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Support organisations

Patient groups and helplines near you, for people with a disease and for their families.

68 organisations for Macular degeneration in all countries

  • Patient groupAll of Portugal

    ACAPO – Associação dos Cegos e Amblíopes de Portugal

    Association of the Blind and Partially Sighted of Portugal (EBU member), promoting the social inclusion of people with visual impairment regardless of cause, incl. AMD, glaucoma, diabetic retinopathy and RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: acapo.pt
  • Patient groupAll of Germany

    AMD-Netz e.V.

    Non-profit association for people with macular degeneration, offering information, a counselling hotline, patient events and practical help.

    For Macular degeneration

    Visit site: amd-netz.de
  • Patient groupAll of United States

    American Macular Degeneration Foundation

    US nonprofit helping people learn about and live with age-related macular degeneration, and supporting research.

    For Macular degeneration

    Visit site: macular.org
  • Patient groupAll of Spain

    Asociación Mácula Retina

    Mácula Retina (Retina International candidate member): Spanish non-profit for patients and families with macular and retinal diseases (AMD, RP, Stargardt, diabetic retinopathy); information, advocacy, rehabilitation.

    For Macular degeneration, Retinitis pigmentosa, Diabetic eye disease

    Visit site: macula-retina.es
  • Patient groupAll of Romania

    Asociația Nevăzătorilor din România (ANR)

    Romanian Association of the Blind (EBU member), the national organisation of blind and partially sighted people; serves people with sight loss regardless of cause, incl. AMD, glaucoma, diabetic retinopathy and RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: anvr.ro
  • Patient groupAll of France

    Association Retina France

    Retina France (Retina International member), non-profit of public utility since 1998: informs and assists patients with retinal degeneration, incl. RP and AMD, and funds eye-disease research.

    For Retinitis pigmentosa, Macular degeneration

    Visit site: retina.fr
  • Patient groupAll of Iceland

    Blindrafélagið

    Icelandic association of blind and visually impaired people (EBU member; also Iceland's Retina International member); rights and support organisation for all people with sight loss, incl. AMD, glaucoma, DR, RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: blind.is
  • Patient groupAll of United States

    BrightFocus Foundation

    US nonprofit that funds research and provides public information on Alzheimer's disease, macular degeneration and glaucoma.

    For Alzheimer disease, Macular degeneration, Glaucoma

    Visit site: brightfocus.org
  • Patient groupAll of Canada

    CNIB Foundation

    Non-profit organization delivering programs and advocacy for people who are blind or partially sighted across Canada.

    For Macular degeneration, Glaucoma, Diabetic eye disease

    Visit site: cnib.ca
  • Patient groupAll of Denmark

    Dansk Blindesamfund

    Danish national association of blind and partially sighted people (EBU member) offering counselling, networks and activities to everyone with sight loss regardless of cause (incl. AMD, glaucoma, diabetic retinopathy, RP).

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: blind.dk
  • Patient groupAll of Ireland

    Fighting Blindness

    Fighting Blindness (Retina International member): patient-led Irish charity funding sight-loss research and offering counselling and support to people with vision impairment, incl. inherited retinal disease and AMD.

    For Retinitis pigmentosa, Macular degeneration

    Visit site: fightingblindness.ie
  • Patient groupAll of Canada

    Fighting Blindness Canada

    National charity funding research into blinding eye diseases and providing eye health information, incl. retinitis pigmentosa, AMD, glaucoma and diabetic retinopathy.

    For Retinitis pigmentosa, Macular degeneration, Glaucoma and 1 more

    Visit site: fightingblindness.ca
  • Patient groupAll of Luxembourg

    Fondation Lëtzebuerger Blannevereenegung (FLB)

    Luxembourg foundation (EBU member) working for over 50 years for the welfare of blind and visually impaired people; serves all causes of sight loss, incl. AMD, glaucoma, diabetic retinopathy and RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: flb.lu
  • Patient groupAll of United States

    Foundation Fighting Blindness

    US nonprofit driving research for inherited retinal diseases such as retinitis pigmentosa and age-related macular degeneration, with patient information.

