Under construction – not a live service
Sign in

Support organisations

Patient groups and helplines near you, for people with a disease and for their families.

79 organisations for Myasthenia gravis in all countries

  • Patient group

    Association Suisse Romande Intervenant contre les Maladies neuroMusculaires (ASRIMM)

    Association for people with neuromuscular diseases in French-speaking Switzerland; offers social counselling and self-help groups, including one for myasthenia.

    For Myasthenia gravis

    Visit site: asrimm.ch
  • Patient group

    Myasthenia Gravis Association (MGA)

    Kansas City-based association offering support groups, education, new patient packets and resources for people with myasthenia gravis and their families.

    For Myasthenia gravis

    Visit site: mgassociation.org
  • Patient group

    Myasthenia Gravis Foundation of Michigan (MG-MI)

    Serves the Michigan myasthenia gravis community with patient support, support meetings, education, newsletters, a provider directory and advocacy.

    For Myasthenia gravis

    Visit site: mg-mi.org
  • Patient group

    The Myasthenia Gravis Association of Colorado (MGAC)

    Denver-based volunteer association serving people with myasthenia gravis and families through education, publications, support groups, chats and research funding.

    For Myasthenia gravis

    Visit site: 4-mga.org
  • Patient group

    The Myasthenia Gravis Association of Western Pennsylvania

    Western Pennsylvania association serving people with myasthenia gravis through support groups, a mental health toolkit, newsletters, education and events.

    For Myasthenia gravis

    Visit site: mgawpa.org
  • Patient groupAll of Brazil

    ABRAMI – Associação Brasileira de Miastenia

    Brazilian Myasthenia Association (ABRAMI): patient organisation in Brazil supporting people with myasthenia gravis and their families with information and support.

    For Myasthenia gravis

    Visit site: abrami.org.br
  • Patient groupAll of France

    AFM-Téléthon

    French patient association for people with neuromuscular diseases, including myasthenia gravis, SMA and Duchenne; member of EuMGA, SMA Europe and WDO.

    For Myasthenia gravis, Spinal muscular atrophy, Duchenne muscular dystrophy

    Visit site: afm-telethon.fr
  • Patient groupAll of Spain

    Asociación Miastenia de España (AMES)

    Patient association in Spain for people with myasthenia gravis and their families; member of EuMGA.

    For Myasthenia gravis

    Visit site: miastenia.ong
  • Patient groupAll of Romania

    Asociația Națională Miastenia Gravis România

    Patient association in Romania for people with myasthenia gravis and their families; member of EuMGA.

    For Myasthenia gravis

    Visit site: miastenie.ro
  • Patient groupAll of Belgium

    Association Belge contre les Maladies neuro-Musculaires (ABMM)

    Patient association in Belgium for people with neuromuscular diseases, including myasthenia gravis and their families; member of EuMGA.

    For Myasthenia gravis

    Visit site: abmm.be
  • Patient groupAll of France

    Association des Myasthéniques Isolés (AMIS)

    Patient association in France for people with myasthenia gravis and their families; member of EuMGA.

    For Myasthenia gravis

    Visit site: myasthenie.fr
  • Patient groupAll of Italy

    Associazione Italiana Miastenia e Malattie Immunodegenerative (AIM)

    Patient association in Italy for people with myasthenia gravis and their families; member of EuMGA.

    For Myasthenia gravis

    Visit site: miastenia.it
  • Patient groupAll of Brazil

    Casa Hunter

    Casa Hunter: patient organisation in Brazil supporting people with rare diseases; member of RDI.

    For ALS (motor neurone disease), Amyloidosis, Cystic fibrosis and 16 more

    Visit site: casahunter.org.br
  • Patient groupAll of United States

    Conquer Myasthenia Gravis

    US nonprofit helping myasthenia gravis patients and families with support, education and community.

    For Myasthenia gravis

    Visit site: myastheniagravis.org
  • Patient groupAll of Germany

    Deutsche Myasthenie Gesellschaft e.V.

    Patient association in Germany for people with myasthenia gravis and their families; member of EuMGA.

    For Myasthenia gravis

    Visit site: dmg.online
  • Patient groupAll of Estonia

    Eesti Lihasehaigete Selts

    Estonian society for people with neuromuscular diseases and their families; provides information, support and an ALS/MND fund.

