Registry following people with primary tumors of the spine
Collects health information from people with a primary spinal column tumor.
Plain-language title generated from the registry record
Registry title: Primary Tumor Research and Outcomes Network
Key facts
- Where
- Budapest, HungarySee the site
AI summary: who the study is looking for
From the trial's eligibility criteria. Machine-read from the registry text on this page, so it can be wrong. The registry text below and the trial team decide who can take part.
The registry is looking for people who have, or have had, a primary tumor of the spine. Researchers follow their treatment and outcomes over time.
- Sex
- All sexes can join.
- Disease stage
- A current or past primary spine tumor, in or around the spinal column or spinal cord. This includes tumors outside the spinal cord covering, inside the spinal cord, and next to the spinal cord.
Main reasons for not taking part
- A tumor in the spine that spread from another part of the body (metastatic tumor)
- Not giving informed consent (written consent by an approved route is allowed if the person cannot sign alone)
Read by machine on 12 November 2026.
Where in Hungary
- National Center for Spinal Disorders and Buda Health CenterBudapest, HungaryContact: Aron P Lazary, MDTaking people
Questions to ask the study team
- How often do I need to come in, and for how long each time?
- Are travel costs paid?
- Can I keep my own doctor?
- What happens if I want to stop?
Contact the study team: see the registry record → Contacts and Locations
Print a page for my doctorTrial details
- Who runs it
- AO Innovation Translation Center
- Trial code
- NCT02790983
- Record updated
- 25 February 2026
- Original description
This project aims to establish a network of spine oncology centers dedicated to prospective multicenter research of patients diagnosed with a primary tumor of the spine and will include a comprehensive prospective clinical database which will serve as a shared research platform. Demographic, clinical, diagnostic, and therapeutic variables will be used to answer questions about survival and local recurrence, as well as questions about adverse events (AEs), morbidity data, and health-related quality of life (HRQOL) outcomes.Read full original descriptionShow less
Primary Tumor Research and Outcomes Network (PTRON) A Multicenter Prospective Registry for the Management and Outcomes of Primary Tumors of the Spine
This project aims to establish a network of spine oncology centers dedicated to prospective multicenter research of patients diagnosed with a primary tumor of the spine and will include a comprehensive prospective clinical database which will serve as a shared research platform. Demographic, clinical, diagnostic, and therapeutic variables will be used to answer questions about survival and local recurrence, as well as questions about adverse events (AEs), morbidity data, and health-related quality of life (HRQOL) outcomes.
Inclusion: Patient with a current primary spine tumor or history of a primary spine tumor, including tumors within or surrounding the spinal column and/or spinal cord. This includes extradural tumors, intramedullary tumors (i.e. astrocytomas, ependymoma, etc.) and extramedullary tumors (i.e. meningiomas, neurofibromas, schwannomas, etc.); Informed consent obtained, i.e.:; Ability to understand the content of the patient information/ICF; Willingness and ability to participate in the registry according to the Registry Plan (RP); Signed and dated EC/IRB approved written informed consent; OR; Written consent provided according to the IRB/EC defined and approved procedures for patients who are not able to provide independent written informed consent.
Exclusion: Patient diagnosed with a metastatic tumor of the spine.