    For Retinitis pigmentosa, Macular degeneration

    Visit site: fightingblindness.org
  • Patient groupAll of Latvia

    Latvijas Neredzīgo biedrība

    Latvian Society of the Blind (EBU member), the national organisation of blind and partially sighted people; serves people with sight loss regardless of cause, incl. AMD, glaucoma, diabetic retinopathy and RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: lnbiedriba.lv
  • Patient groupAll of Lithuania

    Lietuvos aklųjų ir silpnaregių sąjunga (LASS)

    Lithuanian Association of the Blind and Visually Handicapped (EBU member); national organisation supporting blind and partially sighted people regardless of cause, incl. AMD, glaucoma, diabetic retinopathy and RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: lass.lt
  • Patient groupAll of Belgium

    Ligue Braille / Brailleliga

    Belgian non-profit (EBU member) supporting blind and partially sighted people with services and guidance; serves people with sight loss regardless of cause, incl. AMD, glaucoma, diabetic retinopathy and RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: braille.be
  • Patient groupAll of United States

    Macular Degeneration Association

    US non-profit offering people with age-related macular degeneration education, videos, brochures, a newsletter, conferences and coping resources.

    For Macular degeneration

    Visit site: macularhope.org
  • Patient groupAll of New Zealand

    Macular Degeneration New Zealand

    Macular Degeneration New Zealand: non-profit organisation in New Zealand supporting people affected by macular degeneration.

    For Macular degeneration

    Visit site: mdnz.org.nz
  • Patient groupAll of Australia

    Macular Disease Foundation Australia

    Macular Disease Foundation Australia: non-profit organisation in Australia supporting people affected by macular degeneration.

    For Macular degeneration, Diabetic eye disease

    Visit site: mdfoundation.com.au
  • Patient groupAll of United Kingdom

    Macular Society

    Macular Society: UK charity for people with macular disease (incl. AMD), offering advice, support services, a helpline and research funding; listed (as Macular Disease Society) as a UK member of AMD Alliance International.

    For Macular degeneration

    Visit site: macularsociety.org
  • Patient groupAll of United States

    MD Support (Macular Degeneration Support Inc)

    US nonprofit offering free information, personal assistance, guides and support-group resources for people with macular degeneration and related retinal diseases.

    For Macular degeneration

    Visit site: mdsupport.org
  • Patient groupAll of Norway

    Norges Blindeforbund

    Norwegian service and interest organisation for blind and partially sighted people (EBU member) with local branches; serves everyone with sight loss regardless of cause, incl. AMD, glaucoma, DR and RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: blindeforbundet.no
  • Patient groupAll of Netherlands

    Oogvereniging

    Eye Association Netherlands: patient and interest organisation for all people with an eye condition (EBU member, Retina International member, on the EGS EbE list), incl. AMD, glaucoma, diabetic retinopathy and RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: oogvereniging.nl
  • Patient groupAll of Spain

    Organización Nacional de Ciegos Españoles (ONCE)

    Spanish National Organisation of the Blind (EBU member), working for the autonomy and inclusion of blind and visually impaired people via education, employment and support, regardless of cause (incl. AMD, glaucoma, DR, RP).

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: once.es
  • Patient groupAll of Poland

    Polski Związek Niewidomych (PZN)

    Polish Association of the Blind (EBU member), the national organisation of blind and partially sighted people with regional branches; serves all causes of sight loss, incl. AMD, glaucoma, diabetic retinopathy, RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: pzn.org.pl
  • Patient groupAll of United States

    Prevent Blindness

    US volunteer eye health and safety organization offering information and programs on glaucoma, macular degeneration, diabetic retinopathy and more.

    For Glaucoma, Macular degeneration, Diabetic eye disease

    Visit site: preventblindness.org
  • Patient groupAll of Germany

    PRO RETINA Deutschland e.V.

    PRO RETINA Germany (Retina International member), founded 1977 as the German RP association: national self-help organisation with ~50 regional groups for people with retinal degenerations incl. RP and AMD.

    For Retinitis pigmentosa, Macular degeneration

    Visit site: pro-retina.de
  • Patient groupAll of Brazil

    Retina Brasil

    Retina Brazil: patient organisation in Brazil supporting people affected by retinitis pigmentosa and macular degeneration; member of Retina International.