    For Duchenne muscular dystrophy, Spinal muscular atrophy, Myasthenia gravis and 1 more

    Visit site: els.ee
  • Patient groupAll of Norway

    Foreningen for Muskelsyke

    Patient association in Norway for people with neuromuscular diseases, including myasthenia gravis and their families; member of EuMGA.

    For Myasthenia gravis, Pompe disease, Spinal muscular atrophy and 1 more

    Visit site: ffm.no
  • Patient groupAll of Colombia

    Fundación Colombiana para Enfermedades Huérfanas (FUNCOLEHF)

    Fundación Colombiana para Enfermedades Huérfanas (FUNCOLEHF): foundation in Colombia supporting people with rare diseases; member of RDI.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: enfermedadeshuerfanas.org.co
  • Patient groupAll of United States

    Genetic and Rare Diseases Information Center

    NIH information center (GARD) providing reliable information on genetic and rare diseases to patients and families via website and contact center.

    For Glioblastoma, Acute myeloid leukemia, Hodgkin lymphoma and 32 more

    Visit site: rarediseases.info.nih.gov
  • Patient groupAll of Brazil

    Instituto Vidas Raras

    Rare Lives Institute: patient organisation in Brazil supporting people with rare diseases; member of RDI, IPA.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: vidasraras.org.br
  • Patient groupAll of Malaysia

    Malaysian Rare Disorders Society (MRDS)

    Malaysian Rare Disorders Society (MRDS): patient organisation in Malaysia supporting people with rare diseases; member of RDI.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: mrds.org.my
  • Patient groupAll of Iceland

    MG félag Íslands

    Patient association in Iceland for people with myasthenia gravis and their families; member of EuMGA.

    For Myasthenia gravis

    Visit site: mgisland.is
  • Patient groupAll of United States

    Muscular Dystrophy Association

    US nonprofit advancing research, care and advocacy for people living with muscular dystrophy, ALS and related neuromuscular diseases.

    For ALS (motor neurone disease), Spinal muscular atrophy, Duchenne muscular dystrophy and 2 more

    Visit site: mda.org
  • Patient groupAll of New Zealand

    Muscular Dystrophy Association of New Zealand Inc. (MDANZ)

    Muscular Dystrophy Association of New Zealand: patient organisation in New Zealand supporting people with spinal muscular atrophy (SMA), myasthenia gravis and Friedreich's ataxia and their families with information and support.

    For Spinal muscular atrophy, Myasthenia gravis, Friedreich ataxia

    Visit site: mda.org.nz
  • Patient groupAll of Ireland

    Muscular Dystrophy Ireland

    Irish national charity for people with muscular dystrophy and related neuromuscular conditions, including myasthenia gravis, offering services and information.

    For Myasthenia gravis, Duchenne muscular dystrophy

    Visit site: mdi.ie
  • Patient groupAll of Denmark

    Muskelsvindfonden

    Danish patient association for people with neuromuscular diseases, including ALS, myasthenia gravis, SMA and Duchenne; member of the ALS/MND Alliance, EuMGA, SMA Europe, WDO and EAMDA.

    For ALS (motor neurone disease), Myasthenia gravis, Spinal muscular atrophy and 1 more

    Visit site: muskelsvindfonden.dk
  • Patient groupAll of Australia

    Myasthenia Gravis Association of Queensland Inc.

    Myasthenia Gravis Association of Queensland: patient organisation in Australia supporting people with myasthenia gravis and their families with information and support.

    For Myasthenia gravis

    Visit site: mgaq.org.au
  • Patient groupAll of United States

    Myasthenia Gravis Foundation of America

    The largest US patient advocacy organization solely dedicated to myasthenia gravis: support, education and research funding.

    For Myasthenia gravis

    Visit site: myasthenia.org
  • Patient groupAll of Canada

    Myasthenia Gravis Society of Canada

    Society providing support, education and resources for Canadians living with myasthenia gravis.

    For Myasthenia gravis

    Visit site: mgcanada.org
  • Patient groupAll of United Kingdom

    Myaware

    Charity in the United Kingdom for people with myasthenia gravis and their families; member of EuMGA.

    For Myasthenia gravis

    Visit site: myaware.org
  • Patient groupAll of Sweden

    Neuroförbundet

    Swedish association for people with a neurological diagnosis, including MS, with local branches across the country.

