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Studies habits and factors linked to quality of life in Parkinson's disease

Observes people with Parkinson's disease who report good quality of life and fewer symptoms.

Key facts

Who runs it
Bastyr University
Where
Kenmore, United StatesSee the site
Trial code
Registry title
Modifiable Variables in Parkinsonism (MVP)
Status
Recruiting
People taking part
2,000 people, planned
Started
Sept 2012
Expected to end
Dec 2030
Type of study
Observational
Record updated
25 March 2022

Who can take part

AI summary

From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.

The trial is looking for people with Parkinson's disease, parkinsonism or a related Parkinson-plus condition. They fill out online surveys every 6 months for 5 years.

Age
19 years or older
Sex
Men and women can join.
Disease stage
Parkinson's disease, parkinsonism or a Parkinson-plus syndrome such as Multiple System Atrophy (MSA), Progressive Supranuclear Palsy (PSP), Corticobasal degeneration or Dementia with Lewy bodies.

Main reasons for not taking part

  • Cannot read or write English
  • Cannot or will not complete surveys every six (6) months (~90 min)
  • No online access, email address or basic computer skills

The registry criteria, word for word

Show all 7 criteriaShow less

Who can take part

  • Parkinson's disease (PD)
  • Parkinsonism
  • Parkinson-plus syndromes (e.g. Multiple System Atrophy (MSA), Progressive Supranuclear Palsy (PSP), Corticobasal degeneration (CBGD), Dementia with Lewy bodies)
  • Must have online access, an email address, basic computer literacy
  • Must be willing to complete online surveys every 6 months for 5 years

Who cannot take part

  • Inability to read/write English
  • Inability or unwillingness to complete surveys every six (6) months (~90 min)

Where in United States

  • Bastyr UniversityKenmore, United StatesContact: Laurie K Mischley, ND, PhD, MPHTaking people

About the trial

What the trial wants to find out

We are trying to identify factors associated with improved quality of life and fewer PD symptoms. We are attempting to identify practices, beliefs, and therapies used by individuals who report excellent quality of life, few PD symptoms, and reduced rates of progression. After agreeing to participate, we will ask participants to fill our questionnaires about their experience with PD, their health in general, along with their food intake every six months for five years.

The group in the trial

  • Parkinson's Disease Patients

    Any individuals who has a diagnosis of Parkinson's disease (PD), parkinsonism, or a parkinson's plus syndrome will be allowed to participate.

Questions to ask the study team

  1. How often do I need to come in, and for how long each time?
  2. Are travel costs paid?
  3. Can I keep my own doctor?
  4. What happens if I want to stop?

Contact the study team: see the registry record → Contacts and Locations

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Data and sources

Registry record
Listed on ClinicalTrials.gov.
Official title
Modifiable Variables in Parkinsonism (MVP) [Formerly CAM Care in PD]
Plain-language title
Studies habits and factors linked to quality of life in Parkinson's diseaseGenerated from the registry record. The registry title is the official one.
AI summary
From the trial's eligibility criteria. Read by machine on 12 November 2026.
Record updated
25 March 2022