Support organisations
Patient groups and helplines near you, for people with a disease and for their families.
23 organisations for Neuroendocrine tumours in United States
New Jersey Carcinoid Cancer NETwork
New Jersey support group for people with carcinoid and other neuroendocrine tumours and their caregivers, offering meetings, information and awareness.
For Neuroendocrine tumours
Visit site: njcarcinoidnetwork.orgNorCal CarciNET Community
Northern California community for people with neuroendocrine tumors and carers, offering support meetings, a patient conference and treatment resources.
For Neuroendocrine tumours
Visit site: norcalcarcinet.org
National Cancer Institute – Cancer Information Service (CIS)
NCI's contact center: information specialists answer cancer questions from patients, families and the public by phone, chat and email.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: cancer.gov
American Cancer Society
Nationwide US nonprofit helping people who face cancer: research, patient services, early detection, treatment information and education, with a cancer helpline on its site.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: cancer.org
Cactus Cancer Society
Young adult cancer resource and community: support programs for people diagnosed with cancer as young adults.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 29 more
Visit site: cactuscancer.org
Cancer Hope Network
Nonprofit providing free one-on-one support to cancer patients and families by matching them with trained volunteers who have had a similar experience.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: cancerhopenetwork.org
Cancer Nation
Survivor-led US cancer advocacy organization (formerly the National Coalition for Cancer Survivorship) working on quality cancer care and survivorship resources.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: canceradvocacy.orgCarcinoid Cancer Foundation
Denver-based foundation serving neuroendocrine cancer patients and caregivers with support groups, a support line, peer programs, education and events.
For Neuroendocrine tumours
Visit site: carcinoid.org
Genetic and Rare Diseases Information Center
NIH information center (GARD) providing reliable information on genetic and rare diseases to patients and families via website and contact center.
For Glioblastoma, Acute myeloid leukaemia, Hodgkin lymphoma and 32 more
Visit site: nih.gov
Imerman Angels
Nonprofit offering free one-on-one cancer support and personalized mentoring that connects cancer fighters, survivors and caregivers with someone who has been there.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: imermanangels.orgNeuroendocrine Cancer Awareness Network (NCAN; formerly Carcinoid Cancer Awareness Network)
Serves neuroendocrine (NET) cancer patients with a hotline, support groups, information packets, conferences, a podcast and awareness activities.
For Neuroendocrine tumours
Visit site: netcancerawareness.orgNeuroendocrine Cancer Foundation
Foundation offering resources and a supportive community for neuroendocrine cancer patients.
For Neuroendocrine tumours
Visit site: ncf.net
Neuroendocrine Tumor Research Foundation
Foundation funding neuroendocrine cancer research and offering expert information for patients.
For Neuroendocrine tumours
Visit site: netrf.org
The Healing NET Foundation
Foundation providing neuroendocrine cancer and carcinoid disease information for patients and clinicians.
For Neuroendocrine tumours
Visit site: thehealingnet.org
Triage Cancer
National nonprofit providing free education on legal and practical issues (insurance, employment, finances) for people with cancer and caregivers.
For Lung cancer, Pancreatic cancer, Metastatic breast cancer and 30 more
Visit site: triagecancer.org
988 Suicide & Crisis Lifeline
US national 24/7 free and confidential lifeline for anyone in suicidal crisis or emotional distress, reachable by calling or texting 988 or by chat.
For any disease
Visit site: 988lifeline.org
MedlinePlus
Free, easy-to-read health information service of the US National Library of Medicine (NIH) on diseases, conditions, drugs and wellness.
For any disease
Visit site: medlineplus.gov
National Organization for Rare Disorders
US national rare disease alliance of patient organizations: education, patient assistance programs, rare disease database and policy advocacy.
For Glioblastoma, Acute myeloid leukaemia, Childhood cancers and 34 more
Visit site: rarediseases.orgEuropean Cancer Patient Coalition (ECPC)
Umbrella of European cancer patient groups, with a patient toolbox and a legal network for cancer patients.
For Glioblastoma, Lung cancer, Childhood cancers and 30 more
Visit site: ecpc.org
EURORDIS – Rare Diseases Europe
Alliance of over 1,000 rare disease patient organisations, with a list of rare disease helplines by country.
For Glioblastoma, Acute myeloid leukaemia, Childhood cancers and 35 more
Visit site: eurordis.orgInternational Neuroendocrine Cancer Alliance
Global alliance of neuroendocrine cancer patient groups: local group finder, NET info packs, trial information, advocacy toolkit, NET Cancer Day
For Neuroendocrine tumours
Visit site: incalliance.orgEuropean Patients' Forum (EPF)
Umbrella of European patient organisations and national patient coalitions.
For any disease
Visit site: eu-patient.eu
International Alliance of Patients' Organizations
Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.
For any disease
Visit site: iapo.org.uk
Do you know an organisation we missed? Write to support@frontlightresearch.com and we will add it.