) advocating for people with dementia and offering support, counselling and education.

    For Alzheimer disease, Frontotemporal dementia, Lewy body dementia

    Visit site: heilahjalp.is
  • Patient groupAll of Finland

    Muistiliitto

    Finland's national dementia organisation (since 1988): rights advocacy, information and advice; 40 local associations offer activities and peer support, 18 run Muistiluotsi expert and support centres.

    For Alzheimer disease, Frontotemporal dementia, Lewy body dementia

    Visit site: muistiliitto.fi
  • Patient groupAll of Norway

    Nasjonalforeningen for folkehelsen

    Norwegian voluntary health organisation working against cardiovascular disease and dementia through prevention, information and donor-funded research.

    For Coronary artery disease, Heart failure, High blood pressure and 3 more

    Visit site: nasjonalforeningen.no
  • Patient groupAll of Denmark

    Nationalt Videnscenter for Demens

    National dementia knowledge centre at Rigshospitalet, Copenhagen: fact sheets, figures on dementia and a section for people with a diagnosis and relatives.

    For Alzheimer disease, Frontotemporal dementia, Lewy body dementia

    Visit site: videnscenterfordemens.dk
  • Patient groupAll of Montenegro

    NVO Futura

    Montenegrin NGO supporting people with Alzheimer's disease and other dementias and their carers; provisional member of Alzheimer Europe.

    For Alzheimer disease, Frontotemporal dementia, Lewy body dementia

    Visit site: facebook.com
  • Patient groupAll of United Kingdom

    Rare Dementia Support

    UK support service for people affected by rare dementias, including frontotemporal dementia: support groups, information and advice; run by UCL; listed by AFTD.

    For Frontotemporal dementia

    Visit site: raredementiasupport.org
  • Patient groupAll of Slovenia

    Spominčica - Alzheimer Slovenija

    Slovenian association for help with dementia (founded 1997), a humanitarian, public-interest organisation: help for people with dementia, relatives and carers, an advice line, newsletter and individual talks.

    For Alzheimer disease, Frontotemporal dementia, Lewy body dementia

    Visit site: spomincica.si
  • Patient groupAll of Serbia

    Srpsko udruženje za Alchajmerovu bolest

    Serbian Society for Alzheimer's Disease, founded in 2020, runs a day centre for people with dementia and counselling for carers in New Belgrade.

    For Alzheimer disease, Frontotemporal dementia, Lewy body dementia

    Visit site: alchajmer.rs
  • Patient groupAll of Sweden

    Svenskt Demenscentrum

    National dementia knowledge centre, a foundation commissioned and mainly funded by the government and Socialstyrelsen: information for people with dementia, relatives and staff.

    For Alzheimer disease, Frontotemporal dementia, Lewy body dementia

    Visit site: demenscentrum.se
  • Patient groupAll of Ireland

    The Alzheimer Society of Ireland

    National non-profit and leading dementia-specific service provider (founded 1982): local services and supports, advocacy, and a confidential National Helpline for people with dementia and carers.

    For Alzheimer disease, Frontotemporal dementia, Lewy body dementia

    Visit site: alzheimer.ie
  • Patient groupAll of United States

    The Association for Frontotemporal Degeneration

    US nonprofit for people facing frontotemporal degeneration (FTD): reliable information, HelpLine support, advocacy and research.

    For Frontotemporal dementia

    Visit site: theaftd.org
  • Patient groupAll of Croatia

    Udruga Nezaboravak – Udruga za Alzheimerovu bolest i druge demencije

    Zagreb-based association for Alzheimer's disease and other dementias: information, support groups and meetings for people with dementia and families.

    For Alzheimer disease, Frontotemporal dementia, Lewy body dementia

    Visit site: nezaboravak.hr
  • Patient groupAll of Russia

    Фонд «Альцрус»

    Moscow foundation helping people with dementia and their families with support, information, counselling, a helpline and memory cafés.

    For Alzheimer disease, Frontotemporal dementia

    Visit site: alzrus.ru
  • Patient groupAll of Iran

    انجمن دمانس و آلزایمر ایران

    Iran Dementia & Alzheimer's Association (IDAA): patient organisation in Iran supporting people with Alzheimer's disease and other dementias and frontotemporal dementia and their families; ADI member.

    For Alzheimer disease, Frontotemporal dementia

    Visit site: iranalz.ir
  • Patient groupAll of Thailand

    สมาคมผู้ดูแลผู้ป่วยสมองเสื่อม

    Alzheimer's and Related Disorders Association of Thailand: patient organisation in Thailand supporting people with Alzheimer's disease and other dementias, frontotemporal dementia and Lewy body dementia and their families; ADI member.

    For Alzheimer disease, Frontotemporal dementia, Lewy body dementia

    Visit site: azthai.org
  • Umbrella organisationAll of Poland

    Alzheimer Polska (Zwiazek Stowarzyszen)

    Union of Alzheimer associations; free confidential nationwide dementia helpline with the Patient Rights Ombudsman (Mon-Fri 10-21, Sat 10-16), knowledge base, Ukrainian-language help.

    For Alzheimer disease, Frontotemporal dementia, Lewy body dementia

    Visit site: alzheimer-polska.pl
  • Umbrella organisationEurope

    Alzheimer Europe

    Umbrella of national Alzheimer associations in 39 countries, with a member directory.

    For Alzheimer disease, Frontotemporal dementia, Lewy body dementia

    Visit site: alzheimer-europe.org
  • Umbrella organisationInternational

    Alzheimer's Disease International (ADI)

    Global federation of dementia associations in 100+ countries: member associations list, find local support, dementia information, World Alzheimer Report.

    For Alzheimer disease, Frontotemporal dementia

    Visit site: alzint.org
  • Umbrella organisationEurope

    European Patients' Forum (EPF)

    Umbrella of European patient organisations and national patient coalitions.

    For any disease

    Visit site: eu-patient.eu
  • Umbrella organisationInternational

    International Alliance of Patients' Organizations

    Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.

    For any disease

    Visit site: iapo.org.uk

Do you know an organisation we missed? Write to support@frontlightresearch.com and we will add it.