    For Retinitis pigmentosa, Macular degeneration

    Visit site: retinabrasil.org.br
  • Patient groupAll of Italy

    Retina Italia Onlus

    Retina Italia (Retina International member): national association against hereditary retinal dystrophies, promoting research on retinitis pigmentosa, macular degenerations and other causes of low vision.

    For Retinitis pigmentosa, Macular degeneration

    Visit site: retinaitalia.org
  • Patient groupAll of Germany

    Retina plus e.V.

    Retina plus e.V. (Retina International candidate member): non-profit expert and self-help network for people with sight loss from retinal diseases; information, counselling, aids, research and podcasts.

    For Macular degeneration, Retinitis pigmentosa, Diabetic eye disease

    Visit site: retinaplus.de
  • Patient groupAll of South Africa

    Retina South Africa

    Retina South Africa: patient organisation in South Africa supporting people affected by retinitis pigmentosa and macular degeneration; member of Retina International.

    For Retinitis pigmentosa, Macular degeneration

    Visit site: retinasa.org.za
  • Patient groupAll of Switzerland

    Retina Suisse

    Retina Suisse (Retina International member): self-help organisation for people with retinitis pigmentosa, Usher syndrome, macular degeneration and similar retinal diseases; advice, peer support and research.

    For Retinitis pigmentosa, Macular degeneration

    Visit site: retina.ch
  • Patient groupAll of United Kingdom

    Royal National Institute of Blind People (RNIB)

    Royal National Institute of Blind People (EBU member), UK charity supporting blind and partially sighted people with advice, services and a helpline, regardless of cause (incl. AMD, glaucoma, DR, RP).

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: rnib.org.uk
  • Patient groupAll of Switzerland

    Schweizerischer Blinden- und Sehbehindertenverband (SBV)

    Swiss Federation of the Blind and Visually Impaired (in the EBU Swiss delegation), the largest self-help organisation of blind and visually impaired people in Switzerland; covers all causes of sight loss (AMD, glaucoma, DR, RP).

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: sbv-fsa.ch
  • Patient groupAll of Switzerland

    Schweizerischer Blindenbund (SBb)

    Swiss Union of the Blind (in the EBU Swiss delegation), a self-help organisation of blind and visually impaired people; serves people with sight loss regardless of cause, incl. AMD, glaucoma, DR and RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: blind.ch
  • Patient groupAll of Albania

    Shoqata e të Verbërve të Shqipërisë

    Albania's national association of blind people (EBU member), founded 1991 in Tirana; serves people with blindness and severe sight loss regardless of cause, including AMD, glaucoma, diabetic retinopathy and RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: shvsh.org.al
  • Patient groupAll of Czechia

    Sjednocená organizace nevidomých a slabozrakých ČR (SONS ČR)

    Czech national organisation of blind and partially sighted people (EBU member); advice, rehabilitation and advocacy for everyone with sight loss regardless of cause, incl. AMD, glaucoma, diabetic retinopathy, RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: sons.cz
  • Patient groupAll of Poland

    Stowarzyszenie Retina AMD Polska

    Retina AMD Polska (Retina International associate member), association founded 1998 to protect Poles from blindness: information and advocacy for AMD, RP, Stargardt, diabetic retinopathy/DME and other retinal diseases.

    For Macular degeneration, Retinitis pigmentosa, Diabetic eye disease

    Visit site: retinaamd.org.pl
  • Patient groupAll of Sweden

    Synskadades Riksförbund (SRF)

    Swedish Association of the Visually Impaired (EBU member) working for the independence and participation of people with visual impairment regardless of cause, and supporting research (incl. AMD, glaucoma, DR, RP).

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: srf.nu
  • Patient groupAll of Slovakia

    Únia nevidiacich a slabozrakých Slovenska (ÚNSS)

    Slovak Blind and Partially Sighted Union (EBU member); national organisation offering advice, rehabilitation and advocacy to all people with sight loss regardless of cause, incl. AMD, glaucoma, DR and RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: unss.sk
  • Patient groupAll of Italy

    Unione Italiana dei Ciechi e degli Ipovedenti ETS-APS (UICI)

    Italian Union of the Blind and Partially Sighted (EBU member), national association with provincial sections; represents and supports everyone with sight loss regardless of cause (incl. AMD, glaucoma, DR, RP).

