Support organisations
Patient groups and helplines near you, for people with a disease and for their families.
6 organisations for Nephrotic syndrome in United States
988 Suicide & Crisis Lifeline
US national 24/7 free and confidential lifeline for anyone in suicidal crisis or emotional distress, reachable by calling or texting 988 or by chat.
For any disease
Visit site: 988lifeline.org
MedlinePlus
Free, easy-to-read health information service of the US National Library of Medicine (NIH) on diseases, conditions, drugs and wellness.
For any disease
Visit site: medlineplus.gov
European Kidney Patients' Federation
Federation of national kidney patient organisations: information materials, webinars, annual summit, youth camp, EU advocacy.
For Chronic kidney disease, IgA nephropathy, Polycystic kidney disease and 1 more
Visit site: ekpf.eu
International Federation of Kidney Foundations - World Kidney Alliance
Global federation of kidney foundations and some kidney patient associations; co-organises World Kidney Day with ISN, advocacy for kidney health. Mixed, mostly foundations.
For Chronic kidney disease, Nephrotic syndrome
Visit site: ifkf.orgEuropean Patients' Forum (EPF)
Umbrella of European patient organisations and national patient coalitions.
For any disease
Visit site: eu-patient.eu
International Alliance of Patients' Organizations
Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.
For any disease
Visit site: iapo.org.uk
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