Support organisations
Patient groups and helplines near you, for people with a disease and for their families.
6 organisations for Myotonic dystrophy in United States
Myotonic Dystrophy Foundation
Supports and connects people with myotonic dystrophy, shares care resources and funds research toward a cure.
For Myotonic dystrophy
Visit site: myotonic.org
988 Suicide & Crisis Lifeline
US national 24/7 free and confidential lifeline for anyone in suicidal crisis or emotional distress, reachable by calling or texting 988 or by chat.
For any disease
Visit site: 988lifeline.org
MedlinePlus
Free, easy-to-read health information service of the US National Library of Medicine (NIH) on diseases, conditions, drugs and wellness.
For any disease
Visit site: medlineplus.gov
European Alliance of Neuromuscular Disorders Associations
European federation of national neuromuscular patient associations (all neuromuscular conditions): advocacy, international conferences, webinars, youth camps, patient publications.
For Myasthenia gravis, Spinal muscular atrophy, Duchenne muscular dystrophy and 1 more
Visit site: eamda.euEuropean Patients' Forum (EPF)
Umbrella of European patient organisations and national patient coalitions.
For any disease
Visit site: eu-patient.eu
International Alliance of Patients' Organizations
Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.
For any disease
Visit site: iapo.org.uk
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