Support organisations

Patient groups and helplines near you, for people with a disease and for their families.

5 organisations for Neurofibromatosis type 1 in United States

HelplineAll of United States
988 Suicide & Crisis Lifeline
US national 24/7 free and confidential lifeline for anyone in suicidal crisis or emotional distress, reachable by calling or texting 988 or by chat.
For any disease
Visit site: 988lifeline.org
Patient groupAll of United States
MedlinePlus
Free, easy-to-read health information service of the US National Library of Medicine (NIH) on diseases, conditions, drugs and wellness.
For any disease
Visit site: medlineplus.gov
Umbrella organisationEurope
NF Patients United
Links national NF patient groups across Europe to share good practice and push for better care and information.
For Neurofibromatosis type 1
Visit site: nf-patients.eu
Umbrella organisationEurope
European Patients' Forum (EPF)
Umbrella of European patient organisations and national patient coalitions.
For any disease
Visit site: eu-patient.eu
Umbrella organisationInternational
International Alliance of Patients' Organizations
Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.
For any disease
Visit site: iapo.org.uk

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