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Support organisations

Patient groups and helplines near you, for people with a disease and for their families.

72 organisations for Long COVID and ME/CFS in all countries

  • Patient groupAll of United States

    #MEAction Network

    Find a doctor, find your group, crisis resources, handouts, MEpedia, Stop Rest Pace; branches in the US, UK and Scotland.

    For Long COVID and ME/CFS

    Visit site: meaction.net
  • Patient groupAll of Brazil

    ABEMDIS - Associação Brasileira de Encefalomielite Miálgica e Disautonomia

    Patient-founded national association for people with myalgic encephalomyelitis and dysautonomia in Brazil, offering information, free WhatsApp support groups and advocacy.

    For Long COVID and ME/CFS

    Visit site: abemdis.org.br
  • Patient groupAll of United Kingdom

    Action for M.E.

    Information and support team, free counselling and online community for young people, family support, guidance on school and university.

    For Long COVID and ME/CFS

    Visit site: actionforme.org.uk
  • Patient groupAll of Brazil

    Aliança Millions Missing Brasil (AMM Brasil)

    Brazilian association offering awareness, advocacy and support for people with ME/CFS, Long COVID and other infection-associated chronic conditions.

    For Long COVID and ME/CFS

    Visit site: ammbrasil.com.br
  • Patient groupAll of Switzerland

    Altea Long COVID Network

    Directory of long COVID clinics, doctors and therapists by canton, self-help guide, members' forum; in German, English, French, Italian.

    For Long COVID and ME/CFS

    Visit site: altea-network.com
  • Patient groupAll of United States

    American ME and CFS Society (AMMES)

    US national nonprofit serving ME/CFS patients and caregivers through support, advocacy and education, with treatment info, support group listings and a crisis fund.

    For Long COVID and ME/CFS

    Visit site: ammes.org
  • Patient groupAll of New Zealand

    ANZMES – Associated New Zealand Myalgic Encephalomyelitis Society

    Associated New Zealand Myalgic Encephalomyelitis Society (ANZMES): patient organisation in New Zealand supporting people affected by ME/CFS and long COVID; member of the World ME Alliance.

    For Long COVID and ME/CFS

    Visit site: anzmes.org.nz
  • Patient groupAll of Lithuania

    Asociacija „Savarankiškas gyvenimas“

    Lithuanian association founded in 2017 for independent living of people with disabilities, the EMEA member for ME/CFS.

    For Long COVID and ME/CFS

    Visit site: savarankiskasgyvenimas.lt
  • Patient groupAll of Spain

    Asociación de Personas con Encefalomielitis Miálgica (ONG-PEM)

    Spanish association advocating for and supporting people with myalgic encephalomyelitis.

    For Long COVID and ME/CFS

    Visit site: ongpem.org
  • Patient groupAll of France

    Association #ApresJ20 - Covid Long France

    Patient association: guides for patients and families, peer support, rights (ALD, disability), work issues, symptom-tracking app, research participation. French member of Long Covid Europe.

    For Long COVID and ME/CFS

    Visit site: apresj20.fr
  • Patient groupAll of United States

    Bateman Horne Center

    Non-profit ME/CFS and long COVID clinic (application and annual fee) plus free clinical care guide, crash survival guide, state resource directory, support groups.

    For Long COVID and ME/CFS

    Visit site: batemanhornecenter.org
  • Patient groupAll of Netherlands

    C-support

    Individual support for people with long-lasting COVID complaints. Closes at the end of 2026: finishing current cases; training for professionals continues.

    For Long COVID and ME/CFS

    Visit site: c-support.nu
  • Patient groupAll of Italy

    CFS/ME Associazione Italiana ODV

    Volunteer ME/CFS association since 1991 (based at CRO Aviano): guides, FAQ, publications, awareness and research news. Email cfs@cro.it.

    For Long COVID and ME/CFS

    Visit site: stanchezzacronica.it
  • Patient groupAll of United States

    COVID-19 Longhauler Advocacy Project (C19LAP)

    US patient-led nonprofit serving people with Long COVID and their families through advocacy, education, resources, chapters and support.