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: uiciechi.it
  • Patient groupAll of Ireland

    Vision Ireland

    Vision Ireland (formerly NCBI), the national charity for people with sight loss (EBU member); services and support regardless of cause, incl. AMD, glaucoma, diabetic retinopathy and RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: vi.ie
  • Patient groupAll of Greece

    Πανελλήνια Ένωση Αμφιβληστροειδοπαθών (Π.Ε.Α.)

    Hellenic Retina Society (P.E.A.), listed by Retina International: Greek association of blind and partially sighted people with inherited retinal degenerations, macular degeneration and optic-nerve diseases.

    For Retinitis pigmentosa, Macular degeneration

    Visit site: retina.gr
  • Patient groupAll of Greece

    Πανελλήνιος Σύνδεσμος Τυφλών (Π.Σ.Τ.)

    Panhellenic Association of the Blind (EBU member), the national organisation of blind people in Greece; serves people with sight loss regardless of cause, incl. AMD, glaucoma, diabetic retinopathy and RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: pst.gr
  • Patient groupAll of Belarus

    Белорусское товарищество инвалидов по зрению (БелТИЗ)

    Belarusian national association of visually impaired people (EBU member); serves people with sight loss regardless of cause, so also those with AMD, glaucoma, diabetic retinopathy or RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: beltiz.by
  • Patient groupAll of Bulgaria

    Съюз на слепите в България

    National union of blind people in Bulgaria (EBU member); represents and supports people who are blind or partially sighted regardless of cause, incl. AMD, glaucoma, diabetic retinopathy and RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: ssb-bg.net
  • Patient groupAll of Ukraine

    Українське товариство сліпих (УТОС)

    Ukrainian Association of the Blind (EBU member), all-Ukrainian public organisation of blind and visually impaired people; serves people with sight loss regardless of cause, incl. AMD, glaucoma, DR and RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: cputos.org.ua
  • Patient groupAll of Israel

    נמ"ג

    NAMAG – Association of AMD Patients in Israel: patient organisation in Israel supporting people affected by macular degeneration and glaucoma; member of Retina International.

    For Macular degeneration, Glaucoma

    Visit site: namag.org.il
  • Patient groupAll of Hong Kong

    香港視網膜病變協會

    Patient self-help organisation in Hong Kong for people with inherited retinal degeneration, including retinitis pigmentosa; offers support, rehabilitation and information.

    For Retinitis pigmentosa, Macular degeneration

    Visit site: retina.org.hk
  • Umbrella organisationAll of Austria

    Blinden- und Sehbehindertenverband Österreich (BSVÖ)

    Austrian federation of blind and partially sighted people (EBU member) with regional member organisations; advises and supports everyone with sight loss regardless of cause (incl. AMD, glaucoma, diabetic retinopathy, RP).

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: blindenverband.at
  • Umbrella organisationAll of France

    Collectif Français du Handicap Visuel (CFHV)

    French collective of visual-impairment associations (EBU national member) defending the rights of blind and partially sighted people regardless of cause, incl. AMD, glaucoma, diabetic retinopathy and RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: collectifhandicapvisuel.fr
  • Umbrella organisationAll of Germany

    Deutscher Blinden- und Sehbehindertenverband e.V. (DBSV)

    German self-help federation (EBU member) of people affected or threatened by sight loss, with regional member associations; serves all causes of sight loss, incl. AMD, glaucoma, diabetic retinopathy and RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: dbsv.org
  • Umbrella organisationAll of Estonia

    Eesti Pimedate Liit

    Estonian Blind Union (EBU member), the national union of blind people's societies; represents blind and partially sighted people regardless of cause, incl. AMD, glaucoma, diabetic retinopathy and RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: pimedateliit.ee
  • Umbrella organisationAll of Croatia

    Hrvatski savez slijepih

    Croatian national union of associations of blind people (EBU member); represents all blind and partially sighted people regardless of cause, including those with AMD, glaucoma, diabetic retinopathy or RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: savez-slijepih.hr
  • Umbrella organisationAll of Hungary

