Support organisations
Patient groups and helplines near you, for people with a disease and for their families.
9 organisations for Lewy body dementia in United States
Alzheimer's Association – 24/7 Helpline
Free 24/7 helpline of the Alzheimer's Association (800.272.3900) giving information and support on Alzheimer's and other dementias, with a live person by phone.
For Alzheimer disease, Frontotemporal dementia, Lewy body dementia
Visit site: alz.orgLewy Body Dementia Resource Center (LBDRC)
Founded by Norma Loeb, it offers free information, a live helpline and support groups for people with Lewy body dementia and their care partners.
For Lewy body dementia
Visit site: lewybodyresourcecenter.org
988 Suicide & Crisis Lifeline
US national 24/7 free and confidential lifeline for anyone in suicidal crisis or emotional distress, reachable by calling or texting 988 or by chat.
For any disease
Visit site: 988lifeline.org
MedlinePlus
Free, easy-to-read health information service of the US National Library of Medicine (NIH) on diseases, conditions, drugs and wellness.
For any disease
Visit site: medlineplus.gov
Alzheimer Europe
Umbrella of national Alzheimer associations in 39 countries, with a member directory.
For Alzheimer disease, Frontotemporal dementia, Lewy body dementia and 1 more
Visit site: alzheimer-europe.org
Lewy Body Dementia Association
Main LBD patient organisation (US-based): Lewy Line support, free online Lewy Learning Center, support groups, trial tracker, webinars.
For Lewy body dementia
Visit site: lbda.org
Lewy Body International
Cooperative alliance of Lewy body dementia organisations worldwide: awareness (World Lewy Body Dementia Day, 28 January), education, care-partner support via members.
For Lewy body dementia
Visit site: lewybodyint.orgEuropean Patients' Forum (EPF)
Umbrella of European patient organisations and national patient coalitions.
For any disease
Visit site: eu-patient.eu
International Alliance of Patients' Organizations
Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.
For any disease
Visit site: iapo.org.uk
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