    For Long COVID and ME/CFS

    Visit site: longhauler-advocacy.org
  • Patient groupAll of Germany

    Deutsche Gesellschaft fur ME/CFS e.V.

    Hamburg-based ME/CFS association: plain-language information (PEM, pacing, orthostatic intolerance), FAQ incl. children and social-law questions, long COVID news, advocacy.

    For Long COVID and ME/CFS

    Visit site: mecfs.de
  • Patient groupAll of Slovenia

    Društvo bolnikov ZEBRA

    Slovenian non-profit for research, advocacy and support for people with ME/CFS and related chronic conditions.

    For Long COVID and ME/CFS

    Visit site: drustvobolnikovzebra.si
  • Patient groupAll of Australia

    Emerge Australia

    Emerge Australia: patient organisation in Australia supporting people affected by ME/CFS and long COVID; member of the World ME Alliance.

    For Long COVID and ME/CFS

    Visit site: emerge.org.au
  • Patient groupAll of Germany

    Fatigatio e.V. - Bundesverband ME/CFS

    National ME/CFS patient association: 15 regional self-help groups, phone team, social-law help with applications, information booklets, annual conference (14 Nov 2026, Kassel and online).

    For Long COVID and ME/CFS

    Visit site: fatigatio.de
  • Patient groupAll of Poland

    Fundacja ME/CFS Polska

    Polish foundation for people with ME/CFS and Long COVID; awareness, education and advocacy.

    For Long COVID and ME/CFS

    Visit site: mecfs.pl
  • Patient groupAll of United Kingdom

    Invest in ME Research

    UK charity run by patients and carers funding biomedical ME research and education.

    For Long COVID and ME/CFS

    Visit site: investinme.org
  • Patient groupAll of Ireland

    Irish M.E. Trust

    Irish trust founded in 1989 providing information and counselling to people affected by ME.

    For Long COVID and ME/CFS

    Visit site: imet.ie
  • Patient groupAll of Czechia

    Klub pacientů ME/CFS

    Czech volunteer-run ME/CFS patients club.

    For Long COVID and ME/CFS

    Visit site: me-cfs.eu
  • Patient groupAll of Liechtenstein

    Kontaktstelle für Selbsthilfegruppen (KoSe) – Amt für Soziale Dienste

    Government contact point that sets up and supports self-help groups in Liechtenstein, incl. groups for depression, obesity, ME/CFS and Parkinson’s disease.

    For Depression, Obesity, Long COVID and ME/CFS and 1 more

    Visit site: llv.li
  • Patient groupAll of Austria

    Long Covid Austria

    Patient initiative: information for patients and relatives, list of contact points, closed Facebook peer group, myth-busting projects. Member of Long Covid Europe.

    For Long COVID and ME/CFS

    Visit site: longcovidaustria.at
  • Patient groupAll of Belgium

    Long Covid Belgium

    Belgian French-speaking patient association for people with long COVID.

    For Long COVID and ME/CFS

    Visit site: longcovidbelgium.be
  • Patient groupAll of United States

    Long COVID Campaign

    Patient-led US nonprofit advocating for tests, treatments, research and programs for people living with Long COVID, with ways to get involved.

    For Long COVID and ME/CFS

    Visit site: longcovidcampaign.org
  • Patient groupAll of Germany

    Long COVID Deutschland (initiative)

    Patient-run initiative and directory: long COVID clinics, rehab, self-help groups, guides and research, advocacy. German member of Long Covid Europe.

    For Long COVID and ME/CFS

    Visit site: longcoviddeutschland.org
  • Patient groupAll of United States

    Long COVID Justice

    Project by and for chronically ill and disabled people facing Long COVID, offering advocacy, a resource hub, webinars and support groups.

    For Long COVID and ME/CFS

    Visit site: longcovidjustice.org
  • Patient groupAll of United Kingdom

    Long Covid Kids

    UK charity supporting children and young people with long COVID and their families.

