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NCT02194816Recruiting

Modifiable Variables in Parkinsonism (MVP)

Modifiable Variables in Parkinsonism (MVP) [Formerly CAM Care in PD]

Source: ClinicalTrials.gov · Last updated 25 Mar 2022 · Not updated for over 12 months - ask the site whether it is still open

Brief summary (registry, in English)

We are trying to identify factors associated with improved quality of life and fewer PD symptoms. We are attempting to identify practices, beliefs, and therapies used by individuals who report excellent quality of life, few PD symptoms, and reduced rates of progression. After agreeing to participate, we will ask participants to fill our questionnaires about their experience with PD, their health in general, along with their food intake every six months for five years.

Status (registry)
Recruiting
Study type
Observational
Enrollment
2000 (estimated)
First submitted
17 Jul 2014
Start date
Sept 2012
Primary completion date
Dec 2030
Lead sponsor
Bastyr University
NCT number
NCT02194816

What you commit to

  • Study type: Observational
  • Planned participants: 2000
  • From Sept 2012 to the primary completion date, Dec 2030
  • 1 site in 1 country
  • Visits and tests: ask the trial team, the registry does not list them

Built from the registry fields of ClinicalTrials.gov. It describes the study, not your situation.

Who cannot take part

Copied verbatim from ClinicalTrials.gov and grouped by topic. Only the trial team decides who can take part.

Other

  • Inability to read/write English
  • Inability or unwillingness to complete surveys every six (6) months (\~90 min)

Who the study is looking for

  • Parkinson's disease (PD)
  • Parkinsonism
  • Parkinson-plus syndromes (e.g. Multiple System Atrophy (MSA), Progressive Supranuclear Palsy (PSP), Corticobasal degeneration (CBGD), Dementia with Lewy bodies)
  • Must have online access, an email address, basic computer literacy
  • Must be willing to complete online surveys every 6 months for 5 years

Age in the registry: 19 years to - · Sex: All · Does not accept healthy volunteers

Full criteria on ClinicalTrials.gov

Sites (1)

Sites in registry order. Pick your city on the disease page to sort them by distance.

SiteCityCountrySite status
Bastyr University
Coordinator of this site? Confirm its status
KenmoreUnited StatesRecruiting

This page is information, not medical advice. Discuss any trial with your doctor.