Online Survey Registry on Experiences of Cancer Patients and Caregivers
Collects online survey answers from adults with cancer and their caregivers about daily life.
Plain-language title generated from the registry record
Registry title: Cancer Experience Registry (CER) for Cancer Patients and Caregivers
Key facts
- Where
- Washington D.C., United StatesSee the site
Where in United States
- Cancer Support Community Research & Training InstituteWashington D.C., United StatesTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Cancer Support Community, Research and Training Institute, Philadelphia
- Trial code
- NCT02333604
- Record updated
- 29 October 2026
- Original description
The Cancer Experience Registry®: An Online Survey Research Study to Understand the Experiences of Those Impacted By a Cancer Diagnosis. The Registry is a web-based platform to distribute cross-sectional and longitudinal surveys. Study surveys are designed based on input from advisor experts, including patients and caregivers, and focus on the social, emotional, physical, financial and decision-making experiences of those who have been diagnosed with cancer and their caregivers. Findings contribute toward enhancing care for patients, survivors and caregivers via programming and policy initiatives.Read full original descriptionShow less
Cancer Experience Registry: An Online Survey Research Study to Understand the Experiences of Cancer Patients and Caregivers
The Cancer Experience Registry®: An Online Survey Research Study to Understand the Experiences of Those Impacted By a Cancer Diagnosis. The Registry is a web-based platform to distribute cross-sectional and longitudinal surveys. Study surveys are designed based on input from advisor experts, including patients and caregivers, and focus on the social, emotional, physical, financial and decision-making experiences of those who have been diagnosed with cancer and their caregivers. Findings contribute toward enhancing care for patients, survivors and caregivers via programming and policy initiatives.
Inclusion: Have received a cancer diagnosis or have been a family caregiver or informal caregiver (i.e., a relative or friend) for someone diagnosed with cancer; Live in United States, a US territory, or Canada; Able to read and understand English.
Exclusion: None.