    For Multiple sclerosis, Myasthenia gravis

    Visit site: neuro.se
  • Patient groupAll of Ghana

    Rare Diseases Ghana Initiative

    Rare Diseases Ghana Initiative: patient organisation in Ghana supporting people with rare diseases; member of RDI.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: rarediseaseghana.org
  • Patient groupAll of Nepal

    Rare Diseases Society Nepal

    Rare Diseases Society Nepal: patient organisation in Nepal supporting people with rare diseases; member of RDI.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: rarediseasenepal.org
  • Patient groupAll of Kenya

    Rare Disorders Kenya

    Rare Disorders Kenya: patient organisation in Kenya supporting people with rare diseases; member of RDI.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: rarediseasekenya.org
  • Patient groupAll of Zimbabwe

    Rare Disorders Zimbabwe (RDZ)

    Rare Disorders Zimbabwe (RDZ): patient organisation in Zimbabwe supporting people with rare diseases; member of RDI.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: raredisorderszim.org
  • Patient groupAll of Switzerland

    Schweizerische Muskelgesellschaft

    Swiss association for people with muscle diseases; runs Myasthenia gravis self-help groups in Bern, St. Gallen, Zurich and online, plus counselling.

    For Myasthenia gravis

    Visit site: muskelgesellschaft.ch
  • Patient groupAll of Albania

    Shoqata e Sëmundjeve të Rralla

    The Rare Diseases Association Albania is an NGO organising patients and active people in the rare disease field to improve their quality of life.

    For Glioblastoma, Acute myeloid leukemia, Childhood cancers and 34 more

    Visit site: rda-al.com
  • Patient groupAll of Netherlands

    Spierziekten Nederland

    Dutch patient association for people with neuromuscular diseases, including myasthenia gravis, SMA and CIDP; member of EuMGA and SMA Europe, listed by GBS|CIDP Foundation.

    For Myasthenia gravis, Spinal muscular atrophy, CIDP (chronic inflammatory demyelinating polyneuropathy) and 1 more

    Visit site: spierziekten.nl
  • Patient groupAll of Poland

    Stowarzyszenie Miastenia Gravis Face to Face

    Patient association in Poland for people with myasthenia gravis and their families; member of EuMGA.

    For Myasthenia gravis

    Visit site: miasteniagravis.pl
  • Patient groupAll of Finland

    Suomen MG-yhdistys ry

    Patient association in Finland for people with myasthenia gravis and their families; member of EuMGA.

    For Myasthenia gravis

    Visit site: suomenmg-yhdistys.fi
  • Patient groupAll of Thailand

    Thai Rare Disease Foundation

    Thai Rare Disease Foundation: foundation in Thailand supporting people with rare diseases; member of RDI.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: thairdf.org
  • Patient groupAll of Australia

    The Australian Myasthenic Association in NSW, Inc.

    Australian Myasthenic Association in NSW: patient organisation in Australia supporting people with myasthenia gravis and their families with information and support.

    For Myasthenia gravis

    Visit site: myasthenia.au
  • Patient groupAll of United States

    The MG Alliance

    US coalition of nonprofit myasthenia gravis organisations offering support groups, education, awareness, advocacy and events for patients and families.

    For Myasthenia gravis

    Visit site: themgalliance.org
  • Patient groupAll of United Arab Emirates

    UAE Rare Disease Society

    UAE Rare Disease Society: patient organisation in United Arab Emirates supporting people with rare diseases.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: uaerds.ae
  • Patient groupAll of Greece

    Πανελλήνιος Σύλλογος Μυασθένειας Gravis

    Patient association in Greece for people with myasthenia gravis and their families; member of EuMGA.

    For Myasthenia gravis

    Visit site: myasthenia.gr
  • Patient groupAll of Cyprus

    Σύνδεσμος Μυασθένειας Gravis Κύπρου

    Patient association in Cyprus for people with myasthenia gravis and their families; member of EuMGA.

    For Myasthenia gravis

    Visit site: mgcyprus.com
  • Patient groupAll of Bulgaria

    Сдружение „МС Общество България“

    Bulgarian association founded by people with MS and myasthenia gravis and their relatives; offers patient-rights information and social and physical rehabilitation.

    For Multiple sclerosis, Myasthenia gravis

    Visit site: msobg.info
  • Patient groupAll of Bulgaria

    Фондация Миастения Гравис

    Foundation in Bulgaria for people with myasthenia gravis and their families; member of EuMGA.