    For Long COVID and ME/CFS

    Visit site: longcovidkids.org
  • Patient groupAll of Netherlands

    Long Covid Nederland

    Dutch long COVID patient initiative sharing knowledge and news and campaigning for patients.

    For Long COVID and ME/CFS

    Visit site: longcovidnederland.wordpress.com
  • Patient groupAll of United Kingdom

    Long Covid Support (Long Covid UK)

    Charity set up by and for people with long COVID: information and support services, peer Facebook group (about 68,000 members), research involvement, campaigning.

    For Long COVID and ME/CFS

    Visit site: longcovid.org
  • Patient groupAll of Germany

    Lost Voices Stiftung

    German foundation for people with ME/CFS offering awareness work, research funding, advocacy and a self-help network in Hannover.

    For Long COVID and ME/CFS

    Visit site: lost-voices-stiftung.org
  • Patient groupAll of United States

    Massachusetts ME/CFS & FM Association

    Massachusetts non-profit serving people with ME/CFS, fibromyalgia and Long COVID, offering membership, peer support, a provider database, events and advocacy.

    For Long COVID and ME/CFS

    Visit site: massmecfs.org
  • Patient groupAll of United Kingdom

    ME Association

    ME Connect freephone support line (Mon-Fri 10-17, Thu to 21, Sat 10-12) with signposting to local support groups; ME and long COVID information and research news.

    For Long COVID and ME/CFS

    Visit site: meassociation.org.uk
  • Patient groupAll of Iceland

    ME félag Íslands

    Icelandic non-profit protecting the interests of people living with ME.

    For Long COVID and ME/CFS

    Visit site: mefelag.is
  • Patient groupAll of Denmark

    ME Foreningen

    Danish independent non-profit ME patient association founded in 1992.

    For Long COVID and ME/CFS

    Visit site: me-foreningen.dk
  • Patient groupAll of Israel

    ME/CFS Israel

    ME/CFS Israel: patient organisation in Israel supporting people affected by ME/CFS and long COVID; member of the World ME Alliance.

    For Long COVID and ME/CFS

    Visit site: mecfsisrael.org
  • Patient groupAll of Germany

    ME/CFS-Selbsthilfe-Netzwerk Sachsen-Anhalt

    Network of 13 self-help groups in 9 towns in Saxony-Anhalt for people with ME/CFS, Post-COVID, Post-Vac and PoTS and their relatives.

    For Long COVID and ME/CFS

    Visit site: mecfs-netzwerk-lsa.info
  • Patient groupAll of Netherlands

    ME/cvs Vereniging

    Patient organisation for ME/cvs: helpline (Mon 19-20, Wed 11-13, Fri 10-12.30), advice on care, education and benefits, magazine, advocacy.

    For Long COVID and ME/CFS

    Visit site: me-cvsvereniging.nl
  • Patient groupAll of Canada

    ME|FM Society of BC

    British Columbia non-profit formed to help and support patients with myalgic encephalomyelitis (ME/CFS) and fibromyalgia.

    For Long COVID and ME/CFS

    Visit site: mefm.bc.ca
  • Patient groupAll of Netherlands

    MECVS Nederland

    Dutch patient organisation for everyone with ME/CFS and their supporters, active for over 35 years.

    For Long COVID and ME/CFS

    Visit site: mecvs.nl
  • Patient groupAll of France

    Millions Missing France

    ME/CFS association: listening and reliable information, referral to professionals and disability aid (MDPH, RQTH), pacing guidance, online and in-person support groups.

    For Long COVID and ME/CFS

    Visit site: millionsmissing.fr
  • Patient groupAll of Portugal

    Myos – Associação Nacional contra a Fibromialgia e Síndrome de Fadiga Crónica

    Portuguese national patient association for fibromyalgia and chronic fatigue syndrome / myalgic encephalomyelitis, providing information and support.

