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Support organisations

Patient groups and helplines near you, for people with a disease and for their families.

37 organisations for Sjögren's disease in all countries

  • Patient group

    Deutsche Rheuma-Liga Berlin e.V.

    Berlin self-help organisation for people with rheumatic diseases and their relatives, offering self-help groups, exercise courses, patient education and counselling.

    For Rheumatoid arthritis, Lupus (SLE), Osteoporosis and 3 more

    Visit site: rheuma-liga-berlin.de
  • Patient group

    Deutsche Rheuma-Liga Nordrhein-Westfalen e.V.

    Association in North Rhine-Westphalia for people with rheumatic diseases and their families, offering advice, exercise programmes, seminars and meetings.

    For Rheumatoid arthritis, Psoriatic arthritis, Sjögren's disease

    Visit site: rheuma-liga-nrw.de
  • Patient group

    Rheuma-Liga Arbeitsgemeinschaft München – Sjögren-Gruppe

    Sjögren's syndrome self-help group of Rheuma-Liga Munich offering peer meetings, including online via Zoom, and a contact person for patients.

    For Sjögren's disease

    Visit site: rheuma-liga-muenchen.de
  • Patient group

    Sjögren-Selbsthilfe Leipzig

    Self-help group in Leipzig and surroundings for people with Sjögren's syndrome; meets quarterly at the University of Leipzig without registration.

    For Sjögren's disease

    Visit site: sjoegren-leipzig.de
  • Patient group

    Sjögren-Selbsthilfegruppe München (Rheuma-Liga Bayern, AG München)

    Sjögren self-help group of the Rheuma-Liga Bavaria Munich branch, meeting online via Zoom on the second Wednesday of odd-numbered months.

    For Sjögren's disease

    Visit site: rheuma-liga-muenchen.de
  • Patient group

    Sjögren-Syndrom-Selbsthilfegruppe Darmstadt (Rheuma-Liga Hessen)

    Darmstadt Sjögren's syndrome self-help group, part of Rheuma-Liga Hessen, meeting about every two months together with lupus and other collagenosis patients.

    For Sjögren's disease

    Visit site: sjoegren-syndrom.de
  • Patient groupAll of New Zealand

    Arthritis New Zealand

    Arthritis New Zealand (Mateponapona Aotearoa), a charitable trust offering advice for people living with arthritis.

    For Rheumatoid arthritis, Lupus (SLE), Psoriatic arthritis and 1 more

    Visit site: arthritis.org.nz
  • Patient groupAll of Argentina

    Asociación Civil Argentina de Personas con Enfermedades Reumáticas

    ACAPER, Argentine civil association of people with rheumatic diseases (incl. spondyloarthritis and Sjögren’s).

    For Ankylosing spondylitis, Rheumatoid arthritis, Sjögren's disease

    Visit site: acaper.com.ar
  • Patient groupAll of Spain

    Asociación Española de Sjögren (AES)

    Patient association for people with Sjögren's disease in Spain; listed as a member of Sjögren Europe.

    For Sjögren's disease

    Visit site: aesjogren.org
  • Patient groupAll of Romania

    Asociaţia Pacienţilor cu Afecţiuni Autoimune (APAA)

    Romanian association supporting people and families affected by autoimmune diseases, including psoriasis; associated member of IFPA.

    For Psoriasis, Lupus (SLE), Sjögren's disease and 3 more

    Visit site: apaa.ro
  • Patient groupAll of France

    Association Française du Gougerot Sjögren et des Syndromes Secs (AFGS)

    Patient association for people with Sjögren's disease in France; listed as a member of Sjögren Europe.

    For Sjögren's disease

    Visit site: afgs-syndromes-secs.org
  • Patient groupAll of Italy

    Associazione Nazionale Malati Reumatici ANMAR ODV

    Information, training, patient guides and research support for people with rheumatic diseases.

    For Rheumatoid arthritis, Ankylosing spondylitis, Sjögren's disease

    Visit site: anmar-italia.it
  • Patient groupAll of Bulgaria

    BOPRD - Bulgarian Organisation for Patients with Rheumatic Diseases (ОПРЗБ)

    Patient organisation offering articles, library, videos, projects and awareness campaigns on rheumatic diseases.

    For Rheumatoid arthritis, Lupus (SLE), Systemic sclerosis (scleroderma) and 2 more

    Visit site: revmatologia.org
  • Patient groupAll of Belgium

    CIB-Liga vzw

    Patient association for people with lupus, scleroderma (systemic sclerosis), Sjögren's disease in Belgium; listed as a member of Lupus Europe, FESCA, Sjögren Europe.

    For Lupus (SLE), Systemic sclerosis (scleroderma), Sjögren's disease

    Visit site: cibliga.be
  • Patient groupAll of Germany

    Deutsche Rheuma-Liga Bundesverband e.V.

    Independent information, advice, peer self-help and exercise programmes; supports rheumatology research.

    For Rheumatoid arthritis, Psoriatic arthritis, Sjögren's disease

    Visit site: rheuma-liga.de
  • Patient groupAll of Iceland

    Gigtarfélag Íslands

    Education, counselling, peer-support groups, physiotherapy and occupational therapy for people with rheumatic conditions.

    For Rheumatoid arthritis, Lupus (SLE), Ankylosing spondylitis and 2 more

    Visit site: gigt.is
  • Patient groupAll of Denmark

    Gigtforeningen

    Knowledge, help and support for people with arthritis: health information, everyday advice, exercise programmes, community activities.

    For Rheumatoid arthritis, Lupus (SLE), Psoriatic arthritis and 3 more

    Visit site: gigtforeningen.dk
  • Patient groupAll of Israel

    Inbar

    Information, webinars, support groups and programmes for people with rheumatic, autoimmune and inflammatory diseases.