    For Myasthenia gravis

    Visit site: myastenia.bg
  • Patient groupAll of Iran

    بنیاد بیماری های نادر ایران

    Rare Disease Foundation of Iran (RADOIR): foundation in Iran supporting people with rare diseases; member of RDI, FIN.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: raredisease.ir
  • Patient groupAll of China

    北京爱力重症肌无力罕见病关爱中心

    Beijing non-profit for people with myasthenia gravis offering basic support, capacity building, social inclusion, rehabilitation programmes and policy advocacy.

    For Myasthenia gravis

    Visit site: ailimg.com
  • Patient groupAll of China

    病痛挑战基金会

    Illness Challenge Foundation: foundation in China supporting people with rare diseases; member of RDI.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: chinaicf.org
  • Patient groupAll of Japan

    筋無力症患者会

    Myasthenia Gravis Patients Association (Japan): patient organisation in Japan supporting people with myasthenia gravis and their families with information and support.

    For Myasthenia gravis

    Visit site: mgjapan.org
  • Patient groupAll of Taiwan

    財團法人罕見疾病基金會

    Taiwan Foundation for Rare Disorders: foundation in Taiwan supporting people with Fabry disease, Pompe disease; member of IPA, FIN.

    For Fabry disease, Pompe disease, Glioblastoma and 34 more

    Visit site: tfrd.org.tw
  • Umbrella organisationAll of South Korea

    (사)한국희귀·난치성질환연합회

    National federation of rare and intractable disease patient groups in Korea; runs policy advocacy, medical and welfare support and a shelter for rare disease patients and families.

    For Glioblastoma, Acute myeloid leukemia, Childhood cancers and 34 more

    Visit site: kord.or.kr
  • Umbrella organisationAll of Argentina

    Alianza Argentina de Pacientes (ALAPA)

    Alianza Argentina de Pacientes (ALAPA): national rare disease alliance in Argentina supporting people with rare diseases; member of RDI.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: alianzapacientes.org
  • Umbrella organisationAll of Dominican Republic

    Alianza Dominicana de Asociaciones de Pacientes (ADAPA)

    Alianza Dominicana de Asociaciones de Pacientes (ADAPA): national rare disease alliance in Dominican Republic supporting people with rare diseases; member of RDI.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: adapa.org.do
  • Umbrella organisationAll of Ecuador

    Alianza Nacional por la Salud (ANS)

    Quito-based alliance defending the right to health in Ecuador for patients with catastrophic, rare and orphan diseases; patient groups and foundations can join as members.

    For Glioblastoma, Acute myeloid leukemia, Childhood cancers and 34 more

    Visit site: ans.ec
  • Umbrella organisationAll of Brazil

    Associação Brasileira de Enfermidades Raras (FEBER)

    Associação Brasileira de Enfermidades Raras (FEBER): national rare disease alliance in Brazil supporting people with rare diseases; member of RDI.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: feberraras.wixsite.com
  • Umbrella organisationAll of Canada

    Canadian Organization for Rare Disorders

    National umbrella network for organizations and people with rare disorders, providing a common voice to advocate for health policy and services.

    For Glioblastoma, Acute myeloid leukemia, Childhood cancers and 34 more

    Visit site: raredisorders.ca
  • Umbrella organisationAll of Argentina

    Federación Argentina de Enfermedades Poco Frecuentes (FADEPOF)

    Federación Argentina de Enfermedades Poco Frecuentes (FADEPOF): national rare disease alliance in Argentina supporting people with rare diseases; member of RDI.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: fadepof.org.ar
  • Umbrella organisationAll of Colombia

    Federación Colombiana de Enfermedades Raras (FECOER)

    Federación Colombiana de Enfermedades Raras (FECOER): national rare disease alliance in Colombia supporting people with rare diseases; member of RDI.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: fecoer.org
  • Umbrella organisationAll of Mexico

    Federación Mexicana de Enfermedades Raras (FEMEXER)

    Federación Mexicana de Enfermedades Raras (FEMEXER): national rare disease alliance in Mexico supporting people with rare diseases; member of RDI, FIN.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: femexer.org
  • Umbrella organisationAll of Peru

    Federación Peruana de Enfermedades Raras (FEPER)

    Federación Peruana de Enfermedades Raras (FEPER): national rare disease alliance in Peru supporting people with rare diseases; member of RDI.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: feperperu.org
  • Umbrella organisationAll of India

    Indian Organization for Rare Diseases

    Indian Organization for Rare Diseases: national rare disease alliance in India supporting people with rare diseases; member of RDI.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: rarediseases.in
  • Umbrella organisationAll of Türkiye

    Nadir Hastalıklar Federasyonu

    Turkish federation founded by rare-disease patients and families to raise awareness and address their problems; members are rare-disease patient associations.