    Magyar Vakok és Gyengénlátók Országos Szövetsége (MVGYOSZ)

    Hungarian Federation of the Blind and Partially Sighted (EBU member), representing visually impaired people for 100+ years with member associations; serves all causes of sight loss, incl. AMD, glaucoma, DR, RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: mvgyosz.hu
  • Umbrella organisationAll of Finland

    Näkövammaisten liitto ry

    Finnish Federation of the Visually Impaired (EBU member) with regional member associations; services, advice and advocacy for all people with sight loss regardless of cause (incl. AMD, glaucoma, diabetic retinopathy, RP).

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: nakovammaistenliitto.fi
  • Umbrella organisationAll of Serbia

    Savez slepih Srbije

    Union of the Blind of Serbia (EBU member), the national union of local blind organisations; represents blind and partially sighted people regardless of cause, incl. AMD, glaucoma, diabetic retinopathy and RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: savezslepih.org.rs
  • Umbrella organisationAll of Montenegro

    Savez slijepih Crne Gore

    Union of the Blind of Montenegro (EBU member), the national union of local blind associations; represents blind and partially sighted people regardless of cause, incl. AMD, glaucoma, diabetic retinopathy and RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: ss-cg.org
  • Umbrella organisationAll of Bosnia & Herzegovina

    Savez slijepih Herceg-Bosne

    Union of the Blind of Herceg-Bosna (Mostar), the organisation linked by EBU for Bosnia and Herzegovina; represents blind and visually impaired people regardless of cause (incl. AMD, glaucoma, diabetic retinopathy, RP).

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: savezshb.org
  • Umbrella organisationAll of Türkiye

    Türkiye Körler Federasyonu

    Federation of the Blind of Turkey (EBU member), national federation of blind people's associations; represents blind and visually impaired people regardless of cause, incl. AMD, glaucoma, diabetic retinopathy and RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: korlerfederasyonu.org.tr
  • Umbrella organisationAll of Slovenia

    Zveza društev slepih in slabovidnih Slovenije (ZDSSS)

    Union of societies of the blind and partially sighted of Slovenia (EBU member); represents all blind and partially sighted people regardless of cause, incl. AMD, glaucoma, diabetic retinopathy and RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: zveza-slepih.si
  • Umbrella organisationAll of North Macedonia

    Национален сојуз на слепите на Република Северна Македонија

    National Union of the Blind of North Macedonia (EBU member), uniting local blind associations; represents blind and partially sighted people regardless of cause, incl. AMD, glaucoma, diabetic retinopathy and RP.

    For Macular degeneration, Glaucoma, Diabetic eye disease and 1 more

    Visit site: nssrm.org.mk
  • Umbrella organisationEurope

    European Blind Union

    European umbrella of national organisations of blind and partially sighted people; advocacy on accessibility, Marrakesh Treaty, braille, mobility; news, webinars, podcasts.

    For Retinitis pigmentosa, Macular degeneration, Glaucoma

    Visit site: euroblind.org
  • Umbrella organisationInternational

    Retina International

    Global umbrella of patient organisations for inherited and acquired retinal conditions (incl. retinitis pigmentosa, AMD); condition information, patient resources, research and advocacy.

    For Retinitis pigmentosa, Macular degeneration, Diabetic eye disease

    Visit site: retina-international.org
  • Umbrella organisationInternational

    World Blind Union

    Global umbrella of organisations of blind and partially sighted people; advocacy on accessibility, Marrakesh Treaty, braille literacy, inclusive development; scholarships and awards.

    For Retinitis pigmentosa, Macular degeneration

    Visit site: wbu.ngo
  • Umbrella organisationEurope

    European Patients' Forum (EPF)

    Umbrella of European patient organisations and national patient coalitions.

    For any disease

    Visit site: eu-patient.eu
  • Umbrella organisationInternational

    International Alliance of Patients' Organizations

    Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.

    For any disease

    Visit site: iapo.org.uk

Do you know an organisation we missed? Write to support@frontlightresearch.com and we will add it.