    For Long COVID and ME/CFS

    Visit site: myos.pt
  • Patient groupAll of Canada

    National ME/FM Action Network

    Canadian registered non-profit dedicated to advancing recognition, education and support for people with myalgic encephalomyelitis (ME/CFS) and fibromyalgia.

    For Long COVID and ME/CFS

    Visit site: mefmaction.com
  • Patient groupAll of Germany

    NichtGenesenKids e.V.

    Nationwide German non-profit supporting families, children, youth and adults with ME/CFS, Long COVID and Post-Vac via self-help meetings, information and advocacy.

    For Long COVID and ME/CFS

    Visit site: nichtgenesenkids.de
  • Patient groupAll of Norway

    Norges ME-forening

    Norwegian patient organisation representing over 5,000 ME patients since 1987.

    For Long COVID and ME/CFS

    Visit site: me-foreningen.no
  • Patient groupAll of Austria

    Osterreichische Gesellschaft fur ME/CFS (OG ME/CFS)

    Information on ME/CFS and post-COVID, guide for home care of severe ME/CFS, networking, support fund for patients, advocacy. Contact contact@mecfs.at.

    For Long COVID and ME/CFS

    Visit site: mecfs.at
  • Patient groupAll of Netherlands

    PostCovid NL (Longfonds)

    Patient organisation for long-lasting complaints after COVID: information, peer contact (one-to-one or groups), online forum, theme meetings, symptom tips.

    For Long COVID and ME/CFS

    Visit site: postcovidnl.nl
  • Patient groupAll of Sweden

    Riksförbundet för ME-patienter (RME)

    Swedish independent membership organisation improving the situation of people with ME.

    For Long COVID and ME/CFS

    Visit site: rme.nu
  • Patient groupAll of Sri Lanka

    Sahana South Asia

    Regional initiative bringing together patients, caregivers, clinicians and researchers around post-viral fatigue, Long COVID and ME/CFS, with a Sri Lanka and South Asia focus.

    For Long COVID and ME/CFS

    Visit site: sahanasa.wordpress.com
  • Patient groupAll of United States

    Solve M.E.

    Patient and caregiver resources, find-a-doctor guide, clinical trial list, unhide patient registry, research grants, advocacy for ME/CFS and long COVID.

    For Long COVID and ME/CFS

    Visit site: solvecfs.org
  • Patient groupAll of Netherlands

    Steungroep ME en Arbeidsongeschiktheid

    Dutch support group for people with ME/CFS facing work disability issues.

    For Long COVID and ME/CFS

    Visit site: steungroep.nl
  • Patient groupAll of Finland

    Suomen lääketieteellinen ME/CFS-yhdistys

    Finnish ME/CFS association working for better care and offering patients and families tools such as school support materials.

    For Long COVID and ME/CFS

    Visit site: slme.fi
  • Patient groupAll of Finland

    Suomen ME/CFS-yhdistys (SMEY)

    Finnish association founded in 2013 to help and support ME/CFS patients.

    For Long COVID and ME/CFS

    Visit site: smey.fi
  • Patient groupAll of Sweden

    Svenska Covidföreningen

    Swedish patient association for people with long COVID.

    For Long COVID and ME/CFS

    Visit site: covidforeningen.se
  • Patient groupAll of South Africa

    The ME CFS Foundation South Africa

    The ME CFS Foundation South Africa: foundation in South Africa supporting people affected by ME/CFS and long COVID; member of the World ME Alliance.

    For Long COVID and ME/CFS

    Visit site: mecfssa.org
  • Patient groupAll of Croatia

    Udruga za oboljele od ME, disautonomije i fibromialgije

    Croatian association supporting patients with ME/CFS, dysautonomia and fibromyalgia and their families.

    For Long COVID and ME/CFS

    Visit site: mdf.hr
  • Patient groupAll of Serbia

    Udruženje osoba sa sindromom hroničnog umora Srbije (SHUKS)

    Serbian association of people with chronic fatigue syndrome (ME/CFS), a full member of the European ME Alliance; brings patients and professionals together and raises awareness.

