Registry collecting information and samples from people with scleroderma
Collects health information and samples from adults with scleroderma to study the disease.
Plain-language title generated from the registry record
Registry title: Scleroderma Registry & Repository at the Hospital for Special Surgery
Key facts
- Where
- New York, United StatesSee the site
Where in United States
- Hospital for Special SurgeryNew York, United StatesTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Hospital for Special Surgery, New York
- Trial code
- NCT01656447
- Record updated
- 26 November 2025
- Original description
The overall objective of the Scleroderma Registry is to support and promote the basic science and clinical research of this complex rheumatic disease at the Hospital for Special Surgery (HSS). The registry facilitates our understanding of the clinical features, pathobiology, genetics of Scleroderma. This will ultimately lead to a potential treatment for this currently untreatable condition.Read full original descriptionShow less
The Scleroderma Registry & Repository
The overall objective of the Scleroderma Registry is to support and promote the basic science and clinical research of this complex rheumatic disease at the Hospital for Special Surgery (HSS). The registry facilitates our understanding of the clinical features, pathobiology, genetics of Scleroderma. This will ultimately lead to a potential treatment for this currently untreatable condition.
Inclusion: Individuals older than 18 years of age with Scleroderma.
Exclusion: Individuals younger than 18 years of age; Individuals older than 18 years of age without Scleroderma.