Support organisations
Patient groups and helplines near you, for people with a disease and for their families.
7 organisations for Wilson disease in United States
Wilson Disease Association
Gives information and support to people with Wilson disease, runs a patient registry and lists clinical trials.
For Wilson disease
Visit site: wilsondisease.org
988 Suicide & Crisis Lifeline
US national 24/7 free and confidential lifeline for anyone in suicidal crisis or emotional distress, reachable by calling or texting 988 or by chat.
For any disease
Visit site: 988lifeline.org
MedlinePlus
Free, easy-to-read health information service of the US National Library of Medicine (NIH) on diseases, conditions, drugs and wellness.
For any disease
Visit site: medlineplus.govEuropean Liver Patients' Association (ELPA)
European umbrella of national liver patient groups: liver disease information, HCC patient guide (with ESMO), clinical trial finder and liver cancer advocacy; points patients to member groups.
For Liver and biliary tract cancer, Fatty liver disease (MASLD/MASH), Primary biliary cholangitis and 4 more
Visit site: elpa.eu
Global Liver Institute (GLI)
Global liver health advocacy body with a Liver Cancers Council, patient/caregiver education events and advocate training; not a direct support service.
For Liver and biliary tract cancer, Fatty liver disease (MASLD/MASH), Primary biliary cholangitis and 2 more
Visit site: globalliver.orgEuropean Patients' Forum (EPF)
Umbrella of European patient organisations and national patient coalitions.
For any disease
Visit site: eu-patient.eu
International Alliance of Patients' Organizations
Global alliance of patient organisations of all diseases, promoting patient-centred healthcare.
For any disease
Visit site: iapo.org.uk
Do you know an organisation we missed? Write to support@frontlightresearch.com and we will add it.