    For Long COVID and ME/CFS

    Visit site: shuks-udruzenje.rs
  • Patient groupAll of Switzerland

    Verein Long Covid Schweiz

    Patient association: peer advice, multilingual Facebook group, information on symptoms and care, guides, insurance information, section for children, advocacy.

    For Long COVID and ME/CFS

    Visit site: long-covid-info.ch
  • Patient groupAll of Switzerland

    Verein ME/CFS Schweiz

    Information platform, peer support and networking, members' regional groups and coaching, events (e.g. social insurance, 11 Nov 2026), advocacy.

    For Long COVID and ME/CFS

    Visit site: mecfs.ch
  • Patient groupAll of Bulgaria

    МЕ/СХУ България

    Bulgarian group raising awareness of ME/CFS and supporting people with the condition.

    For Long COVID and ME/CFS

    Visit site: opencollective.com
  • Patient groupAll of Japan

    筋痛性脳脊髄炎の会

    Japan ME Association (JMEA): patient organisation in Japan supporting people affected by ME/CFS and long COVID; member of the World ME Alliance.

    For Long COVID and ME/CFS

    Visit site: mecfsjapan.com
  • Umbrella organisationAll of Spain

    CONFESQ – Coalición Nacional de Fibromialgia, Síndrome de Fatiga Crónica, Electrohipersensibilidad y Sensibilidad Química Múltiple

    Spanish national coalition of over 60 patient associations for fibromyalgia, ME/CFS and related conditions.

    For Long COVID and ME/CFS

    Visit site: confesq.org
  • Umbrella organisationAll of Andorra

    Federació Andorrana d'Associacions de Persones amb Discapacitat (FAAD)

    FAAD federates Andorran disability and patient associations, incl. AAMA (Alzheimer's), TRANAem (multiple sclerosis) and AMARE (rheumatic, ME/CFS).

    For Alzheimer disease, Multiple sclerosis, Long COVID and ME/CFS and 1 more

    Visit site: faad.ad
  • Umbrella organisationAll of United States

    Long COVID Alliance

    Network of patient advocates, scientists and experts (1,500+ members): patient resources, research library, clinical trials list, advocacy.

    For Long COVID and ME/CFS

    Visit site: longcovidalliance.org
  • Umbrella organisationEurope

    European Federation of Neurological Associations (EFNA)

    Umbrella of 21 pan-European neurology patient groups; map of European neurology patient organisations.

    For Alzheimer disease, Parkinson disease, Multiple sclerosis and 1 more

    Visit site: efna.net
  • Umbrella organisationEurope

    European ME Alliance (EMEA)

    Grouping of national ME organisations in about 20 countries: ME guidelines, fact sheets, country member pages; leads patient involvement in the EU DISCOVER-ME project.

    For Long COVID and ME/CFS

    Visit site: euro-me.org
  • Umbrella organisationEurope

    European ME Coalition

    Patient- and carer-led European ME/CFS advocacy for biomedical research funding (EU Parliament petition and resolution).

    For Long COVID and ME/CFS

    Visit site: europeanmecoalition.com
  • Umbrella organisationEurope

    Long COVID Europe

    Patient-run European network of Long COVID associations: shares information and contacts, pushes for recognition, patient-focused research and rehabilitation; WHO/Europe collaborating partner.

    For Long COVID and ME/CFS

    Visit site: longcovideurope.org
  • Umbrella organisationInternational

    World ME Alliance

    Global alliance of national ME/CFS organisations (formerly IAfME): coordinated policy dialogue, shared advocacy resources; also covers post-COVID conditions.

    For Long COVID and ME/CFS

    Visit site: worldmealliance.org
  • Umbrella organisationEurope

    European Patients' Forum (EPF)

    Umbrella of European patient organisations and national patient coalitions.

    For any disease

    Visit site: eu-patient.eu
  • Umbrella organisationInternational

    International Alliance of Patients' Organizations

    Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.

    For any disease

    Visit site: iapo.org.uk

Do you know an organisation we missed? Write to support@frontlightresearch.com and we will add it.