Under construction – not a live service
Sign in
Taking people in United StatesNo phase

Studies habits and factors linked to quality of life in Parkinson's disease

Observes people with Parkinson's disease who report good quality of life and fewer symptoms.

Plain-language title generated from the registry record
Registry title: Modifiable Variables in Parkinsonism (MVP)

Key facts

Where
Kenmore, United StatesSee the site

Where in United States

  • Bastyr UniversityKenmore, United StatesTaking people

Questions to ask the study team

  1. How often do I need to come in, and for how long each time?
  2. Are travel costs paid?
  3. Can I keep my own doctor?
  4. What happens if I want to stop?
Print a page for my doctor

Trial details

Who runs it
Bastyr University
Trial code
NCT02194816
Record updated
25 March 2022
Original description
We are trying to identify factors associated with improved quality of life and fewer PD symptoms. We are attempting to identify practices, beliefs, and therapies used by individuals who report excellent quality of life, few PD symptoms, and reduced rates of progression. After agreeing to participate, we will ask participants to fill our questionnaires about their experience with PD, their health in general, along with their food intake every six months for five years.Read full original descriptionShow less

Modifiable Variables in Parkinsonism (MVP) [Formerly CAM Care in PD]

We are trying to identify factors associated with improved quality of life and fewer PD symptoms. We are attempting to identify practices, beliefs, and therapies used by individuals who report excellent quality of life, few PD symptoms, and reduced rates of progression. After agreeing to participate, we will ask participants to fill our questionnaires about their experience with PD, their health in general, along with their food intake every six months for five years.

Inclusion: Parkinson's disease (PD); Parkinsonism; Parkinson-plus syndromes (e.g. Multiple System Atrophy (MSA), Progressive Supranuclear Palsy (PSP), Corticobasal degeneration (CBGD), Dementia with Lewy bodies); Must have online access, an email address, basic computer literacy; Must be willing to complete online surveys every 6 months for 5 years.

Exclusion: Inability to read/write English; Inability or unwillingness to complete surveys every six (6) months (~90 min).

ClinicalTrials.gov NCT02194816