Support organisations
Patient groups and helplines near you, for people with a disease and for their families.
10 organisations for Pulmonary arterial hypertension in United States
Genetic and Rare Diseases Information Center
NIH information center (GARD) providing reliable information on genetic and rare diseases to patients and families via website and contact center.
For Glioblastoma, Acute myeloid leukaemia, Hodgkin lymphoma and 32 more
Visit site: nih.gov
Pulmonary Hypertension Association
The world's largest pulmonary hypertension organization, providing support, education and resources to improve the lives of people with PH.
For Pulmonary arterial hypertension
Visit site: phassociation.org
988 Suicide & Crisis Lifeline
US national 24/7 free and confidential lifeline for anyone in suicidal crisis or emotional distress, reachable by calling or texting 988 or by chat.
For any disease
Visit site: 988lifeline.org
MedlinePlus
Free, easy-to-read health information service of the US National Library of Medicine (NIH) on diseases, conditions, drugs and wellness.
For any disease
Visit site: medlineplus.gov
National Organization for Rare Disorders
US national rare disease alliance of patient organizations: education, patient assistance programs, rare disease database and policy advocacy.
For Glioblastoma, Acute myeloid leukaemia, Childhood cancers and 34 more
Visit site: rarediseases.orgAlliance for Pulmonary Hypertension
PH patient groups from several countries sharing knowledge: a library of resources, news and webinars.
For Pulmonary arterial hypertension
Visit site: ph-ksp.com
EURORDIS – Rare Diseases Europe
Alliance of over 1,000 rare disease patient organisations, with a list of rare disease helplines by country.
For Glioblastoma, Acute myeloid leukaemia, Childhood cancers and 35 more
Visit site: eurordis.orgPulmonary Hypertension Association Europe
Federation of national PH patient associations (plus associated members worldwide): PH information, specialist finder, awareness campaigns, access-to-treatment advocacy.
For Pulmonary arterial hypertension
Visit site: phaeurope.orgEuropean Patients' Forum (EPF)
Umbrella of European patient organisations and national patient coalitions.
For any disease
Visit site: eu-patient.eu
International Alliance of Patients' Organizations
Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.
For any disease
Visit site: iapo.org.uk
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