Observational Study of Pediatric Rheumatic Diseases: The CARRA Registry
Key facts
- Where
- San Juan, Puerto RicoSee the site
Where in Puerto Rico
- San Jorge Children's HospitalSan Juan, Puerto RicoNo longer taking part
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Trial details
- Who runs it
- Duke University
- Trial code
- NCT02418442
- Record updated
- 21 October 2026
- Original description
Continuation of the CARRA Registry as described in the protocol will support data collection on patients with pediatric-onset rheumatic diseases. The CARRA Registry will form the basis for future CARRA studies. In particular, this observational registry will be used to answer pressing questions about therapeutics used to treat pediatric rheumatic diseases, including safety questions.Read full original descriptionShow less
Continuation of the CARRA Registry as described in the protocol will support data collection on patients with pediatric-onset rheumatic diseases. The CARRA Registry will form the basis for future CARRA studies. In particular, this observational registry will be used to answer pressing questions about therapeutics used to treat pediatric rheumatic diseases, including safety questions.
Inclusion: Onset of rheumatic disease prior to age 16 years for JIA and onset prior to age 19 years for all other rheumatic diseases (see appendix A); Subject (and/or parent/legal guardian when required) is able to provide written informed consent and willing to comply with study procedures; Subject and/or parent/legal guardian is willing to be contacted in the future by study staff.
Exclusion: Greater than 21 years of age at the time of enrollment.