    For Glioblastoma, Acute myeloid leukemia, Childhood cancers and 34 more

    Visit site: nadir.org.tr
  • Umbrella organisationAll of Namibia

    Namibia Alliance for Rare Diseases

    Namibia Alliance for Rare Diseases: national rare disease alliance in Namibia supporting people with rare diseases; member of RDI.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: rarediseasesnamibia.org
  • Umbrella organisationAll of United States

    National Organization for Rare Disorders

    US national rare disease alliance of patient organizations: education, patient assistance programs, rare disease database and policy advocacy.

    For Glioblastoma, Acute myeloid leukemia, Childhood cancers and 34 more

    Visit site: rarediseases.org
  • Umbrella organisationAll of India

    Organization for Rare Diseases India (ORDI)

    Organization for Rare Diseases India (ORDI): national rare disease alliance in India supporting people with rare diseases; member of RDI, IPA.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: ordindia.in
  • Umbrella organisationAll of Philippines

    Philippine Society for Orphan Disorders (PSOD)

    Philippine Society for Orphan Disorders (PSOD): national rare disease alliance in Philippines supporting people with rare diseases; member of RDI, IPA, FIN.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: psod.org.ph
  • Umbrella organisationAll of South Africa

    Rare Diseases South Africa

    Rare Diseases South Africa: national rare disease alliance in South Africa supporting people with rare diseases; member of RDI, IPA, FIN.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: rarediseases.co.za
  • Umbrella organisationAll of New Zealand

    Rare Disorders NZ

    Rare Disorders NZ: national rare disease alliance in New Zealand supporting people with rare diseases; member of RDI.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: raredisorders.org.nz
  • Umbrella organisationAll of Australia

    Rare Voices Australia

    Rare Voices Australia: national rare disease alliance in Australia supporting people with rare diseases; member of RDI.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: rarevoices.org.au
  • Umbrella organisationAll of Slovenia

    Združenje za redke bolezni Slovenije (ZRBS)

    ZRBS is a voluntary association of Slovenian patient societies for specific groups of rare diseases; it co-organises the national Rare Disease Day conference.

    For Glioblastoma, Acute myeloid leukemia, Childhood cancers and 34 more

    Visit site: zrbs.eu
  • Umbrella organisationAll of China

    蔻德罕见病中心

    Chinese Organization for Rare Disorders (CORD): national rare disease alliance in China supporting people with rare diseases; member of RDI.

    For Acute lymphoblastic leukaemia, Acute myeloid leukemia, ALS (motor neurone disease) and 34 more

    Visit site: cord.org.cn
  • Umbrella organisationEurope

    European Alliance of Neuromuscular Disorders Associations

    European federation of national neuromuscular patient associations (all neuromuscular conditions): advocacy, international conferences, webinars, youth camps, patient publications.

    For Myasthenia gravis, Spinal muscular atrophy, Duchenne muscular dystrophy

    Visit site: eamda.eu
  • Umbrella organisationEurope

    European Myasthenia Gravis Association

    Non-profit umbrella of European national MG associations: information, support, awareness (European MG Day), journal and events.

    For Myasthenia gravis

    Visit site: eumga.eu
  • Umbrella organisationEurope

    EURORDIS – Rare Diseases Europe

    Alliance of over 1,000 rare disease patient organisations, with a list of rare disease helplines by country.

    For Glioblastoma, Acute myeloid leukemia, Childhood cancers and 35 more

    Visit site: eurordis.org
  • Umbrella organisationEurope

    European Patients' Forum (EPF)

    Umbrella of European patient organisations and national patient coalitions.

    For any disease

    Visit site: eu-patient.eu
  • Umbrella organisationInternational

    International Alliance of Patients' Organizations

    Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.

    For any disease

    Visit site: iapo.org.uk

Do you know an organisation we missed? Write to support@frontlightresearch.com and we will add it.