    For Rheumatoid arthritis, Lupus (SLE), Ankylosing spondylitis and 2 more

    Visit site: inbar.org.il
  • Patient groupAll of Portugal

    Liga Portuguesa Contra as Doenças Reumáticas (LPCDR)

    Patient and public education, patient information, support, volunteering, library and member benefits.

    For Rheumatoid arthritis, Systemic sclerosis (scleroderma), Sjögren's disease

    Visit site: lpcdr.org.pt
  • Patient groupAll of Slovakia

    Liga proti reumatizmu na Slovensku

    Local branches, disease-specific clubs, webinars, publications and social-psychological support.

    For Rheumatoid arthritis, Ankylosing spondylitis, Psoriatic arthritis and 1 more

    Visit site: mojareuma.sk
  • Patient groupAll of Netherlands

    Nationale Vereniging Sjögrenpatiënten (NVSP)

    Patient association for people with Sjögren's disease in the Netherlands; listed as a member of Sjögren Europe.

    For Sjögren's disease

    Visit site: nvsp.nl
  • Patient groupAll of Norway

    Norsk Revmatikerforbund

    Membership organisation offering diagnosis knowledge, peer support, helpline (NRF hjelper deg) and member benefits.

    For Rheumatoid arthritis, Osteoporosis, Lupus (SLE) and 4 more

    Visit site: revmatiker.no
  • Patient groupAll of Sweden

    Reumatikerförbundet

    Knowledge, research funding, advocacy, free helpline (Reuma direkt) and local member groups.

    For Rheumatoid arthritis, Lupus (SLE), Systemic sclerosis (scleroderma) and 3 more

    Visit site: reumatiker.se
  • Patient groupAll of Australia

    Sjögren's Australia

    Sjögren's Australia, a not-for-profit organisation providing education, connection and advocacy for people with Sjögren's.

    For Sjögren's disease

    Visit site: sjogrensaustralia.com.au
  • Patient groupAll of United States

    Sjögren's Foundation

    US nonprofit for people with Sjögren's disease: updates on research, treatments, events, advocacy and patient resources.

    For Sjögren's disease

    Visit site: sjogrens.org
  • Patient groupAll of Ireland

    Sjögren's Research Ireland

    Research collaboration with patients for people with Sjögren's disease in Ireland; listed as a member of Sjögren Europe.

    For Sjögren's disease

    Visit site: sjogrensresearch-ireland.eu
  • Patient groupAll of Canada

    Sjögren's Society of Canada

    Member-based society offering information, support groups and resources for Canadians living with Sjögren's disease.

    For Sjögren's disease

    Visit site: sjogrenscanada.org
  • Patient groupAll of United Kingdom

    Sjögren's UK

    Charity for people with Sjögren's disease in the United Kingdom; listed as a member of Sjögren Europe.

    For Sjögren's disease

    Visit site: sjogrensuk.org
  • Patient groupAll of Finland

    Suomen Sjögrenliitto ry

    Patient association for people with Sjögren's disease in Finland; listed as a member of Sjögren Europe.

    For Sjögren's disease

    Visit site: sjogrenliitto.fi
  • Patient groupAll of Serbia

    The Association of Rheumatic Diseases Patients of the Republic of Serbia (ORS)

    Patient support including free online counselling, brochures, psychological support and legal aid.

    For Rheumatoid arthritis, Lupus (SLE), Sjögren's disease and 2 more

    Visit site: ors.rs
  • Patient groupAll of Greece

    Ελληνική Εταιρεία Αντιρευματικού Αγώνα (ΕΛ.Ε.ΑΝ.Α.)

    Psychological support, patient information and events for people with rheumatic diseases.

    For Rheumatoid arthritis, Lupus (SLE), Systemic sclerosis (scleroderma) and 3 more

    Visit site: arthritis.org.gr
  • Patient groupAll of Cyprus

    Σύνδεσμος Ρευματοπαθών Κύπρου (CYLPER)

    National association of people with rheumatic diseases in Cyprus (homepage content not readable beyond title).

    For Rheumatoid arthritis, Lupus (SLE), Systemic sclerosis (scleroderma) and 3 more

    Visit site: rheumatism.org.cy
  • Patient groupAll of Japan

    膠原病・リウマチ・血管炎サポートネットワーク

    Kosapo – Collagen Disease, Rheumatism and Vasculitis Support Network (Japan): patient information and exchange.

    For Lupus (SLE), Rheumatoid arthritis, ANCA-associated vasculitis and 1 more

    Visit site: rheumatic-disease-community.org
  • Umbrella organisationEurope

    EULAR PARE (EULAR network of organisations of People with Arthritis/Rheumatism in Europe)

    Network of national patient organisations for people with rheumatic and musculoskeletal diseases (RMDs); EU-level advocacy, patient research partner training, Young PARE, webinars and support for national groups.

    For Rheumatoid arthritis, Lupus (SLE), Psoriatic arthritis and 4 more

    Visit site: eular.org
  • Umbrella organisationEurope

    Sjögren Europe

    European federation of national Sjögren's patient associations; awareness, patient involvement in research and policy, information and care advocacy.

    For Sjögren's disease

    Visit site: sjogreneurope.org
  • Umbrella organisationEurope

    European Patients' Forum (EPF)

    Umbrella of European patient organisations and national patient coalitions.

    For any disease

    Visit site: eu-patient.eu
  • Umbrella organisationInternational

    International Alliance of Patients' Organizations

    Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.

    For any disease

    Visit site: iapo.org.uk

Do you know an organisation we missed? Write to support@frontlightresearch.com and we will add it.