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Support organisations

Patient groups and helplines near you, for people with a disease and for their families.

7 organisations for Haemophagocytic lymphohistiocytosis in United States

  • Patient groupInternational

    Histiocytosis Association

    Supports patients and families with histiocytic disorders, including HLH, funds research and lists expert doctors.

    For Haemophagocytic lymphohistiocytosis

    Visit site: histio.org
  • Patient groupInternational

    Jeffrey Modell Foundation

    Helps people with primary immunodeficiency find expert doctors, funds research and offers free genetic sequencing.

    For Haemophagocytic lymphohistiocytosis

    Visit site: info4pi.org
  • HelplineAll of United States

    988 Suicide & Crisis Lifeline

    US national 24/7 free and confidential lifeline for anyone in suicidal crisis or emotional distress, reachable by calling or texting 988 or by chat.

    For any disease

    Visit site: 988lifeline.org
  • Patient groupAll of United States

    MedlinePlus

    Free, easy-to-read health information service of the US National Library of Medicine (NIH) on diseases, conditions, drugs and wellness.

    For any disease

    Visit site: medlineplus.gov
  • Umbrella organisationInternational

    International Patient Organisation for Primary Immunodeficiencies (IPOPI)

    Links national patient groups for primary immunodeficiencies and works for early diagnosis and care worldwide.

    For Haemophagocytic lymphohistiocytosis

    Visit site: ipopi.org
  • Umbrella organisationEurope

    European Patients' Forum (EPF)

    Umbrella of European patient organisations and national patient coalitions.

    For any disease

    Visit site: eu-patient.eu
  • Umbrella organisationInternational

    International Alliance of Patients' Organizations

    Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.

    For any disease

    Visit site: iapo.org.uk

Do you know an organisation we missed? Write to support@frontlightresearch.com and we will add it.